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Implementation of Two Developmental Screening Programs in Sickle Cell Disease Specialty Care

Clinical practice in pediatric psychology, 2023-06, Vol.11 (2), p.157-167

2023

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Patient and Family Opioid Decision-Making for Pain Management in Sickle Cell Disease: A Qualitative Study

The journal of pain, 2023-07, Vol.24 (7), p.1240-1250

2023

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Transcranial Doppler Screening in a Current Cohort of Children With Sickle Cell Anemia: Results From the DISPLACE Study

Journal of pediatric hematology/oncology, 2021-11, Vol.43 (8), p.e1062-e1068

2021

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Changes in Care Delivery for Children With Sickle Cell Anemia During the COVID-19 Pandemic

Journal of pediatric hematology/oncology, 2021-11, Vol.43 (8), p.e1231-e1234

2021

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Health-related Quality of Life in Children With Sickle Cell Disease Undergoing Chronic Red Cell Transfusion Therapy

Journal of pediatric hematology/oncology, 2019-05, Vol.41 (4), p.307-312

2019

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Examining Biopsychosocial Factors in Relation to Multiple Pain Features in Pediatric Sickle Cell Disease

Journal of pediatric psychology, 2016-09, Vol.41 (8), p.930-940

2016

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Practice patterns for stroke prevention using transcranial Doppler in sickle cell anemia: DISPLACE Consortium

Pediatric blood & cancer, 2020-04, Vol.67 (4), p.e28172-n/a

2020

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Predictive validity of developmental screening in young children with sickle cell disease: a longitudinal follow‐up study

Developmental medicine and child neurology, 2018-05, Vol.60 (5), p.520-526

2018

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Sleep quality and pain in adolescents and young adults with sickle cell disease

Journal of clinical sleep medicine, 2022-12, Vol.18 (12), p.2845-2853

2022

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Practice patterns for neuroimaging and transfusion therapy for management of neurologic complications in sickle cell anemia: DISPLACE consortium

Pediatric blood & cancer, 2020-11, Vol.67 (11), p.e28569-n/a

2020

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Changes in Coping, Pain, and Activity After Cognitive-Behavioral Training: A Randomized Clinical Trial for Pediatric Sickle Cell Disease Using Smartphones

The Clinical journal of pain, 2015-06, Vol.31 (6), p.536-547

2015

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Practice Patterns for Addressing Developmental-Behavioral Concerns in Sickle Cell Specialty Care

Clinical practice in pediatric psychology, 2023-09, Vol.11 (3), p.280-290

2023

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Age Differences in Emergency Department Visits and Inpatient Hospitalizations in Preadolescent and Adolescent Youth with Autism Spectrum Disorders

Journal of autism and developmental disorders, 2015-08, Vol.45 (8), p.2382-2391

2015

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Longitudinal Predictors of Pain in Pediatric Sickle Cell Disease

Journal of pediatric psychology, 2023-07, Vol.48 (6), p.553-561

2023

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Current Methods of Newborn Screening Follow-Up for Sickle Cell Disease Are Highly Variable and without Quality Assurance: Results from the ENHANCE Study

International journal of neonatal screening, 2024-03, Vol.10 (1), p.22

2024

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Identifying patterns of neurocognitive dysfunction through direct comparison of children with leukemia, central nervous system tumors, and sickle cell disease

Pediatric blood & cancer, 2023-06, Vol.70 (6), p.e30299-n/a

2023

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Incomplete implementation of guideline‐based stroke prevention therapy in sickle cell disease

American journal of hematology, 2018-09, Vol.93 (9), p.E222-E224

2018

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Barriers and Facilitators to Chronic Red Cell Transfusion Therapy in Pediatric Sickle Cell Anemia

Journal of pediatric hematology/oncology nursing, 2022-07, Vol.39 (4), p.209-220

2022

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Modulation of pain in pediatric sickle cell disease: Understanding the balance between endothelin mediated vasoconstriction and apelin mediated vasodilation

Blood cells, molecules, & diseases, 2015-02, Vol.54 (2), p.155-159

2015

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Identified barriers and facilitators to stroke risk screening in children with sickle cell anemia: results from the DISPLACE consortium

Implementation science communications, 2021-08, Vol.2 (1), p.87-87, Article 87

2021

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DISPLACE study shows poor quality of transcranial doppler ultrasound for stroke risk screening in sickle cell anemia

Blood advances, 2024-07, Vol.8 (13), p.3444-3452

2024

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Needs Assessment for Patients with Sickle Cell Disease in South Carolina, 2012

Public health reports (1974), 2016-01, Vol.131 (1), p.108-116

2016

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Responsiveness of the PedsQL to pain-related changes in health-related quality of life in pediatric sickle cell disease

Journal of pediatric psychology, 2012-08, Vol.37 (7), p.798-807

2012

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Variation in Newborn Screening Follow-up Processes for Sickle Cell Disease

Blood, 2022-11, Vol.140 (Supplement 1), p.11120-11121

2022

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Sensitization to Acute Procedural Pain in Pediatric Sickle Cell Disease: Modulation by Painful Vaso-occlusive Episodes, Age, and Endothelin-1

The journal of pain, 2012-07, Vol.13 (7), p.656-665

2012

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Implementation of Two Developmental Screening Programs in Sickle Cell Disease Specialty Care

Patient and Family Opioid Decision-Making for Pain Management in Sickle Cell Disease: A Qualitative Study

Transcranial Doppler Screening in a Current Cohort of Children With Sickle Cell Anemia: Results From the DISPLACE Study

Changes in Care Delivery for Children With Sickle Cell Anemia During the COVID-19 Pandemic

Health-related Quality of Life in Children With Sickle Cell Disease Undergoing Chronic Red Cell Transfusion Therapy

Examining Biopsychosocial Factors in Relation to Multiple Pain Features in Pediatric Sickle Cell Disease

Practice patterns for stroke prevention using transcranial Doppler in sickle cell anemia: DISPLACE Consortium

Predictive validity of developmental screening in young children with sickle cell disease: a longitudinal follow‐up study

Sleep quality and pain in adolescents and young adults with sickle cell disease

Practice patterns for neuroimaging and transfusion therapy for management of neurologic complications in sickle cell anemia: DISPLACE consortium

Changes in Coping, Pain, and Activity After Cognitive-Behavioral Training: A Randomized Clinical Trial for Pediatric Sickle Cell Disease Using Smartphones

Practice Patterns for Addressing Developmental-Behavioral Concerns in Sickle Cell Specialty Care

Age Differences in Emergency Department Visits and Inpatient Hospitalizations in Preadolescent and Adolescent Youth with Autism Spectrum Disorders

Longitudinal Predictors of Pain in Pediatric Sickle Cell Disease

Current Methods of Newborn Screening Follow-Up for Sickle Cell Disease Are Highly Variable and without Quality Assurance: Results from the ENHANCE Study

Identifying patterns of neurocognitive dysfunction through direct comparison of children with leukemia, central nervous system tumors, and sickle cell disease

Incomplete implementation of guideline‐based stroke prevention therapy in sickle cell disease

Barriers and Facilitators to Chronic Red Cell Transfusion Therapy in Pediatric Sickle Cell Anemia

Modulation of pain in pediatric sickle cell disease: Understanding the balance between endothelin mediated vasoconstriction and apelin mediated vasodilation

Identified barriers and facilitators to stroke risk screening in children with sickle cell anemia: results from the DISPLACE consortium

DISPLACE study shows poor quality of transcranial doppler ultrasound for stroke risk screening in sickle cell anemia

Needs Assessment for Patients with Sickle Cell Disease in South Carolina, 2012

Responsiveness of the PedsQL to pain-related changes in health-related quality of life in pediatric sickle cell disease

Variation in Newborn Screening Follow-up Processes for Sickle Cell Disease

Sensitization to Acute Procedural Pain in Pediatric Sickle Cell Disease: Modulation by Painful Vaso-occlusive Episodes, Age, and Endothelin-1

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