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From prenatal care to spina bifida related mortality: The lifespan is marked by transitions experienced by increasing immigrant and international populations

Journal of pediatric rehabilitation medicine, 2023-12, Vol.16 (4), p.581

2023

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Bladder Management and Continence Outcomes in Adults with Spina Bifida: Results from the National Spina Bifida Patient Registry, 2009 to 2015

The Journal of urology, 2018-07, Vol.200 (1), p.187

2018

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The National Spina Bifida Patient Registry: Profile of a Large Cohort of Participants from the First 10 Clinics

The Journal of pediatrics, 2015-02, Vol.166 (2), p.444-450.e1

2015

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From autism to zoom®: Spina bifida advocacy, care, education, and research in a changing word

Journal of pediatric rehabilitation medicine, 2022, Vol.15 (4), p.545

2022

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Spina bifida care, education, and research: A multidisciplinary community in a global context

Journal of pediatric rehabilitation medicine, 2021-01, Vol.14 (4), p.569

2021

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Bladder Reconstruction Rates Differ among Centers Participating in National Spina Bifida Patient Registry

The Journal of urology, 2018-01, Vol.199 (1), p.268

2018

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Factors Associated With Pressure Ulcers in Individuals With Spina Bifida

Archives of physical medicine and rehabilitation, 2015-08, Vol.96 (8), p.1435-1441.e1

2015

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Factors associated with the timeliness of postnatal surgical repair of spina bifida

Child's nervous system, 2016-08, Vol.32 (8), p.1479-1487

2016

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Testing the feasibility of a National Spina Bifida Patient Registry

Birth defects research. A Clinical and molecular teratology, 2013-01, Vol.97 (1), p.36-41

2013

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Are Adolescent Girls With a Physical Disability at Increased Risk for Sexual Violence?

The Journal of school health, 2010-07, Vol.80 (7), p.361-367

2010

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Inpatient and Emergency Room Visits for Adolescents and Young Adults With Spina Bifida Living in South Carolina

PM & R, 2015-05, Vol.7 (5), p.499-511

2015

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Site, frequency, and duration of pain in young children with spina bifida

Journal of pediatric rehabilitation medicine, 2021-01, Vol.14 (4), p.571

2021

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Health risk behaviors among young adults with spina bifida

Developmental medicine and child neurology, 2012-11, Vol.54 (11), p.1057-1064

2012

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The National Spina Bifida Patient Registry: Past, present, and future

Journal of pediatric rehabilitation medicine, 2017-12, Vol.10 (3-4), p.205

Thibadeau, Judy

2017

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The natural history of spina bifida in children pilot project: research protocol

JMIR research protocols, 2013-01, Vol.2 (1), p.e2-e2

2013

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Variation in surgical management of neurogenic bowel among centers participating in National Spina Bifida Patient Registry

Journal of pediatric rehabilitation medicine, 2017-12, Vol.10 (3-4), p.303

2017

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Care Coordination in the Spina Bifida Clinic Setting: Current Practice and Future Directions

Journal of pediatric health care, 2012, Vol.26 (1), p.16-26

2012

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Neurodevelopmental Implications on Urological Self-management Among People Living With Spina Bifida: A Practical Guide for Urology Providers

Urology (Ridgewood, N.J.), 2023-03, Vol.173, p.17-25

2023

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Sociodemographic attributes and spina bifida outcomes

Pediatrics (Evanston), 2015-04, Vol.135 (4), p.e957

2015

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Implementing a specialty electronic medical record to document a life-course developmental model and facilitate clinical interventions in spina bifida clinics

The Pediatric clinics of North America, 2010-08, Vol.57 (4), p.959

2010

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Causes of death among people with myelomeningocele: A multi-institutional 47-year retrospective study

Journal of pediatric rehabilitation medicine, 2023-12, Vol.16 (4), p.605

2023

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Release and highlights of the Lifespan Bowel Management Protocol produced for clinicians who manage neurogenic bowel dysfunction in individuals with spina bifida

Journal of pediatric rehabilitation medicine, 2023-12, Vol.16 (4), p.675

2023

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Addressing social determinants of health through customization: Quality improvement, telemedicine, and care coordination to serve immigrant families

Journal of pediatric rehabilitation medicine, 2023-12, Vol.16 (4), p.665

2023

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Folic acid prescription practice for high-risk prevention of spina bifida at a tertiary care hospital in Addis Ababa, Ethiopia

Journal of pediatric rehabilitation medicine, 2023-12, Vol.16 (4), p.623

2023

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From prenatal care to spina bifida related mortality: The lifespan is marked by transitions experienced by increasing immigrant and international populations

Bladder Management and Continence Outcomes in Adults with Spina Bifida: Results from the National Spina Bifida Patient Registry, 2009 to 2015

Design and Methodological Considerations of the Centers for Disease Control and Prevention Urologic and Renal Protocol for the Newborn and Young Child with Spina Bifida

The National Spina Bifida Patient Registry: Profile of a Large Cohort of Participants from the First 10 Clinics

From autism to zoom®: Spina bifida advocacy, care, education, and research in a changing word

Spina bifida care, education, and research: A multidisciplinary community in a global context

Bladder Reconstruction Rates Differ among Centers Participating in National Spina Bifida Patient Registry

Factors Associated With Pressure Ulcers in Individuals With Spina Bifida

Factors associated with the timeliness of postnatal surgical repair of spina bifida

Testing the feasibility of a National Spina Bifida Patient Registry

Are Adolescent Girls With a Physical Disability at Increased Risk for Sexual Violence?

Inpatient and Emergency Room Visits for Adolescents and Young Adults With Spina Bifida Living in South Carolina

Site, frequency, and duration of pain in young children with spina bifida

Health risk behaviors among young adults with spina bifida

The National Spina Bifida Patient Registry: Past, present, and future

The natural history of spina bifida in children pilot project: research protocol

Variation in surgical management of neurogenic bowel among centers participating in National Spina Bifida Patient Registry

Care Coordination in the Spina Bifida Clinic Setting: Current Practice and Future Directions

Neurodevelopmental Implications on Urological Self-management Among People Living With Spina Bifida: A Practical Guide for Urology Providers

Sociodemographic attributes and spina bifida outcomes

Implementing a specialty electronic medical record to document a life-course developmental model and facilitate clinical interventions in spina bifida clinics

Causes of death among people with myelomeningocele: A multi-institutional 47-year retrospective study

Release and highlights of the Lifespan Bowel Management Protocol produced for clinicians who manage neurogenic bowel dysfunction in individuals with spina bifida

Addressing social determinants of health through customization: Quality improvement, telemedicine, and care coordination to serve immigrant families

Folic acid prescription practice for high-risk prevention of spina bifida at a tertiary care hospital in Addis Ababa, Ethiopia

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