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Healthcare provider perspectives on inequities in access to care for patients with inherited bleeding disorders

PloS one, 2020-02, Vol.15 (2), p.e0229099-e0229099

2020

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Von Willebrand disease and other bleeding disorders in women: consensus on diagnosis and management from an international expert panel

American journal of obstetrics and gynecology, 2009-07, Vol.201 (1), p.12.e1-12.e8

2009

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Complications of apheresis in children

Transfusion (Philadelphia, Pa.), 2007-10, Vol.47 (10), p.1837-1842

2007

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A Practical Guide to the Management of the Fetus and Newborn With Hemophilia

Clinical and Applied Thrombosis/Hemostasis, 2018-12, Vol.24 (9_suppl), p.29S-41S

2018

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Hemophilia Carrier Status and Counseling the Symptomatic and Asymptomatic Adolescent

Journal of pediatric & adolescent gynecology, 2010-12, Vol.23 (6), p.S43-S47

2010

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“They don’t really take my bleeds seriously”: Barriers to care for women with inherited bleeding disorders

Journal of thrombosis and haemostasis, 2021-06, Vol.19 (6), p.1506-1514

2021

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A new hemophilia carrier nomenclature to define hemophilia in women and girls: Communication from the SSC of the ISTH

Journal of thrombosis and haemostasis, 2021-08, Vol.19 (8), p.1883-1887

2021

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“Everything was blood when it comes to me”: Understanding the lived experiences of women with inherited bleeding disorders

Journal of thrombosis and haemostasis, 2020-12, Vol.18 (12), p.3211-3221

2020

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Two cases of refractory pediatric antiphospholipid syndrome

Pediatric blood & cancer, 2022-04, Vol.69 (4), p.e29506-n/a

2022

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Real-world data of the use of rivaroxaban in pediatric patients with hematologic malignancies

Leukemia & lymphoma, 2024-04, Vol.65 (4), p.538-540

2024

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Evaluation and management of postpartum hemorrhage: consensus from an international expert panel

Transfusion, 2014-07, Vol.54 (7), p.1756-1768

2014

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COVID‐19‐associated coagulopathy in children: A multicenter observational cohort study

Pediatric blood & cancer, 2023-01, Vol.70 (1), p.e30079-n/a

2023

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Barriers to Care Amongst Patients with Inherited Bleeding Disorders: Results from Two Nation-Wide Canadian Surveys

Blood, 2019-11, Vol.134 (Supplement_1), p.4704-4704

2019

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“Everything Was Blood When It Comes to Me”: Understanding the Lived Experiences of Women with Inherited Bleeding Disorders

Blood, 2019-11, Vol.134 (Supplement_1), p.5788-5788

2019

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Repurposing alpelisib, an anti‐cancer drug, for the treatment of severe TIE2‐mutated venous malformations: Preliminary pharmacokinetics and pharmacodynamic data

Pediatric blood & cancer, 2022-10, Vol.69 (10), p.e29897-n/a

2022

Volltextzugriff (PDF)

Standardizing care to manage bleeding disorders in adolescents with heavy menses—A joint project from the ISTH pediatric/neonatal and women's health SSCs

Journal of thrombosis and haemostasis, 2020-10, Vol.18 (10), p.2759-2774

2020

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Invisible bleeds: Lived experiences and barriers to care for men with hemophilia

Journal of thrombosis and haemostasis, 2022-02, Vol.20 (2), p.296-306

2022

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Evaluation and management of acute menorrhagia in women with and without underlying bleeding disorders: consensus from an international expert panel

European journal of obstetrics & gynecology and reproductive biology, 2011-10, Vol.158 (2), p.124-134

2011

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Changes in bleeding patterns in von Willebrand disease after institution of long-term replacement therapy: results from the von Willebrand Disease Prophylaxis Network

Blood coagulation & fibrinolysis, 2015-06, Vol.26 (4), p.383-388

2015

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Meningeal signs and facial edema in a child with sickle cell disease

Canadian Medical Association journal (CMAJ), 2010-07, Vol.182 (10), p.1069

2010

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Case 2: A routine workup in a toddler with fever

Paediatrics & child health, 2011-08, Vol.16 (7), p.391-393

2011

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Complications of Pediatric Apheresis

Blood, 2004-11, Vol.104 (11), p.3645-3645

2004

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The role of haemophilia treatment centres in providing services to women with bleeding disorders

Haemophilia : the official journal of the World Federation of Hemophilia, 2004-10, Vol.10 (s4), p.196-204

2004

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Von Willebrand disease and exercise—is it worth the sweat? The effect of intense physical exercise on von Willebrand factor and on menstrual blood loss in women with von Willebrand disease

Winikoff, Rochelle

2003

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The newborn

Inherited Bleeding Disorders in Women, 2009, p.163-175

2009

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Healthcare provider perspectives on inequities in access to care for patients with inherited bleeding disorders

Von Willebrand disease and other bleeding disorders in women: consensus on diagnosis and management from an international expert panel

Complications of apheresis in children

A Practical Guide to the Management of the Fetus and Newborn With Hemophilia

Hemophilia Carrier Status and Counseling the Symptomatic and Asymptomatic Adolescent

“They don’t really take my bleeds seriously”: Barriers to care for women with inherited bleeding disorders

A new hemophilia carrier nomenclature to define hemophilia in women and girls: Communication from the SSC of the ISTH

“Everything was blood when it comes to me”: Understanding the lived experiences of women with inherited bleeding disorders

Two cases of refractory pediatric antiphospholipid syndrome

Real-world data of the use of rivaroxaban in pediatric patients with hematologic malignancies

Evaluation and management of postpartum hemorrhage: consensus from an international expert panel

COVID‐19‐associated coagulopathy in children: A multicenter observational cohort study

Barriers to Care Amongst Patients with Inherited Bleeding Disorders: Results from Two Nation-Wide Canadian Surveys

“Everything Was Blood When It Comes to Me”: Understanding the Lived Experiences of Women with Inherited Bleeding Disorders

Repurposing alpelisib, an anti‐cancer drug, for the treatment of severe TIE2‐mutated venous malformations: Preliminary pharmacokinetics and pharmacodynamic data

Standardizing care to manage bleeding disorders in adolescents with heavy menses—A joint project from the ISTH pediatric/neonatal and women's health SSCs

Invisible bleeds: Lived experiences and barriers to care for men with hemophilia

Evaluation and management of acute menorrhagia in women with and without underlying bleeding disorders: consensus from an international expert panel

Changes in bleeding patterns in von Willebrand disease after institution of long-term replacement therapy: results from the von Willebrand Disease Prophylaxis Network

Meningeal signs and facial edema in a child with sickle cell disease

Case 2: A routine workup in a toddler with fever

Complications of Pediatric Apheresis

The role of haemophilia treatment centres in providing services to women with bleeding disorders

Von Willebrand disease and exercise—is it worth the sweat? The effect of intense physical exercise on von Willebrand factor and on menstrual blood loss in women with von Willebrand disease

The newborn

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