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Home or hospital as the place of end-of-life care and death: A grounded theory study of parents’ decision-making

Palliative medicine, 2021-01, Vol.35 (1), p.219-230

2021

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‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition

Palliative medicine, 2024-03, Vol.38 (3), p.379-388

2024

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Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders: A qualitative study

Palliative medicine, 2020-03, Vol.34 (3), p.300-308

2020

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Regret and unfinished business in parents bereaved by cancer: A mixed methods study

Palliative medicine, 2020-03, Vol.34 (3), p.367-377

2020

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Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children’s research involvement group and expert item generation

Palliative medicine, 2023-12, Vol.37 (10), p.1509-1519

2023

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What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders

Palliative medicine, 2024-04, Vol.38 (4), p.471-484

2024

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Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study

Palliative medicine, 2023-06, Vol.37 (6), p.856-865

2023

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Describing the psychosocial profile and unmet support needs of parents caring for a child with a life-limiting condition: A cross-sectional study of caregiver-reported outcomes

Palliative medicine, 2020-03, Vol.34 (3), p.358-366

2020

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Building trust and improving communication with parents of children with Trisomy 13 and 18: A mixed-methods study

Palliative medicine, 2020-03, Vol.34 (3), p.262-271

2020

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Core outcome domains of pediatric palliative care for children with severe neurological impairment and their families: A qualitative interview study

Palliative medicine, 2020-03, Vol.34 (3), p.309-318

2020

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Achieving beneficial outcomes for children with life-limiting and life-threatening conditions receiving palliative care and their families: A realist review

Palliative medicine, 2020-03, Vol.34 (3), p.387-402

2020

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Examining key sociodemographic characteristics of adolescents and young adults with cancer: A post hoc analysis of the Promoting Resilience in Stress Management randomized clinical trial

Palliative medicine, 2020-03, Vol.34 (3), p.336-348

2020

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Finding a way with words: Delphi study to develop a discussion prompt list for paediatric palliative care

Palliative medicine, 2020-03, Vol.34 (3), p.291-299

2020

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Hospice nurses request paediatric-specific educational resources and training programs to improve care for children and families in the community: Qualitative data analysis from a population-level survey

Palliative medicine, 2020-03, Vol.34 (3), p.403-412

2020

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Psychological support in end-of-life decision-making in neonatal intensive care units: Full population survey among neonatologists and neonatal nurses

Palliative medicine, 2020-03, Vol.34 (3), p.430-434

2020

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Medical and end-of-life decision making in adolescents’ pre-heart transplant: A descriptive pilot study

Palliative medicine, 2020-03, Vol.34 (3), p.272-280

2020

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“Can you tell me why you made that choice?”: A qualitative study of the influences on treatment decisions in advance care planning among adolescents and young adults undergoing bone marrow transplant

Palliative medicine, 2020-03, Vol.34 (3), p.281-290

2020

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Use of buccal morphine in the management of pain in children with life-limiting conditions: Results of a laboratory study

Palliative medicine, 2018-02, Vol.32 (2), p.554-558

2018

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Use of oral cannabis extracts in the pediatric palliative care setting: A retrospective chart review

Palliative medicine, 2020-03, Vol.34 (3), p.435-437

2020

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Visualizing social support in home pediatric palliative care using network maps

Palliative medicine, 2020-03, Vol.34 (3), p.378-386

2020

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Addressing multidrug resistant pathogens in pediatric palliative care patients—the nurses point of view: A qualitative study

Palliative medicine, 2020-03, Vol.34 (3), p.349-357

2020

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Insights into the perception that research ethics committees are a barrier to research with seriously ill children: A study of committee minutes and correspondence with researchers studying seriously ill children

Palliative medicine, 2020-03, Vol.34 (3), p.413-423

2020

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Hospital to home transport at end of life: Survey of clinician experience

Palliative medicine, 2020-03, Vol.34 (3), p.424-429

2020

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Paediatric palliative care research has come of age

Palliative medicine, 2020-03, Vol.34 (3), p.259-261

2020

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Home or hospital as the place of end-of-life care and death: A grounded theory study of parents’ decision-making

‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition

Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders: A qualitative study

Regret and unfinished business in parents bereaved by cancer: A mixed methods study

Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children’s research involvement group and expert item generation

What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders

Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study

Describing the psychosocial profile and unmet support needs of parents caring for a child with a life-limiting condition: A cross-sectional study of caregiver-reported outcomes

Building trust and improving communication with parents of children with Trisomy 13 and 18: A mixed-methods study

Core outcome domains of pediatric palliative care for children with severe neurological impairment and their families: A qualitative interview study

Towards person-centred quality care for children with life-limiting and life-threatening illness: Self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study

Achieving beneficial outcomes for children with life-limiting and life-threatening conditions receiving palliative care and their families: A realist review

Examining key sociodemographic characteristics of adolescents and young adults with cancer: A post hoc analysis of the Promoting Resilience in Stress Management randomized clinical trial

Finding a way with words: Delphi study to develop a discussion prompt list for paediatric palliative care

Hospice nurses request paediatric-specific educational resources and training programs to improve care for children and families in the community: Qualitative data analysis from a population-level survey

Psychological support in end-of-life decision-making in neonatal intensive care units: Full population survey among neonatologists and neonatal nurses

Medical and end-of-life decision making in adolescents’ pre-heart transplant: A descriptive pilot study

“Can you tell me why you made that choice?”: A qualitative study of the influences on treatment decisions in advance care planning among adolescents and young adults undergoing bone marrow transplant

Use of buccal morphine in the management of pain in children with life-limiting conditions: Results of a laboratory study

Use of oral cannabis extracts in the pediatric palliative care setting: A retrospective chart review

Visualizing social support in home pediatric palliative care using network maps

Addressing multidrug resistant pathogens in pediatric palliative care patients—the nurses point of view: A qualitative study

Insights into the perception that research ethics committees are a barrier to research with seriously ill children: A study of committee minutes and correspondence with researchers studying seriously ill children

Hospital to home transport at end of life: Survey of clinician experience

Paediatric palliative care research has come of age

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