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Quality of life beyond diagnosis in intellectual disability – Latent profiling

Research in developmental disabilities, 2022-10, Vol.129, p.104322-104322, Article 104322

2022

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Measuring quality of life in people with intellectual and multiple disabilities: Validation of the San Martín scale

Research in developmental disabilities, 2014-01, Vol.35 (1), p.75-86

2014

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Agreement in quality of life assessment between adolescents with intellectual disability and their parents

Research in developmental disabilities, 2013-06, Vol.34 (6), p.1863-1869

2013

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Lifestyle Approaches for People With Intellectual Disabilities: A Systematic Multiple Case Analysis

Journal of the American Medical Directors Association, 2017-11, Vol.18 (11), p.980-987.e3

2017

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Quality of life assessment in intellectual disabilities: The Escala Pessoal de Resultados versus the World Health Quality of Life-BREF

Research in developmental disabilities, 2015-02, Vol.37, p.171-181

2015

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Siblings of Adults With Mild Intellectual Deficits or Mental Illness: Differential Life Course Outcomes

Journal of family psychology, 2008-12, Vol.22 (6), p.905-914

2008

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A new scale for the measurement of quality of life in children with intellectual disability

Research in developmental disabilities, 2016-06, Vol.53-54, p.399-410

2016

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Parents’ views on medical decisions related to life and death for their ageing child with profound intellectual and multiple disabilities: A qualitative study

Research in developmental disabilities, 2022-02, Vol.121, p.104154-104154, Article 104154

2022

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The COVID-19 pandemic and quality of life outcomes of people with intellectual and developmental disabilities

Disability and health journal, 2021-10, Vol.14 (4), p.101117-101117, Article 101117

Friedman, Carli

2021

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Adverse events and the relation with quality of life in adults with intellectual disability and challenging behaviour using psychotropic drugs

Research in developmental disabilities, 2016-02, Vol.49-50, p.13-21

2016

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Health-related quality of life in people with intellectual disability who use long-term antipsychotic drugs for challenging behaviour

Research in developmental disabilities, 2018-04, Vol.75, p.49-58

2018

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Do inclusive work environments matter? Effects of community-integrated employment on quality of life for individuals with intellectual disabilities

Research in developmental disabilities, 2016-06, Vol.53-54, p.358-366

2016

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Life satisfaction in persons with Intellectual Disabilities

Research in developmental disabilities, 2012-07, Vol.33 (4), p.1103-1109

2012

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Effects of declared levels of physical activity on quality of life of individuals with intellectual disabilities

Research in developmental disabilities, 2015-02, Vol.37, p.223-229

2015

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Proxy and self-reported Quality of Life in adults with intellectual disabilities: Impact of psychiatric symptoms, problem behaviour, psychotropic medication and unmet needs

Research in developmental disabilities, 2015-10, Vol.45-46, p.136-146

2015

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Changes in life experiences of adults with intellectual disabilities in the COVID-19 pandemics in South Korea

Disability and health journal, 2021-10, Vol.14 (4), p.101120-101120, Article 101120

2021

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The assessment of the quality of life of adults with intellectual disability: The use of self-report and report of others assessment strategies

Research in developmental disabilities, 2013-11, Vol.34 (11), p.4248-4254

2013

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Long-Term Outcome From Childhood Traumatic Brain Injury: Intellectual Ability, Personality, and Quality of Life

Neuropsychology, 2011-03, Vol.25 (2), p.176-184

2011

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Comparative Longitudinal Structural Analyses of the Growth and Decline of Multiple Intellectual Abilities Over the Life Span

Developmental psychology, 2002-01, Vol.38 (1), p.115-142

2002

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Self and proxy rating of quality of life in adults with intellectual disabilities: Results from the DISQOL study

Research in developmental disabilities, 2010-09, Vol.31 (5), p.1015-1026

2010

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Neuroanatomical correlates of intellectual ability across the life span

Developmental cognitive neuroscience, 2011-07, Vol.1 (3), p.305-312

2011

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Impact of intellectual and developmental disability on quality-of-life priorities in adults with epilepsy

Epilepsy & behavior, 2021-10, Vol.123, p.108282-108282, Article 108282

2021

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Comparative Effectiveness of Usual Source of Care Approaches to Improve End-of-Life Outcomes for Children With Intellectual Disability

Journal of pain and symptom management, 2017-09, Vol.54 (3), p.298-304

2017

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How parents and physicians experience end-of-life decision-making for children with profound intellectual and multiple disabilities

Research in developmental disabilities, 2016-12, Vol.59, p.283-293

2016

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Decision making about medical interventions in the end-of-life care of people with intellectual disabilities: A national survey of the considerations and beliefs of GPs, ID physicians and care staff

Patient education and counseling, 2014-08, Vol.96 (2), p.204-209

2014

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Quality of life beyond diagnosis in intellectual disability – Latent profiling

Measuring quality of life in people with intellectual and multiple disabilities: Validation of the San Martín scale

Agreement in quality of life assessment between adolescents with intellectual disability and their parents

Lifestyle Approaches for People With Intellectual Disabilities: A Systematic Multiple Case Analysis

Quality of life assessment in intellectual disabilities: The Escala Pessoal de Resultados versus the World Health Quality of Life-BREF

Siblings of Adults With Mild Intellectual Deficits or Mental Illness: Differential Life Course Outcomes

A new scale for the measurement of quality of life in children with intellectual disability

Parents’ views on medical decisions related to life and death for their ageing child with profound intellectual and multiple disabilities: A qualitative study

The COVID-19 pandemic and quality of life outcomes of people with intellectual and developmental disabilities

Adverse events and the relation with quality of life in adults with intellectual disability and challenging behaviour using psychotropic drugs

Health-related quality of life in people with intellectual disability who use long-term antipsychotic drugs for challenging behaviour

Do inclusive work environments matter? Effects of community-integrated employment on quality of life for individuals with intellectual disabilities

Life satisfaction in persons with Intellectual Disabilities

Effects of declared levels of physical activity on quality of life of individuals with intellectual disabilities

Proxy and self-reported Quality of Life in adults with intellectual disabilities: Impact of psychiatric symptoms, problem behaviour, psychotropic medication and unmet needs

Changes in life experiences of adults with intellectual disabilities in the COVID-19 pandemics in South Korea

The assessment of the quality of life of adults with intellectual disability: The use of self-report and report of others assessment strategies

Long-Term Outcome From Childhood Traumatic Brain Injury: Intellectual Ability, Personality, and Quality of Life

Comparative Longitudinal Structural Analyses of the Growth and Decline of Multiple Intellectual Abilities Over the Life Span

Self and proxy rating of quality of life in adults with intellectual disabilities: Results from the DISQOL study

Neuroanatomical correlates of intellectual ability across the life span

Impact of intellectual and developmental disability on quality-of-life priorities in adults with epilepsy

Comparative Effectiveness of Usual Source of Care Approaches to Improve End-of-Life Outcomes for Children With Intellectual Disability

How parents and physicians experience end-of-life decision-making for children with profound intellectual and multiple disabilities

Decision making about medical interventions in the end-of-life care of people with intellectual disabilities: A national survey of the considerations and beliefs of GPs, ID physicians and care staff

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