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Neither carrots nor sticks? Challenges surrounding data sharing from the perspective of research funding agencies-A qualitative expert interview study

PloS one, 2022-09, Vol.17 (9), p.e0273259

2022

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Physicians' attitudes towards secondary use of clinical data for biomedical research purposes in Germany. Results of a quantitative survey

PloS one, 2024-02, Vol.19 (2), p.e0274032-e0274032

2024

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Patients’ Willingness to Provide Their Clinical Data for Research Purposes and Acceptance of Different Consent Models: Findings From a Representative Survey of Patients With Cancer

Journal of medical Internet research, 2022-08, Vol.24 (8), p.e37665-e37665

2022

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The patient-level effect of the cost of Cancer care - financial burden in German Cancer patients

BMC cancer, 2020-06, Vol.20 (1), p.529-529, Article 529

2020

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Do patients and research subjects have a right to receive their genomic raw data? An ethical and legal analysis

BMC medical ethics, 2020-01, Vol.21 (1), p.7-12, Article 7

2020

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Patient-Reported Financial Distress in Cancer: A Systematic Review of Risk Factors in Universal Healthcare Systems

Cancers, 2021-10, Vol.13 (19), p.5015

2021

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The second patient? Family members of cancer patients and their role in end-of-life decision making

BMC palliative care, 2018-02, Vol.17 (1), p.29-29, Article 29

2018

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Applying systems biology to biomedical research and health care: a précising definition of systems medicine

BMC health services research, 2017-11, Vol.17 (1), p.761-761, Article 761

2017

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Caregivers' role in using a personal electronic health record: a qualitative study of cancer patients and caregivers in Germany

BMC medical informatics and decision making, 2020-07, Vol.20 (1), p.158-158, Article 158

2020

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Patient Involvement in Decisions to Limit Treatment: The Crucial Role of Agreement Between Physician and Patient

Journal of clinical oncology, 2009-05, Vol.27 (13), p.2225-2230

2009

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The COVID-19 Pandemic and Cancer Patients in Germany: Impact on Treatment, Follow-Up Care and Psychological Burden

Frontiers in public health, 2022-02, Vol.9, p.788598-788598

2022

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When time is of the essence: ethical reconsideration of XAI in time-sensitive environments

Journal of medical ethics, 2024-09, p.jme-2024-110046

2024

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Cancer Patients’ Preferences for either Quality of Life or a Longer Life Determine Their Willingness to Talk about Forgoing Cancer-Specific Treatment

Oncology research and treatment, 2019-01, Vol.42 (9), p.458-465

2019

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Dynamic consent: a royal road to research consent?

Journal of medical ethics, 2024-07, p.jme-2024-110153

2024

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Comparative ethical evaluation of epigenome editing and genome editing in medicine: first steps and future directions

Journal of medical ethics, 2023-08, Vol.50 (6), p.398-406

2023

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Wilson and Jungner Revisited: Are Screening Criteria Fit for the 21st Century?

International journal of neonatal screening, 2024-09, Vol.10 (3), p.62

2024

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Finanzielle Auswirkung von Krebserkrankungen und sozialethische Implikationen

Der Onkologe, 2020-05, Vol.26 (5), p.425-430

2020

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When do we need to care about the caregiver? Supportive care needs, anxiety, and depression among informal caregivers of patients with cancer and cancer survivors

Cancer, 2015-05, Vol.121 (9), p.1513-1519

2015

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“Often Relatives are the Key […]” –Family Involvement in Treatment Decision Making in Patients with Advanced Cancer Near the End of Life

The oncologist (Dayton, Ohio), 2021-05, Vol.26 (5), p.e831-e837

2021

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Late decisions about treatment limitation in patients with cancer: empirical analysis of end-of-life practices in a haematology and oncology unit at a German university hospital

ESMO open, 2020-10, Vol.5 (5), p.e000950-e000950, Article e000950

2020

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Secondary Use of Clinical Data in Data-Gathering, Non-Interventional Research or Learning Activities: Definition, Types, and a Framework for Risk Assessment

Journal of medical Internet research, 2021-06, Vol.23 (6), p.e26631-e26631

2021

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Ethics of the fiduciary relationship between patient and physician: the case of informed consent

Journal of medical ethics, 2022-12, p.jme-2022-108539

2022

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Is Dupras and Bunnik's Framework for Assessing Privacy Risks in Multi-Omic Research and Databases Still Too Exceptionalist?

American journal of bioethics, 2021-12, Vol.21 (12), p.80-82

2021

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Patient data for commercial companies? An ethical framework for sharing patients’ data with for-profit companies for research

Journal of medical ethics, 2023-05, p.jme-2022-108781

2023

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Do Physicians Have a Duty to Support Secondary Use of Clinical Data in Biomedical Research? An Inquiry into the Professional Ethics of Physicians

The Journal of law, medicine & ethics, 2024-01, Vol.52 (1), p.101-117

2024

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Neither carrots nor sticks? Challenges surrounding data sharing from the perspective of research funding agencies-A qualitative expert interview study

Physicians' attitudes towards secondary use of clinical data for biomedical research purposes in Germany. Results of a quantitative survey

Patients’ Willingness to Provide Their Clinical Data for Research Purposes and Acceptance of Different Consent Models: Findings From a Representative Survey of Patients With Cancer

The patient-level effect of the cost of Cancer care - financial burden in German Cancer patients

Do patients and research subjects have a right to receive their genomic raw data? An ethical and legal analysis

Patient-Reported Financial Distress in Cancer: A Systematic Review of Risk Factors in Universal Healthcare Systems

The second patient? Family members of cancer patients and their role in end-of-life decision making

Applying systems biology to biomedical research and health care: a précising definition of systems medicine

Caregivers' role in using a personal electronic health record: a qualitative study of cancer patients and caregivers in Germany

Patient Involvement in Decisions to Limit Treatment: The Crucial Role of Agreement Between Physician and Patient

The COVID-19 Pandemic and Cancer Patients in Germany: Impact on Treatment, Follow-Up Care and Psychological Burden

When time is of the essence: ethical reconsideration of XAI in time-sensitive environments

Cancer Patients’ Preferences for either Quality of Life or a Longer Life Determine Their Willingness to Talk about Forgoing Cancer-Specific Treatment

Dynamic consent: a royal road to research consent?

Comparative ethical evaluation of epigenome editing and genome editing in medicine: first steps and future directions

Wilson and Jungner Revisited: Are Screening Criteria Fit for the 21st Century?

Finanzielle Auswirkung von Krebserkrankungen und sozialethische Implikationen

When do we need to care about the caregiver? Supportive care needs, anxiety, and depression among informal caregivers of patients with cancer and cancer survivors

“Often Relatives are the Key […]” –Family Involvement in Treatment Decision Making in Patients with Advanced Cancer Near the End of Life

Late decisions about treatment limitation in patients with cancer: empirical analysis of end-of-life practices in a haematology and oncology unit at a German university hospital

Secondary Use of Clinical Data in Data-Gathering, Non-Interventional Research or Learning Activities: Definition, Types, and a Framework for Risk Assessment

Ethics of the fiduciary relationship between patient and physician: the case of informed consent

Is Dupras and Bunnik's Framework for Assessing Privacy Risks in Multi-Omic Research and Databases Still Too Exceptionalist?

Patient data for commercial companies? An ethical framework for sharing patients’ data with for-profit companies for research

Do Physicians Have a Duty to Support Secondary Use of Clinical Data in Biomedical Research? An Inquiry into the Professional Ethics of Physicians

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