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Returning individual research results in international direct-to-participant genomic research: results from a 31-country study

European journal of human genetics : EJHG, 2022-10, Vol.30 (10), p.1132-1137

2022

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Does an App a Day Keep the Doctor Away?: AI Symptom Checker Applications, Entrenched Bias, and Professional Responsibility (Preprint)

Journal of medical Internet research, 2024-06, Vol.26 (1), p.e50344

2024

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Return of genetic testing results in the era of whole-genome sequencing

Nature reviews. Genetics, 2015-09, Vol.16 (9), p.553-559

2015

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Direct-to-Consumer Genetic Tests and Canadian Genetic Counselors: A Pilot Exploration of Professional Roles in Response to Novel Biotechnologies

Genes, 2024-01, Vol.15 (2), p.156

2024

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Transparency, Evaluation and Going From "Ethics-Washing" to Enforceable Regulation: On Machine Learning-Driven Clinician Decision Aids

American journal of bioethics, 2024-09, Vol.24 (9), p.117-120

2024

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Letter: Relearning the 3 R's? Reinterpretation, recontact, and return of genetic variants

Genetics in medicine, 2019-10, Vol.21 (10), p.2401-2402

2019

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From code to care: Clinician and researcher perspectives on an optimal therapeutic web portal for acute myeloid leukemia

PloS one, 2024-04, Vol.19 (4), p.e0302156-e0302156

2024

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Regulating cancer risk prediction: legal considerations and stakeholder perspectives on the Canadian context

Human genetics, 2023-07, Vol.142 (7), p.981-994

2023

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Reciprocity in Population Biobanks: Relational Autonomy and the Duty to Inform in the Genomic Era

Zawati, Ma'n H

1, 2021

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Core elements of participant consent documents for Canadian human genomics research and the National Human Genome Library: guidance for policy

Canadian Medical Association journal (CMAJ), 2022-11, Vol.194 (44), p.E1500-E1508

2022

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The clinical application of genome-wide sequencing for monogenic diseases in Canada: Position Statement of the Canadian College of Medical Geneticists

Journal of medical genetics, 2015-07, Vol.52 (7), p.431-437

2015

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Legal approaches to risk of harm in genetic counseling: perspectives from Quebec and Qatar

Frontiers in genetics, 2023-07, Vol.14, p.1190421-1190421

2023

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Genetic counselors and legal recognition: A made‐for‐Canada approach

Journal of genetic counseling, 2022-02, Vol.31 (1), p.49-58

2022

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Streamlining ethics review for international health research

Science (American Association for the Advancement of Science), 2022-02, Vol.375 (6583), p.825-826

2022

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Mapping the Apps: Ethical and Legal Issues with Crowdsourced Smartphone Data using mHealth Applications

Asian bioethics review, 2024-07, Vol.16 (3), p.437-470

2024

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Population studies: return of research results and incidental findings Policy Statement

European journal of human genetics : EJHG, 2013-03, Vol.21 (3), p.245-247

2013

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Legal and Ethical Considerations for the Design and Use of Web Portals for Researchers, Clinicians, and Patients: Scoping Literature Review

Journal of medical Internet research, 2021-11, Vol.23 (11), p.e26450-e26450

2021

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International mHealth Research: Old Tools and New Challenges

The Journal of law, medicine & ethics, 2020-03, Vol.48 (1_suppl), p.178-186

2020

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Online Therapeutic Portals for Sharing Health Research: Comparative Guidance amid Regulatory Uncertainty

Canadian journal of bioethics = revue canadienne de bioéthique, 2023-06, Vol.6 (2), p.66-75

2023

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Crowdsourcing smartphone data for biomedical research: Ethical and legal questions

DIGITAL HEALTH, 2023-01, Vol.9, p.20552076231204428-20552076231204428

2023

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International normative perspectives on the return of individual research results and incidental findings in genomic biobanks

Genetics in medicine, 2012-04, Vol.14 (4), p.484-489

2012

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International scope of biomedical research ethics review

Science (American Association for the Advancement of Science), 2024-07, Vol.385 (6705), p.145-147

2024

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Reciprocity and the Quest for Meaningful Disclosure

American journal of bioethics, 2019-05, Vol.19 (5), p.36-38

2019

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Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings

Genome research, 2014-05, Vol.24 (5), p.719-723

2014

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The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination

Trends in genetics, 2021-11, Vol.37 (11), p.951-954

2021

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Returning individual research results in international direct-to-participant genomic research: results from a 31-country study

Does an App a Day Keep the Doctor Away?: AI Symptom Checker Applications, Entrenched Bias, and Professional Responsibility (Preprint)

Return of genetic testing results in the era of whole-genome sequencing

Direct-to-Consumer Genetic Tests and Canadian Genetic Counselors: A Pilot Exploration of Professional Roles in Response to Novel Biotechnologies

Transparency, Evaluation and Going From "Ethics-Washing" to Enforceable Regulation: On Machine Learning-Driven Clinician Decision Aids

Letter: Relearning the 3 R's? Reinterpretation, recontact, and return of genetic variants

From code to care: Clinician and researcher perspectives on an optimal therapeutic web portal for acute myeloid leukemia

Regulating cancer risk prediction: legal considerations and stakeholder perspectives on the Canadian context

Reciprocity in Population Biobanks: Relational Autonomy and the Duty to Inform in the Genomic Era

Core elements of participant consent documents for Canadian human genomics research and the National Human Genome Library: guidance for policy

The clinical application of genome-wide sequencing for monogenic diseases in Canada: Position Statement of the Canadian College of Medical Geneticists

Legal approaches to risk of harm in genetic counseling: perspectives from Quebec and Qatar

Genetic counselors and legal recognition: A made‐for‐Canada approach

Streamlining ethics review for international health research

Mapping the Apps: Ethical and Legal Issues with Crowdsourced Smartphone Data using mHealth Applications

Population studies: return of research results and incidental findings Policy Statement

Legal and Ethical Considerations for the Design and Use of Web Portals for Researchers, Clinicians, and Patients: Scoping Literature Review

International mHealth Research: Old Tools and New Challenges

Online Therapeutic Portals for Sharing Health Research: Comparative Guidance amid Regulatory Uncertainty

Crowdsourcing smartphone data for biomedical research: Ethical and legal questions

International normative perspectives on the return of individual research results and incidental findings in genomic biobanks

International scope of biomedical research ethics review

Reciprocity and the Quest for Meaningful Disclosure

Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings

The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination

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