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The CFHealthHub Learning Health System: Using Real-Time Adherence Data to Support a Community of Practice to Deliver Continuous Improvement in an Archetypal Long-Term Condition

Healthcare (Basel), 2022-12, Vol.11 (1), p.20

2022

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Supporting medication adherence for adults with cystic fibrosis: a randomised feasibility study

BMC pulmonary medicine, 2019-04, Vol.19 (1), p.77-13, Article 77

2019

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Implementing the use of objective medication adherence data in routine clinical practice via the digital CFHealthHub platform: situation analysis and strategy development using the theoretical domains framework

Implementation science communications, 2022-02, Vol.3 (1), p.12-12, Article 12

2022

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Feasibility study for supporting medication adherence for adults with cystic fibrosis: mixed-methods process evaluation

BMJ open, 2020-10, Vol.10 (10), p.e039089-e039089

2020

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An intervention to support adherence to inhaled medication in adults with cystic fibrosis: the ACtiF research programme including RCT

Programme grants for applied research, 2021-10, Vol.9 (11), p.1-146

2021

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Future Discounting Bias and Scenarios Without Lock-Step FEV1/Life Expectancy Coherence May Result in Suboptimal Treatment Recommendations

Chest, 2023-04, Vol.163 (4), p.e193-e194

2023

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Regarding the article entitled “A smartphone application for reporting symptoms in adults with cystic fibrosis improves the detection of exacerbations: Results of a randomised controlled trial”

Journal of cystic fibrosis, 2020-03, Vol.19 (2), p.e9-e9

2020

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A comparison of the CFHH criteria against the Leeds criteria in determining the Pseudomonas aeruginosa status among adults with cystic fibrosis

Respiratory medicine, 2020-09, Vol.171, p.106103-106103, Article 106103

2020

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Role of habit in treatment adherence among adults with cystic fibrosis

Thorax, 2019-02, Vol.74 (2), p.197-199

2019

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Development of data processing algorithm to calculate adherence for adults with cystic fibrosis using inhaled therapy - a multi-center observational study within the CFHealthHub learning health system

Expert review of pharmacoeconomics & outcomes research, 2024-07, Vol.24 (6), p.759-771

2024

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Regarding the articles on home spirometry

Journal of cystic fibrosis, 2022-05, Vol.21 (3), p.e212-e214

2022

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Case Report: Dual nebulised antibiotics among adults with cystic fibrosis and chronic Pseudomonas infection

F1000 research, 2017-01, Vol.6, p.2079

2017

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Exploring the implications of different approaches to estimate centre-level adherence using objective adherence data in an adult cystic fibrosis centre – a retrospective observational study

Journal of cystic fibrosis, 2020-01, Vol.19 (1), p.162-167

2020

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Objective Nebuliser Adherence Data as "Proof" of Adherence in the Management of Cystic Fibrosis: A Qualitative Interview Study

Patient preference and adherence, 2022-01, Vol.16, p.771-780

2022

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Potential effect of centre size on continuity of care and healthcare performance

BMJ (Online), 2017-03, Vol.356, p.j1514

2017

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Regarding the article entitled “Effect of elexacaftor/tezacaftor/ivacaftor on annual rate of lung function decline in people with cystic fibrosis”

Journal of cystic fibrosis, 2023-05, Vol.22 (3), p.587-587

2023

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Moving cystic fibrosis care from rescue to prevention by embedding adherence measurement in routine care

Paediatric respiratory reviews, 2014-06, Vol.15, p.16-18

2014

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Implications of prognostic pessimism in patients with chronic obstructive pulmonary disease (COPD) or asthma admitted to intensive care in the UK within the COPD and asthma outcome study (CAOS): multicentre observational cohort study

BMJ, 2007-12, Vol.335 (7630), p.1132-1134

International edition, 2007

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Do cystic fibrosis centres with the lowest FEV1 still use the least amount of intravenous antibiotics? A registry-based comparison of intravenous antibiotic use among adult CF centres in the UK

Journal of cystic fibrosis, 2018-05, Vol.17 (3), p.360-367

2018

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Intravenous antibiotic use and exacerbation events in an adult cystic fibrosis centre: A prospective observational study

Respiratory medicine, 2019-07, Vol.154, p.109-115

2019

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Understanding FEV 1 for the purpose of cystic fibrosis registry comparisons: Does bias in annual review FEV 1 affect between-centre comparison within the UK? An analysis of registry data

Journal of evaluation in clinical practice, 2020-02, Vol.26 (1), p.229-235

2020

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Understanding FEV1 for the purpose of cystic fibrosis registry comparisons: Does bias in annual review FEV1 affect between‐centre comparison within the UK? An analysis of registry data

Journal of evaluation in clinical practice, 2020-02, Vol.26 (1), p.229-235

2020

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Rescue therapy within the UK Cystic Fibrosis Registry: An exploration of predictors of intravenous antibiotic use amongst adults with CF

Respirology (Carlton, Vic.), 2018-02, Vol.23 (2), p.190-197

2018

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The importance of data issues when comparing cystic fibrosis registry outcomes between countries: Are annual review FEV1 in the UK only collected when subjects are well?

Journal of evaluation in clinical practice, 2018-08, Vol.24 (4), p.745-751

2018

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The CFHealthHub Learning Health System: Using Real-Time Adherence Data to Support a Community of Practice to Deliver Continuous Improvement in an Archetypal Long-Term Condition

Supporting medication adherence for adults with cystic fibrosis: a randomised feasibility study

Implementing the use of objective medication adherence data in routine clinical practice via the digital CFHealthHub platform: situation analysis and strategy development using the theoretical domains framework

Feasibility study for supporting medication adherence for adults with cystic fibrosis: mixed-methods process evaluation

An intervention to support adherence to inhaled medication in adults with cystic fibrosis: the ACtiF research programme including RCT

Future Discounting Bias and Scenarios Without Lock-Step FEV1/Life Expectancy Coherence May Result in Suboptimal Treatment Recommendations

Regarding the article entitled “A smartphone application for reporting symptoms in adults with cystic fibrosis improves the detection of exacerbations: Results of a randomised controlled trial”

A comparison of the CFHH criteria against the Leeds criteria in determining the Pseudomonas aeruginosa status among adults with cystic fibrosis

Role of habit in treatment adherence among adults with cystic fibrosis

Development of data processing algorithm to calculate adherence for adults with cystic fibrosis using inhaled therapy - a multi-center observational study within the CFHealthHub learning health system

Regarding the articles on home spirometry

Case Report: Dual nebulised antibiotics among adults with cystic fibrosis and chronic Pseudomonas infection

Exploring the implications of different approaches to estimate centre-level adherence using objective adherence data in an adult cystic fibrosis centre – a retrospective observational study

Real-World Adherence Among Adults With Cystic Fibrosis Is Low: A Retrospective Analysis of the CFHealthHub Digital Learning Health System

Objective Nebuliser Adherence Data as "Proof" of Adherence in the Management of Cystic Fibrosis: A Qualitative Interview Study

Potential effect of centre size on continuity of care and healthcare performance

Regarding the article entitled “Effect of elexacaftor/tezacaftor/ivacaftor on annual rate of lung function decline in people with cystic fibrosis”

Moving cystic fibrosis care from rescue to prevention by embedding adherence measurement in routine care

Implications of prognostic pessimism in patients with chronic obstructive pulmonary disease (COPD) or asthma admitted to intensive care in the UK within the COPD and asthma outcome study (CAOS): multicentre observational cohort study

Do cystic fibrosis centres with the lowest FEV1 still use the least amount of intravenous antibiotics? A registry-based comparison of intravenous antibiotic use among adult CF centres in the UK

Intravenous antibiotic use and exacerbation events in an adult cystic fibrosis centre: A prospective observational study

Understanding FEV 1 for the purpose of cystic fibrosis registry comparisons: Does bias in annual review FEV 1 affect between-centre comparison within the UK? An analysis of registry data

Understanding FEV1 for the purpose of cystic fibrosis registry comparisons: Does bias in annual review FEV1 affect between‐centre comparison within the UK? An analysis of registry data

Rescue therapy within the UK Cystic Fibrosis Registry: An exploration of predictors of intravenous antibiotic use amongst adults with CF

The importance of data issues when comparing cystic fibrosis registry outcomes between countries: Are annual review FEV1 in the UK only collected when subjects are well?

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