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Promoting Optimal Development: Identifying Infants and Young Children With Developmental Disorders Through Developmental Surveillance and Screening

Pediatrics (Evanston), 2020-01, Vol.145 (1), p.1

2020

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Scientific methodology of the development of the Guidelines for the Care of People with Spina Bifida: An initiative of the Spina Bifida Association

Disability and health journal, 2020-04, Vol.13 (2), p.100816, Article 100816

2020

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Guidelines and scientifically-based spina bifida care: Guidance across the lifespan in a global health context

Journal of pediatric rehabilitation medicine, 2020-01, Vol.13 (4), p.453

2020

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Adolescent/Young Adult Self‐Management and Independence Self‐Report Scale: Preliminary psychometric findings

Child : care, health & development, 2024-01, Vol.50 (1), p.e13229-n/a

2024

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Prevention and awareness of birth defects across the lifespan using examples from congenital heart defects and spina bifida

Birth defects research, 2022-01, Vol.114 (2), p.35-44

2022

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Quality of life: Guidelines for the care of people with spina bifida

Journal of pediatric rehabilitation medicine, 2020-01, Vol.13 (4), p.565

2020

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Quality of Life in Adolescents and Young Adults with and Without Spina Bifida: An Exploratory Analysis

Journal of pediatric nursing, 2019-11, Vol.49, p.10-17

2019

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Self-management and spina bifida: A systematic review of the literature

Disability and health journal, 2021-01, Vol.14 (1), p.100940, Article 100940

2021

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Nonoral feeding for children and youth with developmental or acquired disabilities

Pediatrics (Evanston), 2014-12, Vol.134 (6), p.e1745

2014

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Introduction: Spina bifida-A multidisciplinary perspective

Developmental disabilities research reviews, 2010, Vol.16 (1), p.1-5

2010

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Bowel management and continence in adults with spina bifida: Results from the National Spina Bifida Patient Registry 2009-15

Journal of pediatric rehabilitation medicine, 2017-12, Vol.10 (3-4), p.335

2017

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Health risk behaviors in spina bifida: the need for clinical and policy action

Developmental medicine and child neurology, 2012-11, Vol.54 (11), p.974-975

2012

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The future of the multidisciplinary clinic

TheScientificWorld, 2007-11, Vol.7, p.1752-1756

Brei, Timothy J

2007

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Genetic epidemiology of neural tube defects

Journal of pediatric rehabilitation medicine, 2017-12, Vol.10 (3-4), p.189

2017

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Urologic self-management through intermittent self-catheterization among individuals with spina bifida: A journey to self-efficacy and autonomy

Journal of pediatric rehabilitation medicine, 2017-12, Vol.10 (3-4), p.219

2017

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Variation in bowel and bladder continence across US spina bifida programs: A descriptive study

Journal of pediatric rehabilitation medicine, 2017-12, Vol.10 (3-4), p.231

2017

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Evaluation of spina bifida transitional care practices in the United States

Journal of pediatric rehabilitation medicine, 2017-12, Vol.10 (3-4), p.275

2017

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Variation in surgical management of neurogenic bowel among centers participating in National Spina Bifida Patient Registry

Journal of pediatric rehabilitation medicine, 2017-12, Vol.10 (3-4), p.303

2017

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The relationship of neuropsychological functioning to adaptation outcome in adolescents with spina bifida

Journal of the International Neuropsychological Society, 2008-09, Vol.14 (5), p.793-804

2008

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Adolescents with myelomeningocele: activities, beliefs, expectations, and perceptions

Developmental medicine and child neurology, 2004-04, Vol.46 (4), p.244-252

2004

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Children’s Health Care Providers and Health Care Quality Measurement

Academic pediatrics, 2011-05, Vol.11 (3), p.S87-S88

2011

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Executive Summary: Identification, Evaluation, and Management of Children With Autism Spectrum Disorder

Pediatrics (Evanston), 2020-01, Vol.145 (1), p.1

2020

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The National Spina Bifida Patient Registry: Past, present, and future

Journal of pediatric rehabilitation medicine, 2017-12, Vol.10 (3-4), p.205

Thibadeau, Judy

2017

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Expectant use of CIC in newborns with spinal dysraphism: Report of clinical outcomes

Journal of pediatric rehabilitation medicine, 2017-12, Vol.10 (3-4), p.319

2017

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Identification, Evaluation, and Management of Children With Autism Spectrum Disorder

Pediatrics (Evanston), 2020-01, Vol.145 (1), p.1

2020

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Promoting Optimal Development: Identifying Infants and Young Children With Developmental Disorders Through Developmental Surveillance and Screening

Scientific methodology of the development of the Guidelines for the Care of People with Spina Bifida: An initiative of the Spina Bifida Association

Guidelines and scientifically-based spina bifida care: Guidance across the lifespan in a global health context

Adolescent/Young Adult Self‐Management and Independence Self‐Report Scale: Preliminary psychometric findings

Prevention and awareness of birth defects across the lifespan using examples from congenital heart defects and spina bifida

Quality of life: Guidelines for the care of people with spina bifida

Quality of Life in Adolescents and Young Adults with and Without Spina Bifida: An Exploratory Analysis

Self-management and spina bifida: A systematic review of the literature

Nonoral feeding for children and youth with developmental or acquired disabilities

Introduction: Spina bifida-A multidisciplinary perspective

Bowel management and continence in adults with spina bifida: Results from the National Spina Bifida Patient Registry 2009-15

Health risk behaviors in spina bifida: the need for clinical and policy action

The future of the multidisciplinary clinic

Genetic epidemiology of neural tube defects

Urologic self-management through intermittent self-catheterization among individuals with spina bifida: A journey to self-efficacy and autonomy

Variation in bowel and bladder continence across US spina bifida programs: A descriptive study

Evaluation of spina bifida transitional care practices in the United States

Variation in surgical management of neurogenic bowel among centers participating in National Spina Bifida Patient Registry

The relationship of neuropsychological functioning to adaptation outcome in adolescents with spina bifida

Adolescents with myelomeningocele: activities, beliefs, expectations, and perceptions

Children’s Health Care Providers and Health Care Quality Measurement

Executive Summary: Identification, Evaluation, and Management of Children With Autism Spectrum Disorder

The National Spina Bifida Patient Registry: Past, present, and future

Expectant use of CIC in newborns with spinal dysraphism: Report of clinical outcomes

Identification, Evaluation, and Management of Children With Autism Spectrum Disorder

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