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The Individual and Family Self-Management Theory: Background and perspectives on context, process, and outcomes

Nursing outlook, 2009-07, Vol.57 (4), p.217-225.e6

2009

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The National Spina Bifida Patient Registry: Profile of a Large Cohort of Participants from the First 10 Clinics

The Journal of pediatrics, 2015-02, Vol.166 (2), p.444-450.e1

2015

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Factors Associated With Pressure Ulcers in Individuals With Spina Bifida

Archives of physical medicine and rehabilitation, 2015-08, Vol.96 (8), p.1435-1441.e1

2015

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Negative Consequences of Providing Nursing Care in the Neonatal Intensive Care Unit

Nursing outlook, 2018-11, Vol.66 (6), p.576-585

2018

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Body Composition and Energy Expenditure in Youth With Spina Bifida: Protocol for a Multisite, Cross-Sectional Study

JMIR research protocols, 2024-07, Vol.13, p.e52779

2024

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Energy expenditure and weight-related behaviors in youth with Down syndrome: a protocol

Frontiers in pediatrics, 2023-07, Vol.11, p.1151797

2023

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Discharge Teaching, Readiness for Discharge, and Post-discharge Outcomes in Parents of Hospitalized Children

Journal of pediatric nursing, 2017-05, Vol.34, p.58-64

2017

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Surgeries and Health Outcomes Among Patients With Spina Bifida

Pediatrics (Evanston), 2018-09, Vol.142 (3)

2018

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Testing Components of a Self-Management Theory in Adolescents With Type 1 Diabetes Mellitus

Nursing research (New York), 2016-11, Vol.65 (6), p.487-495

2016

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Trajectories of self‐management and independence in youth with spina bifida: Demographic predictors of growth

Child : care, health & development, 2023-05, Vol.49 (3), p.508-517

2023

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Contextual predictors of self-management and independence trajectories in adolescents and young adults with spina bifida

Developmental medicine and child neurology, 2024-03, Vol.66 (10), p.1329-1339

2024

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Risks and Protective Factors for Stress Self-Management in Parents of Children With Autism Spectrum Disorder: An Integrated Review of the Literature

Journal of pediatric nursing, 2016-11, Vol.31 (6), p.567-579

2016

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Weight Status of Children Participating in the National Spina Bifida Patient Registry

Pediatrics (Evanston), 2022-12, Vol.150 (6), p.1

2022

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The Influence of a Developmental Disability on the Child's Weight-Related Behaviors: A Parent's Perspective

Journal of pediatric nursing, 2019-07, Vol.47, p.121-130

2019

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Measurement in Family Nursing: Established Instruments and New Directions

Journal of family nursing, 2016-08, Vol.22 (3), p.287-297

Sawin, Kathleen J.

2016

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Trajectories of self‐management and independence in youth with spina bifida: Family‐related predictors of growth

Research in nursing & health, 2024-08, Vol.47 (4), p.435-449

2024

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Longitudinal Study of Bladder Continence in Patients with Spina Bifida in the National Spina Bifida Patient Registry

The Journal of urology, 2018-03, Vol.199 (3), p.837-843

2018

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Trends in the early care of infants with myelomeningocele in the United States 2012–2018

Child's nervous system, 2023-09, Vol.39 (9), p.2413-2421

2023

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Adolescent/Young Adult Self‐Management and Independence Self‐Report Scale: Preliminary psychometric findings

Child : care, health & development, 2024-01, Vol.50 (1), p.e13229-n/a

2024

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Family engagement in paediatric acute care settings: A realist review

Journal of advanced nursing, 2024-02, Vol.80 (2), p.446-464

2024

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Parental Feeding Behaviors and Weight-Related Concerns in Children With Special Needs

Western journal of nursing research, 2017-08, Vol.39 (8), p.1070-1093

2017

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Parent Readiness for Hospital Discharge Scale: Psychometrics and Association With Postdischarge Outcomes

Journal of pediatric health care, 2020-01, Vol.34 (1), p.30-37

2020

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The Importance of Self-Perceptions to Psychosocial Adjustment in Adolescents With Heart Disease

Journal of pediatric health care, 2014-05, Vol.28 (3), p.251-261

2014

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Sociodemographic disparities in fetal surgery for myelomeningocele: a single-center retrospective review

Journal of neurosurgery. Pediatrics, 2022-04, Vol.29 (4), p.366-370

2022

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Quality of life: Guidelines for the care of people with spina bifida

Journal of pediatric rehabilitation medicine, 2020-01, Vol.13 (4), p.565-582

2020

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The Individual and Family Self-Management Theory: Background and perspectives on context, process, and outcomes

The National Spina Bifida Patient Registry: Profile of a Large Cohort of Participants from the First 10 Clinics

Factors Associated With Pressure Ulcers in Individuals With Spina Bifida

Negative Consequences of Providing Nursing Care in the Neonatal Intensive Care Unit

Body Composition and Energy Expenditure in Youth With Spina Bifida: Protocol for a Multisite, Cross-Sectional Study

Energy expenditure and weight-related behaviors in youth with Down syndrome: a protocol

Discharge Teaching, Readiness for Discharge, and Post-discharge Outcomes in Parents of Hospitalized Children

Surgeries and Health Outcomes Among Patients With Spina Bifida

Testing Components of a Self-Management Theory in Adolescents With Type 1 Diabetes Mellitus

Trajectories of self‐management and independence in youth with spina bifida: Demographic predictors of growth

Contextual predictors of self-management and independence trajectories in adolescents and young adults with spina bifida

Risks and Protective Factors for Stress Self-Management in Parents of Children With Autism Spectrum Disorder: An Integrated Review of the Literature

Weight Status of Children Participating in the National Spina Bifida Patient Registry

The Influence of a Developmental Disability on the Child's Weight-Related Behaviors: A Parent's Perspective

Measurement in Family Nursing: Established Instruments and New Directions

Trajectories of self‐management and independence in youth with spina bifida: Family‐related predictors of growth

Longitudinal Study of Bladder Continence in Patients with Spina Bifida in the National Spina Bifida Patient Registry

Trends in the early care of infants with myelomeningocele in the United States 2012–2018

Adolescent/Young Adult Self‐Management and Independence Self‐Report Scale: Preliminary psychometric findings

Family engagement in paediatric acute care settings: A realist review

Parental Feeding Behaviors and Weight-Related Concerns in Children With Special Needs

Parent Readiness for Hospital Discharge Scale: Psychometrics and Association With Postdischarge Outcomes

The Importance of Self-Perceptions to Psychosocial Adjustment in Adolescents With Heart Disease

Sociodemographic disparities in fetal surgery for myelomeningocele: a single-center retrospective review

Quality of life: Guidelines for the care of people with spina bifida

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