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Parent perspectives on the assessment of quality of life of their children with profound intellectual and multiple disabilities in the Netherlands

Research in developmental disabilities, 2023-08, Vol.139, p.104536-104536, Article 104536

2023

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Tacit knowledge in medical consultations for patients with profound intellectual and multiple disabilities: An exploratory qualitative study

Journal of intellectual & developmental disability, 2024-09, p.1-10

2024

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The perspectives of professional caregivers on quality of life of persons with profound intellectual and multiple disabilities: a qualitative study

International journal of developmental disabilities, 2022, Vol.68 (2), p.190-197

2022

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How parents and physicians experience end-of-life decision-making for children with profound intellectual and multiple disabilities

Research in developmental disabilities, 2016-12, Vol.59, p.283-293

2016

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Challenges in the implementation and evaluation of a transmural palliative care pathway for acutely hospitalized older adults; lessons from the PalliSupport program: A qualitative process evaluation study

Archives of gerontology and geriatrics, 2022-11, Vol.103, p.104782-104782, Article 104782

2022

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The perspectives of in-hospital healthcare professionals on the timing and collaboration in advance care planning: A survey studyKeymessage

Heliyon, 2023-04, Vol.9 (4), p.e14772

2023

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Context-Relative Norms Determine the Appropriate Type of Consent in Clinical Biobanks: Towards a Potential Solution for the Discrepancy between the General Data Protection Regulation and the European Data Protection Board on Requirements for Consent

Science and engineering ethics, 2020-12, Vol.26 (6), p.3271-3284

2020

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Considering quality of life in end-of-life decisions for severely disabled children

Research in developmental disabilities, 2018-02, Vol.73, p.67-75

2018

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The perspectives of in-hospital healthcare professionals on the timing and collaboration in advance care planning: A survey study

Heliyon, 2023-04, Vol.9 (4), p.e14772-e14772, Article e14772

2023

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End-of-life decision-making for children with severe developmental disabilities: The parental perspective

Research in developmental disabilities, 2016-02, Vol.49-50, p.235-246

2016

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Individual responsibility, solidarity and differentiation in healthcare

Journal of medical ethics, 2014-11, Vol.40 (11), p.770

2014

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Where is the citizen? Comparing civic spaces in long-term mental healthcare

Health & place, 2013-07, Vol.22, p.11-18

2013

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Under what conditions do patients want to be informed about their risk of a complication? A vignette study

Journal of medical ethics, 2009-05, Vol.35 (5), p.276-282

2009

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Doctor’s views on disclosing or withholding information on low risks of complication

Journal of medical ethics, 2007-02, Vol.33 (2), p.67-70

2007

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Molecular Tumor Boards: current practice and future needs

Annals of oncology, 2017-12, Vol.28 (12), p.3070-3075

2017

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2184TiP Extensive cardiovascular characterization and follow-up of patients receiving immune checkpoint inhibitors: A prospective multicenter study

Annals of oncology, 2023-10, Vol.34, p.S1131-S1131

2023

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Interactions between asteroid fragments during atmospheric entry

Icarus (New York, N.Y. 1962), 2020-02, Vol.337, p.113468, Article 113468

2020

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Effectiveness of the European Society of Cardiology/Heart Failure Association website ‘heartfailurematters.org’ and an e‐health adjusted care pathway in patients with stable heart failure: results of the ‘e‐Vita HF’ randomized controlled trial

European journal of heart failure, 2019-02, Vol.21 (2), p.238-246

2019

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CMR feature tracking left ventricular strain-rate predicts ventricular tachyarrhythmia, but not deterioration of ventricular function in patients with repaired tetralogy of Fallot

International journal of cardiology, 2019-11, Vol.295, p.1-6

2019

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Failing Homeostasis of Quadriceps Muscle Energy- and pH Balance During Bicycling in a Young Patient With a Fontan Circulation

Frontiers in cardiovascular medicine, 2019-08, Vol.6, p.121

2019

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Principles of the analytic element method

Journal of hydrology (Amsterdam), 1999-12, Vol.226 (3), p.128-138

Strack, O.D.L.

1999

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The superblock approach for the analytic element method

Journal of hydrology (Amsterdam), 1999-12, Vol.226 (3), p.179-187

1999

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Regional groundwater modeling of the Yucca Mountain site using analytic elements

Journal of hydrology (Amsterdam), 1999-12, Vol.226 (3), p.167-178

1999

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A multi-quadric area-sink for analytic element modeling of groundwater flow

Journal of hydrology (Amsterdam), 1999-12, Vol.226 (3), p.188-196

1999

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Alternative splicing in the fragile X gene FMR1

Human molecular genetics, 1993-08, Vol.2 (8), p.1348-1348

1993

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Parent perspectives on the assessment of quality of life of their children with profound intellectual and multiple disabilities in the Netherlands

Tacit knowledge in medical consultations for patients with profound intellectual and multiple disabilities: An exploratory qualitative study

The perspectives of professional caregivers on quality of life of persons with profound intellectual and multiple disabilities: a qualitative study

How parents and physicians experience end-of-life decision-making for children with profound intellectual and multiple disabilities

Challenges in the implementation and evaluation of a transmural palliative care pathway for acutely hospitalized older adults; lessons from the PalliSupport program: A qualitative process evaluation study

The perspectives of in-hospital healthcare professionals on the timing and collaboration in advance care planning: A survey studyKeymessage

Context-Relative Norms Determine the Appropriate Type of Consent in Clinical Biobanks: Towards a Potential Solution for the Discrepancy between the General Data Protection Regulation and the European Data Protection Board on Requirements for Consent

Considering quality of life in end-of-life decisions for severely disabled children

The perspectives of in-hospital healthcare professionals on the timing and collaboration in advance care planning: A survey study

End-of-life decision-making for children with severe developmental disabilities: The parental perspective

Individual responsibility, solidarity and differentiation in healthcare

Where is the citizen? Comparing civic spaces in long-term mental healthcare

Under what conditions do patients want to be informed about their risk of a complication? A vignette study

Doctor’s views on disclosing or withholding information on low risks of complication

Molecular Tumor Boards: current practice and future needs

2184TiP Extensive cardiovascular characterization and follow-up of patients receiving immune checkpoint inhibitors: A prospective multicenter study

Interactions between asteroid fragments during atmospheric entry

Effectiveness of the European Society of Cardiology/Heart Failure Association website ‘heartfailurematters.org’ and an e‐health adjusted care pathway in patients with stable heart failure: results of the ‘e‐Vita HF’ randomized controlled trial

CMR feature tracking left ventricular strain-rate predicts ventricular tachyarrhythmia, but not deterioration of ventricular function in patients with repaired tetralogy of Fallot

Failing Homeostasis of Quadriceps Muscle Energy- and pH Balance During Bicycling in a Young Patient With a Fontan Circulation

Principles of the analytic element method

The superblock approach for the analytic element method

Regional groundwater modeling of the Yucca Mountain site using analytic elements

A multi-quadric area-sink for analytic element modeling of groundwater flow

Alternative splicing in the fragile X gene FMR1

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