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From trust to skepticism: An in-depth analysis across age groups of adults with sickle cell disease on their perspectives regarding hydroxyurea

PloS one, 2018-06, Vol.13 (6), p.e0199375-e0199375

2018

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Proponent or collaborative: Physician perspectives and approaches to disease modifying therapies in sickle cell disease

PloS one, 2017-07, Vol.12 (7), p.e0178413-e0178413

2017

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Primary caregiver decision‐making in hematopoietic cell transplantation and gene therapy for sickle cell disease

Pediatric blood & cancer, 2021-01, Vol.68 (1), p.e28749-n/a

2021

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Parental perspective on the risk of infertility and fertility preservation options for children and adolescents with sickle cell disease considering hematopoietic stem cell transplantation

Pediatric blood & cancer, 2023-07, Vol.70 (7), p.e30276-n/a

2023

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Management of Chronic Pain in Adults Living With Sickle Cell Disease in the Era of the Opioid Epidemic: A Qualitative Study

JAMA network open, 2019-05, Vol.2 (5), p.e194410-e194410

2019

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Multimodal phenotyping and correlates of pain following hematopoietic cell transplant in children with sickle cell disease

Pediatric blood & cancer, 2023-01, Vol.70 (1), p.e30046-n/a

2023

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Patient and family experience with chronic transfusion therapy for sickle cell disease: A qualitative study

BMC pediatrics, 2020-04, Vol.20 (1), p.172-172, Article 172

2020

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Decision-making about gene therapy in transfusion dependent thalassemia

BMC pediatrics, 2022-09, Vol.22 (1), p.536-536, Article 536

2022

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A Decision Support Tool for Allogeneic Hematopoietic Stem Cell Transplantation for Children With Sickle Cell Disease: Acceptability and Usability Study

JMIR formative research, 2021-10, Vol.5 (10), p.e30093-e30093

2021

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A pilot study of the acceptability, feasibility and safety of yoga for chronic pain in sickle cell disease

Complementary therapies in medicine, 2021-06, Vol.59, p.102722-102722, Article 102722

2021

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Assessment of Patient and Caregiver Attitudes and Approaches to Decision-Making Regarding Bone Marrow Transplant for Sickle Cell Disease: A Qualitative Study

JAMA network open, 2020-05, Vol.3 (5), p.e206742-e206742

2020

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Constructing the Transition to Parenthood

Sociological inquiry, 2006-11, Vol.76 (4), p.433-457

2006

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Educational needs of patients and caregivers living with sickle cell disease results in development of web‐based patient decision aid

Journal of advanced nursing, 2021-03, Vol.77 (3), p.1432-1441

2021

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The Influence of the Age of Adults with Sickle Cell Disease on the Uptake, Utilization and Efficacy of Hydroxyurea

Blood, 2017-12, Vol.130, p.3421-3421

2017

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A Qualitative Study of Chronic Pain and Self-Management in Adults with Sickle Cell Disease

Journal of the National Medical Association, 2019-04, Vol.111 (2), p.158-168

2019

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Shared Decision Making or Physician Advocate for a Particular Treatment Option: A Spectrum of Approaches to Decision Making about Disease Modifying Therapies in Sickle Cell Disease

Blood, 2016-12, Vol.128 (22), p.4757-4757

2016

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What Are the Expectations of Patients in Decision Making Process for Disease Modifying Therapies for Sickle Cell Disease: Do They Care about Shared Decision Making?

Blood, 2016-12, Vol.128 (22), p.5968-5968

2016

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Development, Implementation, and Testing of a Web Based Decision Aid for Facilitating Shared Decision Making for Disease Modifying Therapies for Sickle Cell Disease

Blood, 2016-12, Vol.128 (22), p.5919-5919

2016

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Experiences and Decision Making for Bone Marrow Transplant in Sickle Cell Disease: Patients and Caregivers Perspective

Blood, 2016-12, Vol.128 (22), p.2393-2393

2016

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You Too? Female Radiologists’ Narratives on Discrimination and Harassment

Journal of the American College of Radiology, 2022-02, Vol.19 (2), p.288-303

2022

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Determining efficacy and side effects from concurrent use of chemotherapy and radiation therapy for the management of adult solid tumors

Journal of clinical oncology, 2014-05, Vol.32 (15_suppl), p.e17640-e17640

2014

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Comparative Effectiveness of a Web-Based Patient Decision Aid for Therapeutic Options for Sickle Cell Disease: Randomized Controlled Trial

Journal of medical Internet research, 2019-12, Vol.21 (12), p.e14462-e14462

2019

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Experiences and Decision Making in Hematopoietic Stem Cell Transplant in Sickle Cell Disease: Patients' and Caregivers' Perspectives

Biology of blood and marrow transplantation, 2018-05, Vol.24 (5), p.1041-1048

2018

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What Prompts Parents of Children with Sickle Cell Disease to Consider a Curative Option in This Era of Novel Hematopoietic Cell Donor Sources and Gene Modification?

Biology of blood and marrow transplantation, 2020-03, Vol.26 (3), p.S202-S202

2020

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Dynamic parenting: Ethnic identity construction in the second-generation Indian American family

Sinha, Cynthia Brown

2012

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From trust to skepticism: An in-depth analysis across age groups of adults with sickle cell disease on their perspectives regarding hydroxyurea

Proponent or collaborative: Physician perspectives and approaches to disease modifying therapies in sickle cell disease

Primary caregiver decision‐making in hematopoietic cell transplantation and gene therapy for sickle cell disease

Parental perspective on the risk of infertility and fertility preservation options for children and adolescents with sickle cell disease considering hematopoietic stem cell transplantation

Management of Chronic Pain in Adults Living With Sickle Cell Disease in the Era of the Opioid Epidemic: A Qualitative Study

Multimodal phenotyping and correlates of pain following hematopoietic cell transplant in children with sickle cell disease

Patient and family experience with chronic transfusion therapy for sickle cell disease: A qualitative study

Decision-making about gene therapy in transfusion dependent thalassemia

A Decision Support Tool for Allogeneic Hematopoietic Stem Cell Transplantation for Children With Sickle Cell Disease: Acceptability and Usability Study

A pilot study of the acceptability, feasibility and safety of yoga for chronic pain in sickle cell disease

Assessment of Patient and Caregiver Attitudes and Approaches to Decision-Making Regarding Bone Marrow Transplant for Sickle Cell Disease: A Qualitative Study

Constructing the Transition to Parenthood

Educational needs of patients and caregivers living with sickle cell disease results in development of web‐based patient decision aid

The Influence of the Age of Adults with Sickle Cell Disease on the Uptake, Utilization and Efficacy of Hydroxyurea

A Qualitative Study of Chronic Pain and Self-Management in Adults with Sickle Cell Disease

Shared Decision Making or Physician Advocate for a Particular Treatment Option: A Spectrum of Approaches to Decision Making about Disease Modifying Therapies in Sickle Cell Disease

What Are the Expectations of Patients in Decision Making Process for Disease Modifying Therapies for Sickle Cell Disease: Do They Care about Shared Decision Making?

Development, Implementation, and Testing of a Web Based Decision Aid for Facilitating Shared Decision Making for Disease Modifying Therapies for Sickle Cell Disease

Experiences and Decision Making for Bone Marrow Transplant in Sickle Cell Disease: Patients and Caregivers Perspective

You Too? Female Radiologists’ Narratives on Discrimination and Harassment

Determining efficacy and side effects from concurrent use of chemotherapy and radiation therapy for the management of adult solid tumors

Comparative Effectiveness of a Web-Based Patient Decision Aid for Therapeutic Options for Sickle Cell Disease: Randomized Controlled Trial

Experiences and Decision Making in Hematopoietic Stem Cell Transplant in Sickle Cell Disease: Patients' and Caregivers' Perspectives

What Prompts Parents of Children with Sickle Cell Disease to Consider a Curative Option in This Era of Novel Hematopoietic Cell Donor Sources and Gene Modification?

Dynamic parenting: Ethnic identity construction in the second-generation Indian American family

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