Details

Autor(en) / Beteiligte

• Bellieni, Carlo Valerio,

Titel

A new holistic-evolutive approach to pediatric palliative care

Ort / Verlag

Cham, Switzerland : Springer International Publishing,

Erscheinungsjahr

[2022]

Link zum Volltext

• SpringerLink Books - AutoHoldings

Beschreibungen/Notizen

• Intro -- Preface -- Contents -- Part I: Pediatric Palliative Care: "Fundamentalia" -- 1: The First Obstacle Is in the Handle -- 1.1 Team-Hierarchy Responsibilities -- 1.2 Are Doctors Unhappy? -- 1.3 The Conundrum of Motivation -- References -- 2: Palliative Care Is Not a Synonym of End-of-Life Care -- 2.1 What Is Palliative Care? -- 2.2 Cultural Resistances -- 2.3 Heterogeneity of Pediatric Cases -- 2.4 The Prophecy of Florence Nightingale -- References -- 3: Neonatal and Perinatal Care -- 3.1 Three Paradoxes -- 3.1.1 First Paradox: Little Bodies Do Not Mean Little Grief -- 3.1.2 Second Paradox: Little Bodies Do Not Mean Little Pain -- 3.1.3 Third Paradox: Small Age Does Not Mean Small Rights -- 3.2 Perinatal Palliative Care -- References -- Part II: Communication with Children and Their Families -- 4: Words Can Break My Heart -- 4.1 Crucial Importance of the Interview -- 4.2 The False Myth of Empathy -- 4.3 Certain News Is Indelible -- 4.3.1 Silence -- 4.3.2 The Informed Consent -- References -- 5: Managing Grief and Its Phases -- 5.1 The Phases of Grief -- 5.2 The Pathological Grief -- 5.3 Communicating with the Depressed Child or Parent -- 5.4 The Experience of Loss -- 5.5 The Risk of Suicide -- 5.6 Interventions Aimed at the Family -- 5.7 Interventions Aimed at Caregivers -- References -- 6: Challenges in Communication with Parents and Children -- 6.1 It Is Difficult to Use the Word Death… -- 6.2 … Much More That of a Child -- 6.3 Should We Talk of Their Death and Disease? -- 6.4 Speaking According to the Patient's Character -- 6.5 Obstacles to Communication -- 6.6 What Helps in Communicating Bad News on Their Health to the Children? -- 6.7 Special Children -- References -- 7: The Models of Mental Growth -- 7.1 Changes of Comprehension Throughout Children's Growth -- 7.2 Theory of Mind.
• 7.3 Piaget's Theories -- 7.4 How These Models Can Improve the Dialog with the Child About Illness -- References -- Part III: Advocates of the Child Who Cannot Speak -- 8: The Respect Due and Denied to Those Who Lack Speech -- 8.1 The Human Strength of the Speech -- 8.2 Mentally Impaired Children -- 8.3 Perinatal Patients -- References -- 9: The Communicative Features of Non-verbal Patients -- 9.1 Sensoriality and Pain in the Newborn -- 9.1.1 Sense Development -- 9.1.2 The Sense of Pain -- 9.2 Communication Skills of the Babies -- 9.2.1 The Newborn -- 9.2.2 The Toddler -- 9.3 Communication Strategies for Mentally Disabled Children -- 9.3.1 Pain Assessment in Mentally Disabled Children -- 9.4 Communicating with Children with Disabilities -- 9.5 Hearing and Vision Impairment -- References -- Part IV: What Is a Good Behavior (Aka Ethics) -- Intermezzo -- Protocols and the False Reassurance -- 10: Are You Sure to Know What "Ethics" Really Is? -- 10.1 Ethics, Virtues, and Protocols -- 10.1.1 First Premise: The Nonsensical Adjective "Ethical" -- 10.1.2 Second Premise: Mixing Up Ethics with Rules -- 10.2 A Synoptic Vision -- 10.3 Our Ethical Responsibilities -- 10.4 Children's Ethical Responsibilities -- References -- 11: The Limits of Parental Authority -- 11.1 Parents Applying Ethical Rules -- 11.2 End-of-Life Requests -- References -- 12: To the Depth of Health Care -- 12.1 The Words That Describe Health Care -- 12.2 Health: Satisfaction Socially Supported -- 12.2.1 Health vs. Loneliness in End-of-Life Processes -- 12.3 Supporting Mental Hygiene for a Really Free Choice -- References -- 13: Children and Babies: Decisions on Their Health -- 13.1 Treating Every Newborn at All Costs? -- 13.2 Shifting Too Soon to Palliative Care -- 13.3 Prejudices Against Disabled Children -- References -- 14: The Pain Principle.
• 14.1 Therapeutic Fury -- 14.2 The Best Interest Principle and Its Limitations -- 14.3 The Probabilistic Criterion -- 14.4 The Double Effect -- 14.5 The Least Harm Criterion -- 14.6 The Pain Principle -- References -- Part V: The Multiple Approach to Suffering -- 15: The Environment: The Base of Analgesic Efforts -- 15.1 Pain Is Not Just "Pain" -- 15.2 The Hospital as an Analgesic Tool -- 15.2.1 Pet-Assisted Therapy -- 15.2.2 Clown Therapy -- 15.2.3 Noise-Free Hospital -- 15.2.4 Meals and Child-Friendly Hospitals -- References -- 16: Assessment of Pain, of Sedation, and of Refractory Symptoms -- 16.1 Pain Assessment -- 16.2 Sedation -- 16.3 Refractory Symptoms -- References -- 17: Pharmacological and Non-Pharmacological Analgesia -- 17.1 Non-Pharmacological Analgesia -- 17.1.1 Rhythmic Patterns -- 17.2 Opioids and Other Analgesics -- 17.2.1 The Earliest Steps of Pharmacological Analgesia -- 17.2.2 Opioids and Opiates -- 17.2.3 Main Opioids Used in Pediatrics -- 17.3 Adjuvant Drugs -- 17.3.1 Steroids -- 17.3.2 Anticonvulsants -- 17.3.3 Antidepressants -- 17.3.4 Neuroleptics -- 17.3.5 Bisphosphonates and Calcitonin -- 17.3.6 Placebo -- 17.3.7 Antineoplastic Drugs -- 17.3.8 The Conundrum of Cannabinoids -- 17.3.9 Off-Label Drugs -- 17.4 Sedation -- References -- 18: Psychological Approach -- 18.1 Meaning-Based Approach -- 18.2 Dignity-Based Approach -- 18.3 Promoting Resilience in Stress Management -- 18.4 Mindfulness -- References -- Part VI: Palliative Care and Our Fears -- Intermezzo -- 19: Children's Pain Scares us -- 19.1 Our Fears -- 19.2 The Three Fearful Paradoxes -- 19.2.1 Paradox of the Simultaneous Blooming and Dying -- 19.2.2 Irrational-Reason Paradox -- 19.2.3 Paradox of the Spectator's Shadow -- References -- 20: Contagious Pains -- 20.1 Burnout -- 20.2 Overcoming Burnout -- References.
• 21: The Fear of Death and the Errors It Provokes -- 21.1 How Fear Can Overshadow Our Judgment -- 21.2 Balancing Research and Respect -- References -- 22: Overcoming the Fear of Death -- 22.1 The Image of Death -- 22.2 Rituals -- 22.3 Perinatal Mourning -- 22.4 Assistance to the Sacredness of Life -- References -- Part VII: Types of Pediatric Palliative Care -- 23: Territorial Differentiation and Home Care -- 23.1 The Mission of Pediatric Palliative Care -- 23.2 Types of Approach -- 23.3 Home Care -- 23.4 Community-Based Pediatric Palliative Care -- References -- 24: The Pediatric Hospices -- 24.1 The Pediatric Hospice -- 24.2 Perinatal Hospices -- 24.3 Architectural and Structural Guidelines of Pediatric Hospices -- References -- 25: Palliative Care Integrated in the Hospital Ward and the Abundance Medicine -- 25.1 The Limits of Intensive Set for Palliative Care -- 25.2 Pediatric Intensive Care Units: Improvements -- 25.3 The Neonatal Intensive Care Unit -- 25.4 Parents' Advice -- 25.5 Abundance Medicine -- 25.5.1 Healthcare Waste: Defensive Medicine -- 25.5.2 The SUV Effect -- 25.5.3 Abundance Medicine -- References -- 26: Conclusion.
• Description based on print version record.