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The Precision Medicine Initiative’s All of Us Research Program: an agenda for research on its ethical, legal, and social issues

Genetics in medicine, 2017-07, Vol.19 (7), p.743-750

2017

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Cognitively unimpaired adults' reactions to disclosure of amyloid PET scan results

PloS one, 2020-02, Vol.15 (2), p.e0229137-e0229137

2020

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The relative contributions of disease label and disease prognosis to Alzheimer's stigma: A vignette-based experiment

Social science & medicine (1982), 2015-10, Vol.143, p.117-127

2015

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Parents’ Perceptions of the Usefulness of Chromosomal Microarray Analysis for Children with Autism Spectrum Disorders

Journal of autism and developmental disorders, 2015-10, Vol.45 (10), p.3262-3275

2015

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Developer Perspectives on Potential Harms of Machine Learning Predictive Analytics in Health Care: Qualitative Analysis

Journal of medical Internet research, 2023-11, Vol.25 (1), p.e47609-e47609

2023

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A Typology of Existing Machine Learning-Based Predictive Analytic Tools Focused on Reducing Costs and Improving Quality in Health Care: Systematic Search and Content Analysis

Journal of medical Internet research, 2021-06, Vol.23 (6), p.e26391

2021

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Bipolar Disorder, Genetic Risk, and Reproductive Decision-Making: A Qualitative Study of Social Media Discussion Boards

Qualitative health research, 2020-01, Vol.30 (2), p.293-302

2020

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“Set in Stone” or “Ray of Hope”: Parents’ Beliefs About Cause and Prognosis After Genomic Testing of Children Diagnosed with ASD

Journal of autism and developmental disorders, 2017-05, Vol.47 (5), p.1453-1463

2017

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Normative and conceptual ELSI research: what it is, and why it’s important

Genetics in medicine, 2019-02, Vol.21 (2), p.505-509

2019

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Factors affecting willingness to share electronic health data among California consumers

BMC medical ethics, 2017-04, Vol.18 (1), p.25-25, Article 25

2017

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Moral Engagement and Disengagement in Health Care AI Development

AJOB empirical bioethics, 2024-04, p.1-10

2024

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How Clinicians Conceptualize "Actionability" in Genomic Screening

Journal of personalized medicine, 2023-02, Vol.13 (2), p.290

2023

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Clinical trials and medical care: defining the therapeutic misconception

PLoS medicine, 2007-11, Vol.4 (11), p.e324-e324

2007

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Engineering Values Into Genetic Engineering: A Proposed Analytic Framework for Scientific Social Responsibility

American journal of bioethics, 2015-12, Vol.15 (12), p.18-24

2015

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Reflections on the cost of "low-cost" whole genome sequencing: framing the health policy debate

PLoS biology, 2013-11, Vol.11 (11), p.e1001699-e1001699

2013

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"What Is the FDA Going to Think?": Negotiating Values through Reflective and Strategic Category Work in Microbiome Science

Science, technology, & human values, 2015-01, Vol.40 (1), p.71-95

2015

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A Memory and Organizational Aid Improves Alzheimer Disease Research Consent Capacity: Results of a Randomized, Controlled Trial

The American journal of geriatric psychiatry, 2010-12, Vol.18 (12), p.1124-1132

2010

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Not in my AI: Moral engagement and disengagement in health care AI development

Pacific Symposium on Biocomputing. Pacific Symposium on Biocomputing, 2023, Vol.28, p.496

2023

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Toward a New Vocabulary of Human Genetic Variation

Science (American Association for the Advancement of Science), 2002-11, Vol.298 (5597), p.1337-1338

2002

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Comprehension of an Elevated Amyloid Positron Emission Tomography Biomarker Result by Cognitively Normal Older Adults

JAMA neurology, 2018-01, Vol.75 (1), p.44

2018

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Race and ancestry in biomedical research: exploring the challenges

Genome medicine, 2009-01, Vol.1 (1), p.8-8, Article 8

2009

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Genetics, Epidemiology, and Cancer Disparities: Is it Black and White?

Journal of clinical oncology, 2006-05, Vol.24 (14), p.2164-2169

2006

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What is in a cause? Exploring the relationship between genetic cause and felt stigma

Genetics in medicine, 2006-01, Vol.8 (1), p.33-42

2006

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Mandating Moral Reflection?

American journal of bioethics, 2017-01, Vol.17 (1), p.32-34

2017

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P4‐200: EFFECTS OF ADVANCES IN BIOMARKER‐BASED DIAGNOSIS AND DISEASE‐MODIFYING TREATMENT ON ALZHEIMER'S DISEASE STIGMA

Alzheimer's & dementia, 2019-07, Vol.15 (7S_Part_26)

2019

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The Precision Medicine Initiative’s All of Us Research Program: an agenda for research on its ethical, legal, and social issues

Cognitively unimpaired adults' reactions to disclosure of amyloid PET scan results

The relative contributions of disease label and disease prognosis to Alzheimer's stigma: A vignette-based experiment

Parents’ Perceptions of the Usefulness of Chromosomal Microarray Analysis for Children with Autism Spectrum Disorders

Developer Perspectives on Potential Harms of Machine Learning Predictive Analytics in Health Care: Qualitative Analysis

A Typology of Existing Machine Learning-Based Predictive Analytic Tools Focused on Reducing Costs and Improving Quality in Health Care: Systematic Search and Content Analysis

Bipolar Disorder, Genetic Risk, and Reproductive Decision-Making: A Qualitative Study of Social Media Discussion Boards

“Set in Stone” or “Ray of Hope”: Parents’ Beliefs About Cause and Prognosis After Genomic Testing of Children Diagnosed with ASD

Normative and conceptual ELSI research: what it is, and why it’s important

Factors affecting willingness to share electronic health data among California consumers

Moral Engagement and Disengagement in Health Care AI Development

How Clinicians Conceptualize "Actionability" in Genomic Screening

Clinical trials and medical care: defining the therapeutic misconception

Engineering Values Into Genetic Engineering: A Proposed Analytic Framework for Scientific Social Responsibility

Reflections on the cost of "low-cost" whole genome sequencing: framing the health policy debate

"What Is the FDA Going to Think?": Negotiating Values through Reflective and Strategic Category Work in Microbiome Science

A Memory and Organizational Aid Improves Alzheimer Disease Research Consent Capacity: Results of a Randomized, Controlled Trial

Not in my AI: Moral engagement and disengagement in health care AI development

Toward a New Vocabulary of Human Genetic Variation

Comprehension of an Elevated Amyloid Positron Emission Tomography Biomarker Result by Cognitively Normal Older Adults

Race and ancestry in biomedical research: exploring the challenges

Genetics, Epidemiology, and Cancer Disparities: Is it Black and White?

What is in a cause? Exploring the relationship between genetic cause and felt stigma

Mandating Moral Reflection?

P4‐200: EFFECTS OF ADVANCES IN BIOMARKER‐BASED DIAGNOSIS AND DISEASE‐MODIFYING TREATMENT ON ALZHEIMER'S DISEASE STIGMA

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