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WS11.6 Do the CF centres with the best FEV1 still use the most rescue therapy? A registry-based comparison of IV antibiotic use among adult CF centres in the UK

Journal of cystic fibrosis, 2017-06, Vol.16, p.S21-S21

2017

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IPD2.09 Cluster analysis of objective nebuliser adherence data among adults with CF: change in adherence over time and association with clinical outcomes

Journal of cystic fibrosis, 2017-06, Vol.16, p.S60-S61

2017

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408 Moving the UK CF registry from annual review data collection to encounter-based data collection: cost estimation to understand feasibility

Journal of cystic fibrosis, 2017-06, Vol.16, p.S166-S166

2017

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417 Understanding resources requirement for delivering cystic fibrosis care: the association between clinical clusters and resource use

Journal of cystic fibrosis, 2017-06, Vol.16, p.S169-S169

2017

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IPD2.05 Demographic and clinical factors associated with objective nebuliser adherence among adults with CF

Journal of cystic fibrosis, 2017-06, Vol.16, p.S59-S59

2017

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191 The potential use of dual nebulised antibiotics for the treatment of pulmonary exacerbations among adults with cystic fibrosis and chronic P. aeruginosa infection

Journal of cystic fibrosis, 2017-06, Vol.16, p.S116-S116

2017

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156 Understanding pseudomonas status among adults with CF: inter-rater reliability and face validity of clinicians' consensus decision

Journal of cystic fibrosis, 2017-06, Vol.16, p.S106-S106

2017

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154 Understanding pseudomonas status among adults with CF: comparison of Leeds criteria vs clinicians' consensus

Journal of cystic fibrosis, 2017-06, Vol.16, p.S105-S105

2017

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Intravenous iron among cystic fibrosis patients

Journal of cystic fibrosis, 2012-12, Vol.11 (6), p.560-562

2012

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405 Use of clinical characteristics and pre-clinic data to optimise clinic use in adults with cystic fibrosis: development of consensus criteria using nominal group technique

Journal of cystic fibrosis, 2017-06, Vol.16, p.S165-S165

2017

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Airway clearance techniques used by people with cystic fibrosis in the UK

Physiotherapy, 2015-12, Vol.101 (4), p.340-348

2015

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Regarding the article entitled “Iron supplementation does not worsen respiratory health or alter the sputum microbiome in cystic fibrosis”

Journal of cystic fibrosis, 2015-01, Vol.14 (1), p.158-159

2015

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Exploration of the impact of ‘mild phenotypes’ ON median age at death IN the UK CF registry

Respiratory medicine, 2014-05, Vol.108 (5), p.716-721

2014

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155 CFHealthHub: using Leeds criteria and clinicians' decision to determine the pseudomonas status among the 64 adults with cystic fibrosis in the two centre CFHealthHub (CFHH) pilot study

Journal of cystic fibrosis, 2017-06, Vol.16, p.S105-S106

2017

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P209 Personalised data-Linkage Understanding Treatment Optimisation (PLUTO) in the CFHealthHub Learning Health System: understanding how much is enough for normal life expectancy in the post-modulator era

Journal of cystic fibrosis, 2023-06, Vol.22, p.S128-S129

2023

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Chronic fatigue following infection by Coxiella burnetii (Q fever): ten‐year follow‐up of the 1989 UK outbreak cohort

QJM : An International Journal of Medicine, 2002-08, Vol.95 (8), p.527-538

2002

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Accurate identification of antibiotic allergies in cystic fibrosis

Journal of cystic fibrosis, 2010, Vol.9, p.S43-S43

2010

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P228 Using CFHealthHub nebuliser duration data to support continuous improvement by optimising inhaled therapy duration to reduce treatment burden within a digital learning health system

Journal of cystic fibrosis, 2022-06, Vol.21, p.S130

2022

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P220 The CFHealthHub Learning Health System - supporting a community of practice to deliver a normal life expectancy in cystic fibrosis

Journal of cystic fibrosis, 2023-06, Vol.22, p.S132-S132

2023

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P399 Using a digital learning health system to reduce medicines waste in cystic fibrosis – the Easy Medicines for Burden Reduction And Care Enhancement (EMBRACE) study

Journal of cystic fibrosis, 2023-06, Vol.22, p.S186-S186

2023

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P207 CFHealthHub allows clinicians to identify people with long nebuliser durations and intervene to reduce duration

Journal of cystic fibrosis, 2023-06, Vol.22, p.S128-S128

2023

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P378 The value of a community of practice, within the CFHealthHub learning health system

Journal of cystic fibrosis, 2023-06, Vol.22, p.S179-S180

2023

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WS09.05 Using the CFHealthHub digital learning health system to optimise the nebulised medicines supply process in 5 UK adult cystic fibrosis (CF) centres

Journal of cystic fibrosis, 2022-06, Vol.21, p.S18-S19

2022

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P147 “What options are available for those not able to take current CFTR modulators?”: an answer hidden in plain sight?

Journal of cystic fibrosis, 2023-06, Vol.22, p.S110-S110

2023

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P337 Easy Medicines for Burden Reduction and Care Enhancement: using real time adherence data to optimise inhaled therapies in adults with cystic fibrosis. The UK National EMBRACE programme

Journal of cystic fibrosis, 2020-06, Vol.19, p.S150-S150

2020

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WS11.6 Do the CF centres with the best FEV1 still use the most rescue therapy? A registry-based comparison of IV antibiotic use among adult CF centres in the UK

IPD2.09 Cluster analysis of objective nebuliser adherence data among adults with CF: change in adherence over time and association with clinical outcomes

408 Moving the UK CF registry from annual review data collection to encounter-based data collection: cost estimation to understand feasibility

417 Understanding resources requirement for delivering cystic fibrosis care: the association between clinical clusters and resource use

IPD2.05 Demographic and clinical factors associated with objective nebuliser adherence among adults with CF

191 The potential use of dual nebulised antibiotics for the treatment of pulmonary exacerbations among adults with cystic fibrosis and chronic P. aeruginosa infection

156 Understanding pseudomonas status among adults with CF: inter-rater reliability and face validity of clinicians' consensus decision

154 Understanding pseudomonas status among adults with CF: comparison of Leeds criteria vs clinicians' consensus

Intravenous iron among cystic fibrosis patients

405 Use of clinical characteristics and pre-clinic data to optimise clinic use in adults with cystic fibrosis: development of consensus criteria using nominal group technique

Airway clearance techniques used by people with cystic fibrosis in the UK

Regarding the article entitled “Iron supplementation does not worsen respiratory health or alter the sputum microbiome in cystic fibrosis”

Exploration of the impact of ‘mild phenotypes’ ON median age at death IN the UK CF registry

155 CFHealthHub: using Leeds criteria and clinicians' decision to determine the pseudomonas status among the 64 adults with cystic fibrosis in the two centre CFHealthHub (CFHH) pilot study

P209 Personalised data-Linkage Understanding Treatment Optimisation (PLUTO) in the CFHealthHub Learning Health System: understanding how much is enough for normal life expectancy in the post-modulator era

Chronic fatigue following infection by Coxiella burnetii (Q fever): ten‐year follow‐up of the 1989 UK outbreak cohort

Accurate identification of antibiotic allergies in cystic fibrosis

P228 Using CFHealthHub nebuliser duration data to support continuous improvement by optimising inhaled therapy duration to reduce treatment burden within a digital learning health system

P220 The CFHealthHub Learning Health System - supporting a community of practice to deliver a normal life expectancy in cystic fibrosis

P399 Using a digital learning health system to reduce medicines waste in cystic fibrosis – the Easy Medicines for Burden Reduction And Care Enhancement (EMBRACE) study

P207 CFHealthHub allows clinicians to identify people with long nebuliser durations and intervene to reduce duration

P378 The value of a community of practice, within the CFHealthHub learning health system

WS09.05 Using the CFHealthHub digital learning health system to optimise the nebulised medicines supply process in 5 UK adult cystic fibrosis (CF) centres

P147 “What options are available for those not able to take current CFTR modulators?”: an answer hidden in plain sight?

P337 Easy Medicines for Burden Reduction and Care Enhancement: using real time adherence data to optimise inhaled therapies in adults with cystic fibrosis. The UK National EMBRACE programme

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