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Qualitative study: burden of menopause-associated vasomotor symptoms (VMS) and validation of PROMIS Sleep Disturbance and Sleep-Related Impairment measures for assessment of VMS impact on sleep

Journal of patient-reported outcomes, 2021-04, Vol.5 (1), p.37-37, Article 37

2021

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Assessing what matters most to patients with or at risk for Alzheimer’s and care partners: a qualitative study evaluating symptoms, impacts, and outcomes

Alzheimer's research & therapy, 2020-07, Vol.12 (1), p.1-90, Article 90

2020

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Evaluating Elements of the Care Partner Experience in Individuals Who Care for People with Alzheimer's Disease Across the Severity Spectrum

Neurology and therapy, 2024-02, Vol.13 (1), p.53-67

2024

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Development of a novel PRO instrument for use in familial chylomicronemia syndrome

Journal of patient-reported outcomes, 2021-08, Vol.5 (1), p.72-72, Article 72

2021

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Assessing What Matters to People Affected by Alzheimer’s Disease: A Quantitative Analysis

Neurology and therapy, 2023-04, Vol.12 (2), p.505-527

2023

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Correction to: Qualitative study: burden of menopause-associated vasomotor symptoms (VMS) and validation of PROMIS sleep disturbance and sleep-related impairment measures for assessment of VMS impact on sleep

Journal of patient-reported outcomes, 2021-06, Vol.5 (1), p.42-42, Article 42

2021

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Norepinephrine preferentially modulates memory CD8 T cell function inducing inflammatory cytokine production and reducing proliferation in response to activation

Brain, behavior, and immunity, 2015-05, Vol.46, p.168-179

2015

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Critical Comments by Food and Drug Administration Reviewers on Patient-Reported Outcomes in Food and Drug Administration Regulatory Submissions (2018-2021)

Value in health, 2024-06, Vol.27 (6), p.755-766

2024

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The effect of norepinephrine on CD8 T cell subsets in healthy human adults (CCR3P.215)

The Journal of immunology (1950), 2014-05, Vol.192 (1_Supplement), p.115-115.12

2014

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Fitusiran Reaches People's with Hemophilia and Their Caregivers’ Treatment Expectations: Qualitative Semi-Structured Interviews of Participants of ATLAS-OLE Trial (Interim analysis)

Blood, 2022-11, Vol.140 (Supplement 1), p.7989-7990

2022

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Development of a Patient-Reported Outcome Measure for Non-Alcoholic Steatohepatitis (NASH-CHECK): Results of a Qualitative Study

The patient : patient-centered outcomes research, 2021-09, Vol.14 (5), p.533-543

2021

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Patient reported outcomes in GNE myopathy: incorporating a valid assessment of physical function in a rare disease

Disability and rehabilitation, 2018-05, Vol.40 (10), p.1206-1213

2018

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Safety and efficacy of N-acetylmannosamine (ManNAc) in patients with GNE myopathy: an open-label phase 2 study

Genetics in medicine, 2021-11, Vol.23 (11), p.2067-2075

2021

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Development of a Novel Patient-Reported Outcome Measure for Symptoms and Impacts of Familial Chylomicronemia Syndrome

Journal of clinical lipidology, 2020-07, Vol.14 (4), p.571-571

2020

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Measuring “What Matters Most™” to individuals living with Alzheimer’s disease and care partners: A conceptual model of Alzheimer’s Disease

Alzheimer's & dementia, 2023-12, Vol.19 (S24), p.n/a

2023

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Exploring the Impact of Fatigue in Progressive Multiple Sclerosis: A Mixed-Methods Analysis

Multiple sclerosis and related disorders, 2020-08, Vol.43, p.102207-102207, Article 102207

2020

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Open-Label Phase 2 Clinical Trial of ManNAc for GNE Myopathy (S23.008)

Neurology, 2019-04, Vol.92 (15_supplement)

2019

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P4‐673: FINDINGS FROM THE ALZHEIMER'S DISEASE PATIENT AND CAREGIVER ENGAGEMENT (AD PACE) INITIATIVE'S WHAT MATTERS MOST QUALITATIVE STUDY

Alzheimer's & dementia, 2019-07, Vol.15 (7S_Part_30), p.P1589-P1590

2019

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FINDINGS FROM THE ALZHEIMER'S DISEASE PATIENT AND CAREGIVER ENGAGEMENT (AD PACE) INITIATIVE'S WHAT MATTERS MOST QUALITATIVE STUDY

Alzheimer's & dementia, 2019-07, Vol.15 (7), p.P1589-P1590

2019

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Identification of an Alu element‐mediated deletion in the promoter region of GNE in siblings with GNE myopathy

Molecular genetics & genomic medicine, 2017-07, Vol.5 (4), p.410-417

2017

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Qualitative inquiry: a method for validating patient perceptions of palliative care while enrolled on a cancer clinical trial

BMC palliative care, 2014-09, Vol.13 (1), p.43-43, Article 43

2014

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The effects of chronic stress on CD8 T cells in human adults: An examination from bench to bedside

Slota, Christina Marie

2015

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Comparison of simultaneous static standing balance data on a pressure mat and force plate in typical children and in children with cerebral palsy

Gait & posture, 2019-01, Vol.67, p.91-98

2019

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Qualitative study: burden of menopause-associated vasomotor symptoms (VMS) and validation of PROMIS Sleep Disturbance and Sleep-Related Impairment measures for assessment of VMS impact on sleep

Assessing what matters most to patients with or at risk for Alzheimer’s and care partners: a qualitative study evaluating symptoms, impacts, and outcomes

Evaluating Elements of the Care Partner Experience in Individuals Who Care for People with Alzheimer's Disease Across the Severity Spectrum

Development of a novel PRO instrument for use in familial chylomicronemia syndrome

Assessing What Matters to People Affected by Alzheimer’s Disease: A Quantitative Analysis

Correction to: Qualitative study: burden of menopause-associated vasomotor symptoms (VMS) and validation of PROMIS sleep disturbance and sleep-related impairment measures for assessment of VMS impact on sleep

Norepinephrine preferentially modulates memory CD8 T cell function inducing inflammatory cytokine production and reducing proliferation in response to activation

Critical Comments by Food and Drug Administration Reviewers on Patient-Reported Outcomes in Food and Drug Administration Regulatory Submissions (2018-2021)

The effect of norepinephrine on CD8 T cell subsets in healthy human adults (CCR3P.215)

Fitusiran Reaches People's with Hemophilia and Their Caregivers’ Treatment Expectations: Qualitative Semi-Structured Interviews of Participants of ATLAS-OLE Trial (Interim analysis)

Development of a Patient-Reported Outcome Measure for Non-Alcoholic Steatohepatitis (NASH-CHECK): Results of a Qualitative Study

Patient reported outcomes in GNE myopathy: incorporating a valid assessment of physical function in a rare disease

Safety and efficacy of N-acetylmannosamine (ManNAc) in patients with GNE myopathy: an open-label phase 2 study

Development of a Novel Patient-Reported Outcome Measure for Symptoms and Impacts of Familial Chylomicronemia Syndrome

Measuring “What Matters Most™” to individuals living with Alzheimer’s disease and care partners: A conceptual model of Alzheimer’s Disease

Exploring the Impact of Fatigue in Progressive Multiple Sclerosis: A Mixed-Methods Analysis

Open-Label Phase 2 Clinical Trial of ManNAc for GNE Myopathy (S23.008)

P4‐673: FINDINGS FROM THE ALZHEIMER'S DISEASE PATIENT AND CAREGIVER ENGAGEMENT (AD PACE) INITIATIVE'S WHAT MATTERS MOST QUALITATIVE STUDY

FINDINGS FROM THE ALZHEIMER'S DISEASE PATIENT AND CAREGIVER ENGAGEMENT (AD PACE) INITIATIVE'S WHAT MATTERS MOST QUALITATIVE STUDY

Identification of an Alu element‐mediated deletion in the promoter region of GNE in siblings with GNE myopathy

Qualitative inquiry: a method for validating patient perceptions of palliative care while enrolled on a cancer clinical trial

The effects of chronic stress on CD8 T cells in human adults: An examination from bench to bedside

Comparison of simultaneous static standing balance data on a pressure mat and force plate in typical children and in children with cerebral palsy

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