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Mental Health screening in cystic fibrosis centres across Europe

Journal of cystic fibrosis, 2019-03, Vol.18 (2), p.299-303

2019

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Use of a mobile application for self-management of pancreatic enzyme replacement therapy is associated with improved gastro-intestinal related quality of life in children with Cystic Fibrosis

Journal of cystic fibrosis, 2020-07, Vol.19 (4), p.562-568

2020

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68 Frequency and persistence of CF airway pathogens from diagnosis to age 16 years

Journal of cystic fibrosis, 2016-06, Vol.15, p.S68-S68

2016

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396 Agreement between patients' self-report and multidisciplinary CF professionals' proxy report of symptoms of anxiety and depression

Journal of cystic fibrosis, 2017-06, Vol.16, p.S163-S163

2017

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WS07.4 Bereavement and loss in a 14 year-old girl and the impact on CF

Journal of cystic fibrosis, 2018-06, Vol.17, p.S13-S14

Havermans, T.

2018

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236 Differences in perceptions of illness and its treatment before and after transplantation: implications for treatment adherence

Journal of cystic fibrosis, 2016-06, Vol.15, p.S111-S111

2016

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78 Pseudomonas aeruginosa (Pa) infection burden during childhood and outcome at age 16 years

Journal of cystic fibrosis, 2016-06, Vol.15, p.S71-S71

2016

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79 Pseudomonas aeruginosa (Pa) mucoidity: how concordant is this with persistent Pa infection?

Journal of cystic fibrosis, 2016-06, Vol.15, p.S71-S71

2016

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267 Bringing bad news: the diagnosis of cystic fibrosis in childhood

Journal of cystic fibrosis, 2014-06, Vol.13, p.S116-S116

2014

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116 Lung transplantation for chronic Mycobacterium abscessus infection in advanced cystic fibrosis: a possibility?

Journal of cystic fibrosis, 2017-06, Vol.16, p.S95-S95

2017

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WS09.7 The CF CARE programme for adherence training in the CF multidisciplinary team

Journal of cystic fibrosis, 2015-06, Vol.14, p.S18-S18

2015

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247 Long-lasting anxiety and depression in patients with cystic fibrosis: the importance of illness perceptions and social support

Journal of cystic fibrosis, 2016-06, Vol.15, p.S114-S114

2016

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323 Bringing bad news: The diagnosis of cystic fibrosis in childhood

Journal of cystic fibrosis, 2013-06, Vol.12, p.S131-S131

2013

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Siblings of children with cystic fibrosis: quality of life and the impact of illness

Child : care, health & development, 2011-03, Vol.37 (2), p.252-260

2011

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264 Grandparental knowledge of cystic fibrosis treatment

Journal of cystic fibrosis, 2014-06, Vol.13, p.S115-S115

2014

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331 CF and pain: a hidden complication?

Journal of cystic fibrosis, 2012-06, Vol.11, p.S141-S141

2012

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341 MyCyFAPP project: assessment and validation of the PEDsQL GI symptom scale in children with CF

Journal of cystic fibrosis, 2017-06, Vol.16, p.S150-S150

2017

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Measuring health-related quality of life in clinical trials in cystic fibrosis

Journal of cystic fibrosis, 2011-06, Vol.10, p.S82-S85

2011

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Assessment of agreement between parents and children on health-related quality of life in children with cystic fibrosis

Child : care, health & development, 2006-01, Vol.32 (1), p.1-7

2006

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WS13.1 Lung clearance index predicts time to pulmonary exacerbation in children with CF

Journal of cystic fibrosis, 2013-06, Vol.12, p.S26-S26

2013

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Education and CF: experiences of parents and schools

Journal of cystic fibrosis, 2009, Vol.8, p.S97-S97

2009

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WS19.01 Non-adherence in the twilight zone: the complexity of complex medications

Journal of cystic fibrosis, 2023-06, Vol.22, p.S35-S36

2023

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347 Communication and information about reproductive and sexual health in cystic fibrosis: a review

Journal of cystic fibrosis, 2011, Vol.10, p.S88-S88

2011

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ePS1.02 Long-term psychological impact of COVID-19 on adult patients with cystic fibrosis, including transplanted patients

Journal of cystic fibrosis, 2022-06, Vol.21, p.S43-S43

2022

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WS3.9 How much importance should we attribute to socioeconomic status in families with patients with CF?

Journal of cystic fibrosis, 2012-06, Vol.11, p.S8-S8

2012

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Mental Health screening in cystic fibrosis centres across Europe

Use of a mobile application for self-management of pancreatic enzyme replacement therapy is associated with improved gastro-intestinal related quality of life in children with Cystic Fibrosis

68 Frequency and persistence of CF airway pathogens from diagnosis to age 16 years

396 Agreement between patients' self-report and multidisciplinary CF professionals' proxy report of symptoms of anxiety and depression

WS07.4 Bereavement and loss in a 14 year-old girl and the impact on CF

236 Differences in perceptions of illness and its treatment before and after transplantation: implications for treatment adherence

78 Pseudomonas aeruginosa (Pa) infection burden during childhood and outcome at age 16 years

79 Pseudomonas aeruginosa (Pa) mucoidity: how concordant is this with persistent Pa infection?

267 Bringing bad news: the diagnosis of cystic fibrosis in childhood

116 Lung transplantation for chronic Mycobacterium abscessus infection in advanced cystic fibrosis: a possibility?

WS09.7 The CF CARE programme for adherence training in the CF multidisciplinary team

247 Long-lasting anxiety and depression in patients with cystic fibrosis: the importance of illness perceptions and social support

323 Bringing bad news: The diagnosis of cystic fibrosis in childhood

Siblings of children with cystic fibrosis: quality of life and the impact of illness

264 Grandparental knowledge of cystic fibrosis treatment

331 CF and pain: a hidden complication?

341 MyCyFAPP project: assessment and validation of the PEDsQL GI symptom scale in children with CF

Measuring health-related quality of life in clinical trials in cystic fibrosis

Assessment of agreement between parents and children on health-related quality of life in children with cystic fibrosis

WS13.1 Lung clearance index predicts time to pulmonary exacerbation in children with CF

Education and CF: experiences of parents and schools

WS19.01 Non-adherence in the twilight zone: the complexity of complex medications

347 Communication and information about reproductive and sexual health in cystic fibrosis: a review

ePS1.02 Long-term psychological impact of COVID-19 on adult patients with cystic fibrosis, including transplanted patients

WS3.9 How much importance should we attribute to socioeconomic status in families with patients with CF?

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