Details

Autor(en) / Beteiligte

• Milunsky, Aubrey[Herausgeber]

Titel

Coping with Crisis and Handicap

Ort / Verlag

Boston, MA : Springer US

Erscheinungsjahr

1981

Link zum Volltext

• Volltext

Beschreibungen/Notizen

• 1 ℗ʺ The Child Dying in the Hospital -- Discussion -- 2 ℗ʺ Care of the Dying Child at Home -- Discussion -- 3 ℗ʺ The Bereaved Parent -- Discussion -- 4 ℗ʺ Where Was God? The Legitimacy of Religious Anger -- Discussion -- 5 ℗ʺ The Clergyman�́�s Role in Grief Counseling -- 6 ℗ʺ Care in Chronic Fatal Genetic Disease -- Discussion (papers of Grollman and Milunsky) -- 7 ℗ʺ Explaining Death to Children -- 8 ℗ʺ Coping with Suicide in the Family -- Discussion -- 9 ℗ʺ Treating the Person Confronting Death -- 10 ℗ʺ Ethics and the Care of the Child with Terminal Illness -- Discussion -- 11 ℗ʺ Kids Are People Too, Sometimes: Parents vs. Children -- Discussion -- 12 ℗ʺ Coping with Handicap: Searching for the Boundaries -- Discussion -- 13 ℗ʺ Helping Parents Cope with a Profoundly Mentally Retarded Child -- 14 ℗ʺ The Involvement of Siblings of Children with Handicaps -- Discussion (papers of Challela and Crocker) -- 15 ℗ʺ Reaching Autistic Childre
• For over 20 years I have accepted the challenge and had the privilege of caring for sick children, agonizing with their parents during periods of serious illness, which were sometimes fatal. Because of my particular interest in and concern about birth defects and genetic disease, many of these children had severe disabling handicaps, which were often genetic and included mental retardation. Hence care of these children and their families was often complicated by the presence of serious or profound genetic defects. The initial realization of the nature of the disorder invariably led to emotional . difficulties and inevitably later spawned chronic distress. For some children inexorable deterioration led to untimely deaths, while the parents agonized over their handi℗Ư capped, chronically ill, or defective-but nevertheless loved---