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Individual, family, and environmental determinants of vision-related quality of life of children and young people with visual impairment

PloS one, 2023-11, Vol.18 (11), p.e0294532-e0294532

2023

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Attitudes, experiences, and preferences of ophthalmic professionals regarding routine use of patient-reported outcome measures in clinical practice

PloS one, 2020-12, Vol.15 (12), p.e0243563

2020

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This is me: A qualitative investigation of young people’s experience of growing up with visual impairment

PloS one, 2021-07, Vol.16 (7), p.e0254009-e0254009

2021

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Feasibility of using patient-reported outcome measures with visually impaired children/young people attending paediatric ophthalmology clinics

Archives of disease in childhood, 2021-07, Vol.106 (7), p.687-692

2021

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A Patient-reported Outcome Measure of Functional Vision for Children and Young People Aged 8 to 18 Years With Visual Impairment

American journal of ophthalmology, 2020-11, Vol.219, p.141-153

2020

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Capturing the experiences of patients with inherited optic neuropathies: a systematic review of patient-reported outcome measures (PROMs) and qualitative studies

Graefe's archive for clinical and experimental ophthalmology, 2022-06, Vol.260 (6), p.2045-2055

2022

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Differences in Self-Rated Versus Parent Proxy–Rated Vision-Related Quality of Life and Functional Vision of Visually Impaired Children

American journal of ophthalmology, 2021-10, Vol.230, p.167-177

2021

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Development of the functional vision questionnaire for children and young people with visual impairment: the FVQ_CYP

Ophthalmology (Rochester, Minn.), 2013-12, Vol.120 (12), p.2725-2732

2013

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An Age- and Stage-Appropriate Patient-Reported Outcome Measure of Vision-Related Quality of Life of Children and Young People with Visual Impairment

Ophthalmology (Rochester, Minn.), 2020-02, Vol.127 (2), p.249-260

2020

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Measuring the Quality of Life of Visually Impaired Children: First Stage Psychometric Evaluation of the Novel VQoL_CYP Instrument

PloS one, 2016-02, Vol.11 (2), p.e0146225

2016

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Do visually impaired children and their parents agree on the child's vision-related quality of life and functional vision?

British journal of ophthalmology, 2017-03, Vol.101 (3), p.244-250

2017

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Patient-reported outcome measures (PROMs) in paediatric ophthalmology: a systematic review

British Journal of Ophthalmology, 2013-11, Vol.97 (11), p.1369-1381

2013

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Cross-cultural validation of the Functional Vision Questionnaire for Children and Young People (FVQ_CYP) with visual impairment in the Dutch population: challenges and opportunities

BMC medical research methodology, 2019-12, Vol.19 (1), p.221-221, Article 221

2019

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Story discourse and use of mental state language between mothers and school-aged children with and without visual impairment

International journal of language & communication disorders, 2013-11, Vol.48 (6), p.679-688

2013

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Self-Reported Health Experiences of Children Living with Congenital Heart Defects: Including Patient-Reported Outcomes in a National Cohort Study

PloS one, 2016-08, Vol.11 (8), p.e0159326-e0159326

2016

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UNICORNS: Uveitis in childhood prospective national cohort study protocol [version 2; peer review: 1 approved, 1 approved with reservations]

F1000 research, 2020, Vol.9, p.1196-1196

2020

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Supporting positive patient experiences for rare disease care during disruptive times: findings from a national study

Future Rare Diseases, 2024-12, Vol.4 (1)

2024

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Development of the Functional Vision Questionnaire for Children and Young People with Visual Impairment

Ophthalmology (Rochester, Minn.), 2013-12, Vol.120 (12), p.2725-2732

2013

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Visual impairment, severe visual impairment, and blindness in children in Britain (BCVIS2): a national observational study

The lancet child & adolescent health, 2021-03, Vol.5 (3), p.190-200

2021

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Individual, family, and environmental determinants of vision-related quality of life of children and young people with visual impairment

PloS one, 2023-01, Vol.18 (11)

2023

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Development of social functioning in children with congenital visual impairment

Tadic, Valerija

2009

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UNICORNS: Uveitis in childhood prospective national cohort study protocol [version 1; peer review: 1 approved, 1 approved with reservations]

F1000 research, 2020, Vol.9, p.1196

2020

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Novel NAXE variants as a cause for neurometabolic disorder: implications for treatment

Journal of neurology, 2020-03, Vol.267 (3), p.770-782

2020

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Clinical spectrum of the pentanucleotide repeat expansion in the RFC1 gene in ataxia syndromes

Neurology, 2020-11, Vol.95 (21), p.e2912

2020

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Individual, family, and environmental determinants of vision-related quality of life of children and young people with visual impairment

Attitudes, experiences, and preferences of ophthalmic professionals regarding routine use of patient-reported outcome measures in clinical practice

This is me: A qualitative investigation of young people’s experience of growing up with visual impairment

Feasibility of using patient-reported outcome measures with visually impaired children/young people attending paediatric ophthalmology clinics

A Patient-reported Outcome Measure of Functional Vision for Children and Young People Aged 8 to 18 Years With Visual Impairment

Capturing the experiences of patients with inherited optic neuropathies: a systematic review of patient-reported outcome measures (PROMs) and qualitative studies

Differences in Self-Rated Versus Parent Proxy–Rated Vision-Related Quality of Life and Functional Vision of Visually Impaired Children

Development of the functional vision questionnaire for children and young people with visual impairment: the FVQ_CYP

An Age- and Stage-Appropriate Patient-Reported Outcome Measure of Vision-Related Quality of Life of Children and Young People with Visual Impairment

Measuring the Quality of Life of Visually Impaired Children: First Stage Psychometric Evaluation of the Novel VQoL_CYP Instrument

Do visually impaired children and their parents agree on the child's vision-related quality of life and functional vision?

Patient-reported outcome measures (PROMs) in paediatric ophthalmology: a systematic review

Cross-cultural validation of the Functional Vision Questionnaire for Children and Young People (FVQ_CYP) with visual impairment in the Dutch population: challenges and opportunities

Story discourse and use of mental state language between mothers and school-aged children with and without visual impairment

Self-Reported Health Experiences of Children Living with Congenital Heart Defects: Including Patient-Reported Outcomes in a National Cohort Study

UNICORNS: Uveitis in childhood prospective national cohort study protocol [version 2; peer review: 1 approved, 1 approved with reservations]

Supporting positive patient experiences for rare disease care during disruptive times: findings from a national study

Development of the Functional Vision Questionnaire for Children and Young People with Visual Impairment

Visual impairment, severe visual impairment, and blindness in children in Britain (BCVIS2): a national observational study

Individual, family, and environmental determinants of vision-related quality of life of children and young people with visual impairment

Development of social functioning in children with congenital visual impairment

UNICORNS: Uveitis in childhood prospective national cohort study protocol [version 1; peer review: 1 approved, 1 approved with reservations]

Novel NAXE variants as a cause for neurometabolic disorder: implications for treatment

Clinical spectrum of the pentanucleotide repeat expansion in the RFC1 gene in ataxia syndromes

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