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Editorial – Living, Caring, Learning: How patients shape the specialist haemophilia nurse

Journal of Haemophilia Practice, 2023-05, Vol.10 (1), p.28-29

Khair, Kate

2023

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Iatrogenic Spinal Subdural Hematoma due to Apixaban: A Case Report and Review of the Literature

Case reports in hematology, 2018-01, Vol.2018, p.4507638-5

2018

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Barriers to gene therapy, understanding the concerns people with haemophilia have: an exigency sub-study

Orphanet journal of rare diseases, 2024-02, Vol.19 (1), p.59-59, Article 59

2024

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Treatment of Bleeding Diathesis Associated with a Heparin-Like Anticoagulant in Plasma Cell Neoplasia Using Protamine

Case reports in hematology, 2018-01, Vol.2018, p.4342301-3

2018

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The experiences of people with haemophilia and their families of gene therapy in a clinical trial setting: regaining control, the Exigency study

Orphanet journal of rare diseases, 2022-04, Vol.17 (1), p.155-155, Article 155

2022

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Acquired Factor VIII Inhibitor Presenting as Occult GI Bleeding

Case reports in hematology, 2018-01, Vol.2018, p.1910854-3

2018

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The lived experience of a novel disruptive therapy in a group of men and boys with haemophilia A with inhibitors: Emi & Me

Health expectations : an international journal of public participation in health care and health policy, 2022-02, Vol.25 (1), p.443-454

2022

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Exploration of the impact of gene therapy on the lives of people with haemophilia and their families: a protocol for the mixed-methods exigency study

BMJ open, 2022-08, Vol.12 (8), p.e060351

2022

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Using theory of change to co-create a programme theory for a telerehabilitation intervention for pain management in people with haemophilia

Orphanet journal of rare diseases, 2023-12, Vol.18 (1), p.1-376, Article 376

2023

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The Cinderella Study: women's lived experience of bleeding disorders – CSL Behring Symposium

Journal of Haemophilia Practice, 2022-11, Vol.9 (1), p.137-142

2022

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“You’re only a carrier” – women and the language of haemophilia

Journal of Haemophilia Practice, 2021-11, Vol.8 (1), p.128-132

2021

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Shared decision-making for gene therapy in haemophilia care

Journal of Haemophilia Practice, 2023-08, Vol.10 (1), p.62-67

2023

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Project GYM: A randomized feasibility study investigating effect on motivation of personal trainer‐led exercise in young men with hemophilia

Research and practice in thrombosis and haemostasis, 2021-12, Vol.5 (8), p.e12613-e12613, Article e12613

2021

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The lived experience of women with a bleeding disorder: A systematic review

Research and practice in thrombosis and haemostasis, 2022-01, Vol.6 (1), p.e12652-n/a, Article e12652

2022

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“It's a way of life”: Results from the Perceptions of Pain in Haemophilia study

Journal of Haemophilia Practice, 2022-03, Vol.8 (1), p.145-154

2022

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Bruising and bleeding in infants and children – a practical approach

British journal of haematology, 2006-05, Vol.133 (3), p.221-231

2006

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A multi-country snapshot study of pain in people with haemophilia

Journal of Haemophilia Practice, 2020-12, Vol.7 (1), p.143-149

2020

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A multi-stakeholder collaborative approach to awareness, education and support needed in the haemophilia gene therapy patient journey – a report on insights from a European patient advisory board

Journal of Haemophilia Practice, 2024-04, Vol.11 (1), p.47-57

2024

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The journey of gene therapy in haemophilia – putting the patient at the centre of the hub and spoke model

Journal of Haemophilia Practice, 2023-01, Vol.9 (1), p.156-166

2023

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The effectiveness and safety of octocog alfa in patients with hemophilia A: up to 7-year follow-up of the real-world AHEAD international study

Therapeutic advances in hematology, 2024-01, Vol.15, p.20406207231218624-20406207231218624

2024

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Fitness enhances psychosocial well‐being and self‐confidence in young men with hemophilia: Results from Project GYM

Research and practice in thrombosis and haemostasis, 2021-12, Vol.5 (8), p.e12622-e12622, Article e12622

2021

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Experience of switching to NovoEight: views of people with haemophilia

Journal of Haemophilia Practice, 2020-06, Vol.7 (1), p.70-77

2020

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Switching factor products: nurses’ experience with NovoEight

Journal of Haemophilia Practice, 2020-06, Vol.7 (1), p.59-69

2020

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Research Engagement in Pediatric Nursing Practice: Career Pathways are the Biggest Barrier

The Journal of pediatrics, 2020-06, Vol.221, p.S62-S63

2020

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CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia

Journal of Haemophilia Practice, 2024-04, Vol.11 (1), p.38-46

2024

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Editorial – Living, Caring, Learning: How patients shape the specialist haemophilia nurse

Iatrogenic Spinal Subdural Hematoma due to Apixaban: A Case Report and Review of the Literature

Barriers to gene therapy, understanding the concerns people with haemophilia have: an exigency sub-study

Treatment of Bleeding Diathesis Associated with a Heparin-Like Anticoagulant in Plasma Cell Neoplasia Using Protamine

The experiences of people with haemophilia and their families of gene therapy in a clinical trial setting: regaining control, the Exigency study

Acquired Factor VIII Inhibitor Presenting as Occult GI Bleeding

The lived experience of a novel disruptive therapy in a group of men and boys with haemophilia A with inhibitors: Emi & Me

Exploration of the impact of gene therapy on the lives of people with haemophilia and their families: a protocol for the mixed-methods exigency study

Using theory of change to co-create a programme theory for a telerehabilitation intervention for pain management in people with haemophilia

The Cinderella Study: women's lived experience of bleeding disorders – CSL Behring Symposium

“You’re only a carrier” – women and the language of haemophilia

Shared decision-making for gene therapy in haemophilia care

Project GYM: A randomized feasibility study investigating effect on motivation of personal trainer‐led exercise in young men with hemophilia

The lived experience of women with a bleeding disorder: A systematic review

“It's a way of life”: Results from the Perceptions of Pain in Haemophilia study

Bruising and bleeding in infants and children – a practical approach

A multi-country snapshot study of pain in people with haemophilia

A multi-stakeholder collaborative approach to awareness, education and support needed in the haemophilia gene therapy patient journey – a report on insights from a European patient advisory board

The journey of gene therapy in haemophilia – putting the patient at the centre of the hub and spoke model

The effectiveness and safety of octocog alfa in patients with hemophilia A: up to 7-year follow-up of the real-world AHEAD international study

Fitness enhances psychosocial well‐being and self‐confidence in young men with hemophilia: Results from Project GYM

Experience of switching to NovoEight: views of people with haemophilia

Switching factor products: nurses’ experience with NovoEight

Research Engagement in Pediatric Nursing Practice: Career Pathways are the Biggest Barrier

CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia

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