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Measuring quality of life in muscular dystrophy

Neurology, 2015-03, Vol.84 (10), p.1034-1042

2015

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A Motivational Interviewing Chatbot With Generative Reflections for Increasing Readiness to Quit Smoking: Iterative Development Study

JMIR mental health, 2023-10, Vol.10, p.e49132-e49132

2023

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Can outcomes in Duchenne muscular dystrophy be improved by public reporting of data?

Neurology, 2013-02, Vol.80 (6), p.583-589

2013

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Incentivizing Clinical Registry Participation - Findings from the Muscular Dystrophy Association U.S. Neuromuscular Disease Registry (P4.117)

Neurology, 2015-04, Vol.84 (14_supplement)

2015

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213 Role of Non-Invasive Liver Function Test Indices in the Detection of Liver Fibrosis in Patients on Long Term Home Parenteral Nutrition

Gastroenterology (New York, N.Y. 1943), 2010, Vol.138 (5), p.S-40-S-40

2010

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Health Care Transition Experiences of Males with Childhood-onset Duchenne and Becker Muscular Dystrophy: Findings from the Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet) Health Care Transitions and Other Life Experiences Survey

PLoS currents, 2018-08, Vol.10

2018

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Increased Knowledge, Self-Reported Comfort, and Malnutrition Diagnosis and Reimbursement as a Result of the Nutrition-Focused Physical Exam Hands-On Training Workshop

Journal of the Academy of Nutrition and Dietetics, 2017-11, Vol.117 (11), p.1822-1828

2017

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Defining optimal growth in cerebral palsy: comparing apples to apples?

Developmental medicine and child neurology, 2016-09, Vol.58 (9), p.892-893

2016

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The myotonic dystrophy experience: a North American cross‐sectional study

Muscle & nerve, 2019-04, Vol.59 (4), p.457-464

2019

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Characteristics of Hospitalized Children With a Diagnosis of Malnutrition: United States, 2010

JPEN. Journal of parenteral and enteral nutrition, 2016-07, Vol.40 (5), p.623-635

2016

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Teaching the Nutrition Focused Physical Exam (NFPE) To Medical Students Using an Interdisciplinary Approach

Medical science educator, 2022-02, Vol.32 (1), p.9-11

2022

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Quality improvement in neurology: muscular dystrophy quality measures

Neurology, 2015-09, Vol.85 (10), p.905-909

2015

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Characteristics of Hospitalized Children With a Diagnosis of Malnutrition

JPEN. Journal of parenteral and enteral nutrition, 2016-07, Vol.40 (5), p.623-635

2016

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Role Attainment in Emerging Adulthood: Subjective Evaluation by Male Adolescents and Adults with Duchenne and Becker Muscular Dystrophy

Journal of neuromuscular diseases, 2022-01, Vol.9 (3), p.447-456

2022

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Response to Salemi et al

JPEN. Journal of parenteral and enteral nutrition, 2016-09, Vol.40 (7), p.911-912

2016

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USE OF A NUTRITIONAL STRATEGY TO IMPROVE RESPIRATORY COURSE IN A PATIENT WITH SEVERE INFANTILE SPINAL MUSCULAR ATROPHY

Chest, 2009-10, Vol.136 (4), p.36S-36S

2009

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Muscular Dystrophy Association U.S. Neuromuscular Disease Registry - Preliminary Findings (P7.008)

Neurology, 2014-04, Vol.82 (10_supplement)

2014

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The intersection of personal assistance services and transition outcomes in neuromuscular disease

Wolff, Jodi M

2015

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Conference Scene: ALS in California: a report from the First Annual California ALS Research Summit

Neurodegenerative disease management, 2011-08, Vol.1 (4), p.281

2011

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Als in California: A Report From the First Annual California Als Research Summit

Neurodegenerative disease management, 2011-08, Vol.1 (4), p.281-284

2011

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Prenatal Organophosphate Metabolite and Organochlorine Levels and Performance on the Brazelton Neonatal Behavioral Assessment Scale in a Multiethnic Pregnancy Cohort

American journal of epidemiology, 2007-06, Vol.165 (12), p.1397-1404

2007

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Standardisation of practice for Canadian pathologists’ assistants

Journal of clinical pathology, 2017-12, Vol.70 (12), p.998-1000

2017

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Prenatal pesticide and PCB exposures and birth outcomes

Pediatric research, 2007-02, Vol.61 (2), p.243-250

2007

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Measuring quality of life in muscular dystrophy

A Motivational Interviewing Chatbot With Generative Reflections for Increasing Readiness to Quit Smoking: Iterative Development Study

Can outcomes in Duchenne muscular dystrophy be improved by public reporting of data?

Incentivizing Clinical Registry Participation - Findings from the Muscular Dystrophy Association U.S. Neuromuscular Disease Registry (P4.117)

213 Role of Non-Invasive Liver Function Test Indices in the Detection of Liver Fibrosis in Patients on Long Term Home Parenteral Nutrition

Health Care Transition Experiences of Males with Childhood-onset Duchenne and Becker Muscular Dystrophy: Findings from the Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet) Health Care Transitions and Other Life Experiences Survey

Increased Knowledge, Self-Reported Comfort, and Malnutrition Diagnosis and Reimbursement as a Result of the Nutrition-Focused Physical Exam Hands-On Training Workshop

Defining optimal growth in cerebral palsy: comparing apples to apples?

The myotonic dystrophy experience: a North American cross‐sectional study

Characteristics of Hospitalized Children With a Diagnosis of Malnutrition: United States, 2010

Teaching the Nutrition Focused Physical Exam (NFPE) To Medical Students Using an Interdisciplinary Approach

Quality improvement in neurology: muscular dystrophy quality measures

Characteristics of Hospitalized Children With a Diagnosis of Malnutrition

Role Attainment in Emerging Adulthood: Subjective Evaluation by Male Adolescents and Adults with Duchenne and Becker Muscular Dystrophy

Response to Salemi et al

USE OF A NUTRITIONAL STRATEGY TO IMPROVE RESPIRATORY COURSE IN A PATIENT WITH SEVERE INFANTILE SPINAL MUSCULAR ATROPHY

Muscular Dystrophy Association U.S. Neuromuscular Disease Registry - Preliminary Findings (P7.008)

The intersection of personal assistance services and transition outcomes in neuromuscular disease

Duchenne Regulatory Science Consortium Meeting on Disease Progression Modeling for Duchenne Muscular Dystrophy

Conference Scene: ALS in California: a report from the First Annual California ALS Research Summit

Als in California: A Report From the First Annual California Als Research Summit

Prenatal Organophosphate Metabolite and Organochlorine Levels and Performance on the Brazelton Neonatal Behavioral Assessment Scale in a Multiethnic Pregnancy Cohort

Standardisation of practice for Canadian pathologists’ assistants

Prenatal pesticide and PCB exposures and birth outcomes

Clinical genetic testing for patients with autism spectrum disorders

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