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The National Hemophilia Foundation's State of the Science Research Summit: the foundation of a national research blueprint for inherited bleeding disorders

Expert review of hematology, 2023-03, Vol.16 (sup1), p.1-5

2023

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A pilot study of US HTC physical therapists' concordance of PT MASAC recommendations and educational needs

Haemophilia : the official journal of the World Federation of Hemophilia, 2024-01, Vol.30 (1), p.169-179

2024

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Lived experience experts: a name created by us for us

Expert review of hematology, 2023-03, Vol.16 (sup1), p.7-11

2023

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Building the blueprint: Formulating a community‐generated national plan for future research in inherited bleeding disorders

Haemophilia : the official journal of the World Federation of Hemophilia, 2022-09, Vol.28 (5), p.760-768

2022

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Big picture initiatives in bleeding disorders

Haemophilia : the official journal of the World Federation of Hemophilia, 2022-05, Vol.28 (S4), p.53-60

2022

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Bridging the gap: Survey highlights challenges and solutions in outreach and identification of people with inherited bleeding disorders

Haemophilia : the official journal of the World Federation of Hemophilia, 2023-11, Vol.29 (6), p.1456-1466

2023

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The National Hemophilia Foundation State of the Science Research Summit initiative: executive summary

Expert review of hematology, 2023-03, Vol.16 (sup1), p.129-134

2023

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Physical therapy within US HTCs: A multicentre survey of utilization, practice patterns and pain management approaches

Haemophilia : the official journal of the World Federation of Hemophilia, 2022-03, Vol.28 (2), p.343-350

2022

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Cross-cultural assessment of the influence of the COVID-19 pandemic on the perceived mental health and medical experiences of persons with inherited bleeding disorders and their parents/guardians

Expert review of hematology, 2023-12, Vol.16 (12), p.1107-1123

2023

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A descriptive study of United States bleeding disorders camps

Journal of Haemophilia Practice, 2021-03, Vol.8 (1), p.1-10

2021

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Home infusion teaching practices at federally funded hemophilia treatment centers in the United States of America

Research and practice in thrombosis and haemostasis, 2017-07, Vol.1 (1), p.81-89

2017

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Comparison of Projected Hemophilia a Populations Residing in Hospital Referral Regions with and without Hemophilia Treatment Centers in the US

Blood, 2023-11, Vol.142 (Supplement 1), p.3696-3696

2023

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Relationship between Perceived Social Support, Mental Health, Activity, and Chronic Pain in Persons with Inheritable Bleeding Disorders

Blood, 2022-11, Vol.140 (Supplement 1), p.13156-13158

2022

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National Hemophilia Foundation Enlists Diverse Patient Voices to Inform a National Research Blueprint for Inherited Bleeding Disorders

Blood, 2021-11, Vol.138 (Supplement 1), p.1904-1904

2021

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National Hemophilia Foundation Convenes Diverse Community Voices to Define an Actionable National Research Blueprint for Inherited Bleeding Disorders

Blood, 2021-11, Vol.138 (Supplement 1), p.4952-4952

2021

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Bleeding Disorder Data Registry Reveals Racial/Ethnic Disparities That Could Significantly Impact Patient Journey

Blood, 2021-11, Vol.138 (Supplement 1), p.5004-5004

2021

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National Hemophilia Foundation Champions a National Research Blueprint Defining a Community-Coordinated Research Ecosystem to Accelerate Progress in Inherited Bleeding Disorders

Blood, 2022-11, Vol.140 (Supplement 1), p.5021-5022

2022

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Walking the Walk: Inclusion of Lived Experience Experts in the Design of the National Hemophilia Foundation's National Research Blueprint for Those Living with Inherited Bleeding Disorders

Blood, 2023-11, Vol.142 (Supplement 1), p.7216-7216

2023

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National home infusion teaching guidelines will improve quality of care and patient outcomes in haemophilia treatment centres across the USA

Haemophilia : the official journal of the World Federation of Hemophilia, 2018-05

2018

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Pain in the Bleeding Disorders Community: Patient and Caregiver Perspectives

Blood, 2016-12, Vol.128 (22), p.2591-2591

2016

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High phosphate induces a pro-inflammatory response by vascular smooth muscle cells and modulation by vitamin D derivatives

Clinical science (1979), 2017-07, Vol.131 (13), p.1449-1463

2017

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Origen y evolución del modelo técnico-cultural en la enseñanza del periodismo en España (1887-1975)

Index.comunicacion, 2022-07, Vol.12 (2), p.173-206

2022

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The Longitudinal Effect of Early-Life Sensation Seeking on Gambling and Gambling Problems Among Puerto Rican Young Adults

Psychology of addictive behaviors, 2020-02, Vol.34 (1), p.201-208

2020

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Leishmania (Viannia) Infection in the Domestic Dog in Chaparral, Colombia

The American journal of tropical medicine and hygiene, 2011-05, Vol.84 (5), p.674-680

2011

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The National Hemophilia Foundation's State of the Science Research Summit: the foundation of a national research blueprint for inherited bleeding disorders

A pilot study of US HTC physical therapists' concordance of PT MASAC recommendations and educational needs

Lived experience experts: a name created by us for us

Building the blueprint: Formulating a community‐generated national plan for future research in inherited bleeding disorders

Big picture initiatives in bleeding disorders

Bridging the gap: Survey highlights challenges and solutions in outreach and identification of people with inherited bleeding disorders

The National Hemophilia Foundation State of the Science Research Summit initiative: executive summary

Physical therapy within US HTCs: A multicentre survey of utilization, practice patterns and pain management approaches

Cross-cultural assessment of the influence of the COVID-19 pandemic on the perceived mental health and medical experiences of persons with inherited bleeding disorders and their parents/guardians

A descriptive study of United States bleeding disorders camps

Home infusion teaching practices at federally funded hemophilia treatment centers in the United States of America

Comparison of Projected Hemophilia a Populations Residing in Hospital Referral Regions with and without Hemophilia Treatment Centers in the US

Relationship between Perceived Social Support, Mental Health, Activity, and Chronic Pain in Persons with Inheritable Bleeding Disorders

National Hemophilia Foundation Enlists Diverse Patient Voices to Inform a National Research Blueprint for Inherited Bleeding Disorders

National Hemophilia Foundation Convenes Diverse Community Voices to Define an Actionable National Research Blueprint for Inherited Bleeding Disorders

Bleeding Disorder Data Registry Reveals Racial/Ethnic Disparities That Could Significantly Impact Patient Journey

National Hemophilia Foundation Champions a National Research Blueprint Defining a Community-Coordinated Research Ecosystem to Accelerate Progress in Inherited Bleeding Disorders

Walking the Walk: Inclusion of Lived Experience Experts in the Design of the National Hemophilia Foundation's National Research Blueprint for Those Living with Inherited Bleeding Disorders

National home infusion teaching guidelines will improve quality of care and patient outcomes in haemophilia treatment centres across the USA

Pain in the Bleeding Disorders Community: Patient and Caregiver Perspectives

High phosphate induces a pro-inflammatory response by vascular smooth muscle cells and modulation by vitamin D derivatives

Origen y evolución del modelo técnico-cultural en la enseñanza del periodismo en España (1887-1975)

The Longitudinal Effect of Early-Life Sensation Seeking on Gambling and Gambling Problems Among Puerto Rican Young Adults

Leishmania (Viannia) Infection in the Domestic Dog in Chaparral, Colombia

Generating universal anti-CD19 CAR T cells with a defined memory phenotype by CRISPR/Cas9 editing and safety evaluation of the transcriptome

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