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Goals of care: a concept clarification

Journal of advanced nursing, 2017-06, Vol.73 (6), p.1302-1314

Stanek, Susan

2017

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Feeling Heard and Understood: A Patient-Reported Quality Measure for the Inpatient Palliative Care Setting

Journal of pain and symptom management, 2016-02, Vol.51 (2), p.150-154

2016

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The Experience of Uncertainty in Individuals With High Risk for Pancreatic Cancer

Cancer nursing, 2024-01, Vol.47 (1), p.E10-E17

2024

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Distress Due to Prognostic Uncertainty in Palliative Care: Frequency, Distribution, and Outcomes among Hospitalized Patients with Advanced Cancer

Journal of palliative medicine, 2018-03, Vol.21 (3), p.315-321

2018

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Design of, and enrollment in, the palliative care communication research initiative: a direct-observation cohort study

BMC palliative care, 2015-08, Vol.14 (1), p.40-40, Article 40

2015

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Expressions of Uncertainty from Patients with Advanced Cancer when Communicating with the Palliative Care Team

Stanek, M Susan

2020

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Study protocol for FUTURES: Testing a web-based reproductive health education program for adolescent and young adult males with sickle cell disease

PloS one, 2023-07, Vol.18 (7), p.e0289039-e0289039

2023

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Influenza vaccine uptake among youth with sickle cell disease who are seen in clinic before and after the COVID-19 pandemic

Vaccine, 2024-09, Vol.42 (22), p.126212, Article 126212

2024

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Sexually transmitted infection testing and diagnosis in adolescents and young adults with sickle cell disease

Pediatric blood & cancer, 2024-10, Vol.71 (10), p.e31240-n/a

2024

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It's Time to Act: Contextualizing the Prevalence of Sexually Transmitted Infections in Adolescents and Young Adults with Sickle Cell Disease

Blood, 2023-11, Vol.142 (Supplement 1), p.1060-1060

2023

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Reproductive Health Counseling among Youth with Sickle Cell Disease

Journal of pediatric & adolescent gynecology, 2023-08, Vol.36 (4), p.393-398

2023

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Pregnancy-related thromboembolism in women with sickle cell disease: An analysis of National Medicaid Data

American journal of hematology, 2023-11, Vol.98 (11), p.1677-1684

2023

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FUTURES: efficacy and acceptability of a novel reproductive health education program for adolescent males with sickle cell disease

Blood advances, 2023-11, Vol.7 (21), p.6648-6651

2023

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Estimating Children's Soil/Dust Ingestion Rates through Retrospective Analyses of Blood Lead Biomonitoring from the Bunker Hill Superfund Site in Idaho

Environmental health perspectives, 2016-09, Vol.124 (9), p.1462-1470

2016

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Using the consolidated framework for implementation research to identify challenges and opportunities for implementing a reproductive health education program into sickle cell disease care

Journal of pediatric psychology, 2024-05

2024

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Experiences and Outcomes of Fertility Testing in Male Adolescents and Young Adults with Sickle Cell Disease

Blood, 2023-11, Vol.142 (Supplement 1), p.3736-3736

2023

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Experiences and outcomes of fertility testing in male adolescents with sickle cell disease

Pediatric blood & cancer, 2024-04, Vol.71 (4), p.e30848-n/a

2024

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Fertility Testing Knowledge and Attitudes in Male Adolescents and Young Adults with SCD and Their Caregivers: A Pilot Study

Blood advances, 2022-06, Vol.6 (12), p.3703-3706

2022

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Grain Boundaries in Uranium Dioxide: Scanning Electron Microscopy Experiments and Atomistic Simulations

Journal of the American Ceramic Society, 2011-06, Vol.94 (6), p.1893-1900

2011

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Primary Care Provider Use and Depression Screening Among Transitioning Adolescents and Young Adults with Sickle Cell Disease

Blood, 2022-11, Vol.140 (Supplement 1), p.7983-7984

2022

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Urinary bisphenol-A, phthalate metabolites and body composition in US adults, NHANES 1999-2006

International journal of environmental health research, 2016-11, Vol.26 (5-6), p.606-617

2016

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Prevalence of Duffy Null Status and Its Impact on Hydroxyurea Dosing in Young Children with Sickle Cell Disease in the United States

Blood, 2023-11, Vol.142 (Supplement 1), p.5108-5108

2023

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Case Series of Laboratory-Associated Zika Virus Disease, United States, 2016-2019

Emerging infectious diseases, 2021-05, Vol.27 (5), p.1296-1300

2021

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Prevalence of Duffy null and its impact on hydroxyurea in young children with sickle cell disease in the United States

Pediatric blood & cancer, 2024-06, Vol.71 (6), p.e30945-n/a

2024

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Clinical Presentation of a Complex Neurodevelopmental Disorder Caused by Mutations in ADNP

Biological psychiatry (1969), 2019-02, Vol.85 (4), p.287-297

2019

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Goals of care: a concept clarification

Feeling Heard and Understood: A Patient-Reported Quality Measure for the Inpatient Palliative Care Setting

The Experience of Uncertainty in Individuals With High Risk for Pancreatic Cancer

Distress Due to Prognostic Uncertainty in Palliative Care: Frequency, Distribution, and Outcomes among Hospitalized Patients with Advanced Cancer

Design of, and enrollment in, the palliative care communication research initiative: a direct-observation cohort study

Expressions of Uncertainty from Patients with Advanced Cancer when Communicating with the Palliative Care Team

Study protocol for FUTURES: Testing a web-based reproductive health education program for adolescent and young adult males with sickle cell disease

Influenza vaccine uptake among youth with sickle cell disease who are seen in clinic before and after the COVID-19 pandemic

Sexually transmitted infection testing and diagnosis in adolescents and young adults with sickle cell disease

It's Time to Act: Contextualizing the Prevalence of Sexually Transmitted Infections in Adolescents and Young Adults with Sickle Cell Disease

Reproductive Health Counseling among Youth with Sickle Cell Disease

Pregnancy-related thromboembolism in women with sickle cell disease: An analysis of National Medicaid Data

FUTURES: efficacy and acceptability of a novel reproductive health education program for adolescent males with sickle cell disease

Estimating Children's Soil/Dust Ingestion Rates through Retrospective Analyses of Blood Lead Biomonitoring from the Bunker Hill Superfund Site in Idaho

Using the consolidated framework for implementation research to identify challenges and opportunities for implementing a reproductive health education program into sickle cell disease care

Experiences and Outcomes of Fertility Testing in Male Adolescents and Young Adults with Sickle Cell Disease

Experiences and outcomes of fertility testing in male adolescents with sickle cell disease

Fertility Testing Knowledge and Attitudes in Male Adolescents and Young Adults with SCD and Their Caregivers: A Pilot Study

Grain Boundaries in Uranium Dioxide: Scanning Electron Microscopy Experiments and Atomistic Simulations

Primary Care Provider Use and Depression Screening Among Transitioning Adolescents and Young Adults with Sickle Cell Disease

Urinary bisphenol-A, phthalate metabolites and body composition in US adults, NHANES 1999-2006

Prevalence of Duffy Null Status and Its Impact on Hydroxyurea Dosing in Young Children with Sickle Cell Disease in the United States

Case Series of Laboratory-Associated Zika Virus Disease, United States, 2016-2019

Prevalence of Duffy null and its impact on hydroxyurea in young children with sickle cell disease in the United States

Clinical Presentation of a Complex Neurodevelopmental Disorder Caused by Mutations in ADNP

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