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An under-represented and underserved population in trials: methodological, structural, and systemic barriers to the inclusion of adults lacking capacity to consent

Trials, 2020-05, Vol.21 (1), p.445-445, Article 445

Shepherd, Victoria

2020

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(Re)Conceptualising 'good' proxy decision-making for research: the implications for proxy consent decision quality

BMC medical ethics, 2022-07, Vol.23 (1), p.75-75, Article 75

Shepherd, Victoria

2022

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Decision-making during pandemics and other serious illness

Geriatrics, Gerontology and Aging (Online), 2020-07, Vol.14 (2), p.79-80

Shepherd, Victoria

2020

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Exploring the inclusion of under-served groups in trials methodology research: an example from ethnic minority populations' views on deferred consent

Trials, 2021-09, Vol.22 (1), p.589-589, Article 589

2021

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Unpacking the 'black box of horrendousness': a qualitative exploration of the barriers and facilitators to conducting trials involving adults lacking capacity to consent

Trials, 2022-06, Vol.23 (1), p.471-471, Article 471

2022

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Protection by exclusion? The (lack of) inclusion of adults who lack capacity to consent to research in clinical trials in the UK

Trials, 2019-08, Vol.20 (1), p.474-474, Article 474

2019

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Trials using deferred consent in the emergency setting: a systematic review and narrative synthesis of stakeholders' attitudes

Trials, 2022-05, Vol.23 (1), p.411-411, Article 411

2022

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'It's not making a decision, it's prompting the discussions': a qualitative study exploring stakeholders' views on the acceptability and feasibility of advance research planning (CONSULT-ADVANCE)

BMC medical ethics, 2024-07, Vol.25 (1), p.80-23, Article 80

2024

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Determining capacity of people with dementia to take part in research: an electronic survey study of researcher confidence, competence and training needs

BMC medical ethics, 2024-05, Vol.25 (1), p.65-65, Article 65

2024

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Identifying barriers and facilitators to the inclusion of older adults living in UK care homes in research: a scoping review

BMC geriatrics, 2023-07, Vol.23 (1), p.446-446, Article 446

2023

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Development of a measure to assess the quality of proxy decisions about research participation on behalf of adults lacking capacity to consent: the Combined Scale for Proxy Informed Consent Decisions (CONCORD scale)

Trials, 2022-10, Vol.23 (1), p.843-843, Article 843

2022

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Planning ahead for research participation: survey of public and professional stakeholders’ views about the acceptability and feasibility of advance research planning

BMC medical ethics, 2023-09, Vol.24 (1), p.1-70, Article 70

2023

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Development of a decision support intervention for family members of adults who lack capacity to consent to trials

BMC medical informatics and decision making, 2021-01, Vol.21 (1), p.30-30, Article 30

2021

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Nocebo effects and participant information leaflets: evaluating information provided on adverse effects in UK clinical trials

Trials, 2020-07, Vol.21 (1), p.658-658, Article 658

2020

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Research involving adults lacking capacity to consent: a content analysis of participant information sheets for consultees and legal representatives in England and Wales

Trials, 2019-04, Vol.20 (1), p.233-12, Article 233

2019

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Recruitment interventions for trials involving adults lacking capacity to consent: methodological and ethical considerations for designing Studies Within a Trial (SWATs)

Trials, 2022-09, Vol.23 (1), p.756-756, Article 756

2022

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Feasibility, effectiveness and costs of a decision support intervention for consultees and legal representatives of adults lacking capacity to consent (CONSULT): protocol for a randomised Study Within a Trial

Trials, 2022-11, Vol.23 (1), p.957-957, Article 957

2022

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Effective approaches to public involvement in care home research: a systematic review and narrative synthesis

Research involvement and engagement, 2023-06, Vol.9 (1), p.38-38, Article 38

2023

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Improving the inclusion of an under-served group in trials: development and implementation of the INCLUDE Impaired Capacity to Consent Framework

Trials, 2024-01, Vol.25 (1), p.83-19, Article 83

2024

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Advances and challenges in conducting ethical trials involving populations lacking capacity to consent: A decade in review

Contemporary clinical trials, 2020-08, Vol.95, p.106054-106054, Article 106054

Shepherd, Victoria

2020

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Trial Forge Guidance 3: randomised trials and how to recruit and retain individuals from ethnic minority groups-practical guidance to support better practice

Trials, 2022-08, Vol.23 (1), p.672-672, Article 672

2022

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Research involving adults lacking capacity to consent: the impact of research regulation on 'evidence biased' medicine

BMC medical ethics, 2016-09, Vol.17 (1), p.55-55, Article 55

Shepherd, Victoria

2016

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Complex and alternate consent pathways in clinical trials: methodological and ethical challenges encountered by underserved groups and a call to action

Trials, 2023-02, Vol.24 (1), p.151-12, Article 151

2023

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Conducting focus groups in neurodegenerative disease populations: ethical and methodological considerations

BMJ open, 2021-01, Vol.11 (1), p.e041869-e041869

2021

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Oral and Topical Antibiotics for Clinically Infected Eczema in Children: A Pragmatic Randomized Controlled Trial in Ambulatory Care

Annals of family medicine, 2017-03, Vol.15 (2), p.124-130

2017

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An under-represented and underserved population in trials: methodological, structural, and systemic barriers to the inclusion of adults lacking capacity to consent

(Re)Conceptualising 'good' proxy decision-making for research: the implications for proxy consent decision quality

Decision-making during pandemics and other serious illness

Exploring the inclusion of under-served groups in trials methodology research: an example from ethnic minority populations' views on deferred consent

Unpacking the 'black box of horrendousness': a qualitative exploration of the barriers and facilitators to conducting trials involving adults lacking capacity to consent

Protection by exclusion? The (lack of) inclusion of adults who lack capacity to consent to research in clinical trials in the UK

Trials using deferred consent in the emergency setting: a systematic review and narrative synthesis of stakeholders' attitudes

'It's not making a decision, it's prompting the discussions': a qualitative study exploring stakeholders' views on the acceptability and feasibility of advance research planning (CONSULT-ADVANCE)

Determining capacity of people with dementia to take part in research: an electronic survey study of researcher confidence, competence and training needs

Identifying barriers and facilitators to the inclusion of older adults living in UK care homes in research: a scoping review

Development of a measure to assess the quality of proxy decisions about research participation on behalf of adults lacking capacity to consent: the Combined Scale for Proxy Informed Consent Decisions (CONCORD scale)

Planning ahead for research participation: survey of public and professional stakeholders’ views about the acceptability and feasibility of advance research planning

Development of a decision support intervention for family members of adults who lack capacity to consent to trials

Nocebo effects and participant information leaflets: evaluating information provided on adverse effects in UK clinical trials

Research involving adults lacking capacity to consent: a content analysis of participant information sheets for consultees and legal representatives in England and Wales

Recruitment interventions for trials involving adults lacking capacity to consent: methodological and ethical considerations for designing Studies Within a Trial (SWATs)

Feasibility, effectiveness and costs of a decision support intervention for consultees and legal representatives of adults lacking capacity to consent (CONSULT): protocol for a randomised Study Within a Trial

Effective approaches to public involvement in care home research: a systematic review and narrative synthesis

Improving the inclusion of an under-served group in trials: development and implementation of the INCLUDE Impaired Capacity to Consent Framework

Advances and challenges in conducting ethical trials involving populations lacking capacity to consent: A decade in review

Trial Forge Guidance 3: randomised trials and how to recruit and retain individuals from ethnic minority groups-practical guidance to support better practice

Research involving adults lacking capacity to consent: the impact of research regulation on 'evidence biased' medicine

Complex and alternate consent pathways in clinical trials: methodological and ethical challenges encountered by underserved groups and a call to action

Conducting focus groups in neurodegenerative disease populations: ethical and methodological considerations

Oral and Topical Antibiotics for Clinically Infected Eczema in Children: A Pragmatic Randomized Controlled Trial in Ambulatory Care

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