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The new Childhood Arthritis and Rheumatology Research Alliance (CARRA) registry: design, rationale, and characteristics of patients enrolled in the first 12 months

Pediatric rheumatology online journal, 2017-04, Vol.15 (1), p.30-30, Article 30

2017

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The Systemic Juvenile Idiopathic Arthritis Cohort of the Childhood Arthritis and Rheumatology Research Alliance Registry: 2010-2013

Journal of rheumatology, 2016-09, Vol.43 (9), p.1755

2016

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Pediatric rheumatologists’ perspectives on diagnosis, treatment, and outcomes of Sjögren disease in children and adolescents

Pediatric rheumatology online journal, 2022-09, Vol.20 (1), p.79-79, Article 79

2022

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Construct validity of Patient-Reported Outcomes Measurement Information System Paediatric measures in juvenile idiopathic arthritis and systemic lupus erythematosus: cross-sectional evaluation

BMJ open, 2023-01, Vol.13 (1), p.e063675-e063675

2023

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Pediatric Rheumatology Comes of Age: Part II

Rheumatic diseases clinics of North America, 2022-02, Vol.48 (1), p.xix-xx

2022

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Pediatric Rheumatology Comes of Age: Part I

Rheumatic diseases clinics of North America, 2021-11, Vol.47 (4), p.xvii-xviii

2021

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Feasibility and Efficacy of Online Strategies to Recruit Parents of Children With Rheumatic Diseases for Research

ACR open rheumatology, 2022-05, Vol.4 (5), p.410-416

2022

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Parent Perceptions of Child Vulnerability Are Associated With Functioning and Health Care Use in Children With Chronic Pain

Journal of pain and symptom management, 2012-05, Vol.43 (5), p.953-960

2012

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Cardiovascular Health in Pediatric Rheumatologic Diseases

Rheumatic diseases clinics of North America, 2022-02, Vol.48 (1), p.157-181

2022

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A systematic review of sleep in pediatric pain populations

Journal of developmental and behavioral pediatrics, 2013-02, Vol.34 (2), p.120

2013

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Parent and Child Report of Pain and Fatigue in JIA: Does Disagreement between Parent and Child Predict Functional Outcomes?

Children (Basel), 2017-01, Vol.4 (2), p.11

2017

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Pilot study comparing the childhood arthritis and rheumatology research alliance consensus treatment plans for induction therapy of juvenile proliferative lupus nephritis

Pediatric rheumatology online journal, 2018-10, Vol.16 (1), p.65-65, Article 65

2018

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Self‐Reported Pain and Disease Symptoms Persist in Juvenile Idiopathic Arthritis Despite Treatment Advances: An Electronic Diary Study

Arthritis & rheumatology (Hoboken, N.J.), 2014-02, Vol.66 (2), p.462-469

2014

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CARRA: The Childhood Arthritis and Rheumatology Research Alliance

Rheumatic diseases clinics of North America, 2021-11, Vol.47 (4), p.531-543

2021

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A survey of national and multi-national registries and cohort studies in juvenile idiopathic arthritis: challenges and opportunities

Pediatric rheumatology online journal, 2017-04, Vol.15 (1), p.31-31, Article 31

2017

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Parent Pain Responses as Predictors of Daily Activities and Mood in Children with Juvenile Idiopathic Arthritis: The Utility of Electronic Diaries

Journal of pain and symptom management, 2010-03, Vol.39 (3), p.579-590

2010

Volltextzugriff (PDF)

Pharmacokinetics of Hydroxychloroquine in Pregnancies with Rheumatic Diseases

Clinical pharmacokinetics, 2019-04, Vol.58 (4), p.525-533

2019

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If patients are the true north, patient-centeredness should guide research

Nature reviews. Rheumatology, 2019-01, Vol.15 (1), p.5-6

2019

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The Health Education for Lupus Study: A Randomized Controlled Cognitive-Behavioral Intervention Targeting Psychosocial Adjustment and Quality of Life in Adolescent Females With Systemic Lupus Erythematosus

The American journal of the medical sciences, 2012-10, Vol.344 (4), p.274-282

2012

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Extrapolation of Adult Efficacy Data to Pediatric Systemic Lupus Erythematosus: Evaluating Similarities in Exposure–Response

Journal of clinical pharmacology, 2023-01, Vol.63 (1), p.105-118

2023

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Enthesitis-related arthritis is associated with higher pain intensity and poorer health status in comparison with other categories of juvenile idiopathic arthritis: the Childhood Arthritis and Rheumatology Research Alliance Registry

Journal of rheumatology, 2012-12, Vol.39 (12), p.2341

2012

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The Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans: Toward Comparative Effectiveness in the Pediatric Rheumatic Diseases

Arthritis & rheumatology (Hoboken, N.J.), 2018-05, Vol.70 (5), p.669-678

2018

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Patient perspectives on the linkage of health data for research: Insights from an online patient community questionnaire

International journal of medical informatics (Shannon, Ireland), 2019-07, Vol.127, p.9-17

2019

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New Medications Are Needed for Children With Juvenile Idiopathic Arthritis

Arthritis & rheumatology (Hoboken, N.J.), 2020-11, Vol.72 (11), p.1945-1951

2020

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Using social media to promote medication adherence

Nature reviews. Rheumatology, 2018-08, Vol.14 (8), p.445

2018

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The new Childhood Arthritis and Rheumatology Research Alliance (CARRA) registry: design, rationale, and characteristics of patients enrolled in the first 12 months

The Systemic Juvenile Idiopathic Arthritis Cohort of the Childhood Arthritis and Rheumatology Research Alliance Registry: 2010-2013

Pediatric rheumatologists’ perspectives on diagnosis, treatment, and outcomes of Sjögren disease in children and adolescents

Construct validity of Patient-Reported Outcomes Measurement Information System Paediatric measures in juvenile idiopathic arthritis and systemic lupus erythematosus: cross-sectional evaluation

Pediatric Rheumatology Comes of Age: Part II

Pediatric Rheumatology Comes of Age: Part I

Feasibility and Efficacy of Online Strategies to Recruit Parents of Children With Rheumatic Diseases for Research

Parent Perceptions of Child Vulnerability Are Associated With Functioning and Health Care Use in Children With Chronic Pain

Cardiovascular Health in Pediatric Rheumatologic Diseases

A systematic review of sleep in pediatric pain populations

Parent and Child Report of Pain and Fatigue in JIA: Does Disagreement between Parent and Child Predict Functional Outcomes?

Pilot study comparing the childhood arthritis and rheumatology research alliance consensus treatment plans for induction therapy of juvenile proliferative lupus nephritis

Self‐Reported Pain and Disease Symptoms Persist in Juvenile Idiopathic Arthritis Despite Treatment Advances: An Electronic Diary Study

CARRA: The Childhood Arthritis and Rheumatology Research Alliance

A survey of national and multi-national registries and cohort studies in juvenile idiopathic arthritis: challenges and opportunities

Parent Pain Responses as Predictors of Daily Activities and Mood in Children with Juvenile Idiopathic Arthritis: The Utility of Electronic Diaries

Pharmacokinetics of Hydroxychloroquine in Pregnancies with Rheumatic Diseases

If patients are the true north, patient-centeredness should guide research

The Health Education for Lupus Study: A Randomized Controlled Cognitive-Behavioral Intervention Targeting Psychosocial Adjustment and Quality of Life in Adolescent Females With Systemic Lupus Erythematosus

Extrapolation of Adult Efficacy Data to Pediatric Systemic Lupus Erythematosus: Evaluating Similarities in Exposure–Response

Enthesitis-related arthritis is associated with higher pain intensity and poorer health status in comparison with other categories of juvenile idiopathic arthritis: the Childhood Arthritis and Rheumatology Research Alliance Registry

The Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans: Toward Comparative Effectiveness in the Pediatric Rheumatic Diseases

Patient perspectives on the linkage of health data for research: Insights from an online patient community questionnaire

New Medications Are Needed for Children With Juvenile Idiopathic Arthritis

Using social media to promote medication adherence

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