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Ten simple rules for responsible big data research

PLoS computational biology, 2017-03, Vol.13 (3), p.e1005399-e1005399

2017

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The role of exome sequencing in newborn screening for inborn errors of metabolism

Nature medicine, 2020-09, Vol.26 (9), p.1392-1397

2020

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Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies

The Hastings Center report, 2018-07, Vol.48 (S2), p.S2-S6

2018

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Ethics and Genomic Incidental Findings

Science (American Association for the Advancement of Science), 2013-05, Vol.340 (6136), p.1047-1048

2013

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"If relatives inherited the gene, they should inherit the data." Bringing the family into the room where bioethics happens

New genetics and society, 2022, Vol.41 (1), p.23-46

2022

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The Mayo Clinic Biobank: A Building Block for Individualized Medicine

Mayo Clinic proceedings, 2013-09, Vol.88 (9), p.952-962

2013

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Community recommendations on biobank governance: Results from a deliberative community engagement in California

PloS one, 2017-02, Vol.12 (2), p.e0172582-e0172582

2017

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Ethical issues in stopping randomized trials early because of apparent benefit

Annals of internal medicine, 2007-06, Vol.146 (12), p.878

2007

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Fixing Research Subjects Protection in the United States: Moving Beyond Consent

Mayo Clinic proceedings, 2013-05, Vol.88 (5), p.428-430

Koenig, Barbara A., PhD

2013

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Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations

The Journal of law, medicine & ethics, 2008-06, Vol.36 (2), p.219-248

2008

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Post-trial access in implanted neural device research: Device maintenance, abandonment, and cost

Brain stimulation, 2022-09, Vol.15 (5), p.1029-1036

2022

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Researcher Perspectives on Ethical Considerations in Adaptive Deep Brain Stimulation Trials

Frontiers in human neuroscience, 2020-11, Vol.14, p.578695-578695

2020

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Participant perceptions of changes in psychosocial domains following participation in an adaptive deep brain stimulation trial

Brain stimulation, 2023-07, Vol.16 (4), p.990-998

2023

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Ironic technology: Old age and the implantable cardioverter defibrillator in US health care

Social science & medicine (1982), 2011-01, Vol.72 (1), p.6-14

2011

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Researcher Perspectives on Data Sharing in Deep Brain Stimulation

Frontiers in human neuroscience, 2020-12, Vol.14, p.578687-578687

2020

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Impact of Direct-to-Consumer Predictive Genomic Testing on Risk Perception and Worry Among Patients Receiving Routine Care in a Preventive Health Clinic

Mayo Clinic proceedings, 2011-10, Vol.86 (10), p.933-940

2011

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Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons

The Journal of law, medicine & ethics, 2019-03, Vol.47 (1), p.70-87

2019

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Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience

Genome research, 2011-07, Vol.21 (7), p.1001

2011

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Have We Asked Too Much of Consent?

The Hastings Center report, 2014-07, Vol.44 (4), p.33-34

Koenig, Barbara A.

2014

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Patient, Caregiver, and Decliner Perspectives on Whether to Enroll in Adaptive Deep Brain Stimulation Research

Frontiers in neuroscience, 2021-10, Vol.15, p.734182-734182

2021

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Genetic ancestry and diagnostic yield of exome sequencing in a diverse population

Npj genomic medicine, 2024-01, Vol.9 (1), p.1-1, Article 1

2024

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Challenges in translational research: the views of addiction scientists

PloS one, 2014-04, Vol.9 (4), p.e93482-e93482

2014

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A draft human pangenome reference

Nature (London), 2023-05, Vol.617 (7960), p.312-324

2023

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Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank

The Journal of law, medicine & ethics, 2015-09, Vol.43 (3), p.464-475

2015

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Ten simple rules for responsible big data research

The role of exome sequencing in newborn screening for inborn errors of metabolism

Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies

Ethics and Genomic Incidental Findings

"If relatives inherited the gene, they should inherit the data." Bringing the family into the room where bioethics happens

The Mayo Clinic Biobank: A Building Block for Individualized Medicine

Community recommendations on biobank governance: Results from a deliberative community engagement in California

Ethical issues in stopping randomized trials early because of apparent benefit

Fixing Research Subjects Protection in the United States: Moving Beyond Consent

Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations

Post-trial access in implanted neural device research: Device maintenance, abandonment, and cost

Researcher Perspectives on Ethical Considerations in Adaptive Deep Brain Stimulation Trials

Participant perceptions of changes in psychosocial domains following participation in an adaptive deep brain stimulation trial

Ironic technology: Old age and the implantable cardioverter defibrillator in US health care

Researcher Perspectives on Data Sharing in Deep Brain Stimulation

Impact of Direct-to-Consumer Predictive Genomic Testing on Risk Perception and Worry Among Patients Receiving Routine Care in a Preventive Health Clinic

Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons

Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience

Have We Asked Too Much of Consent?

Patient, Caregiver, and Decliner Perspectives on Whether to Enroll in Adaptive Deep Brain Stimulation Research

Genetic ancestry and diagnostic yield of exome sequencing in a diverse population

Challenges in translational research: the views of addiction scientists

A draft human pangenome reference

Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank

The Human Pangenome Project: a global resource to map genomic diversity

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