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Association of Medication Access Difficulty and COVID‐19–Related Distress With Disease Flares in Rheumatology Patients During the COVID‐19 Pandemic

Arthritis care & research (2010), 2021-08, Vol.73 (8), p.1162-1170

2021

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Relationship of regional ultraviolet index data with rash and systemic disease activity in youth with childhood-onset systemic lupus: results from the Childhood Arthritis and Rheumatology Research Alliance Registry

Pediatric rheumatology online journal, 2024-05, Vol.22 (1), p.54-54, Article 54

2024

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The case for open science: rare diseases

JAMIA open, 2020-10, Vol.3 (3), p.472-486

2020

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Mental health care for youth with rheumatologic diseases - bridging the gap

Pediatric rheumatology online journal, 2017-12, Vol.15 (1), p.85-85, Article 85

2017

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Reproductive Health Care for Female Adolescents Prescribed Mycophenolate at a Children’s Hospital: A 10-Year Retrospective Cohort Study

The Journal of pediatrics, 2023-02, Vol.253, p.252-258

2023

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The Effect of Psychiatric Comorbidity on Healthcare Utilization for Youth With Newly Diagnosed Systemic Lupus Erythematosus

Journal of rheumatology, 2023-02, Vol.50 (2), p.204-212

2023

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Discordant Perception of Disease Activity Between Providers and Adolescents with Systemic Lupus Erythematosus: A Cohort Study

The Journal of pediatrics, 2024-11, Vol.274, p.114216, Article 114216

2024

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Disparities in Childhood-Onset Lupus

Rheumatic diseases clinics of North America, 2020-11, Vol.46 (4), p.661-672

2020

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Psychological impact of the COVID-19 pandemic on healthcare worker parents

Journal of psychosomatic research, 2023-07, Vol.170, p.111359-111359, Article 111359

2023

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Depression And Anxiety In Patients With Juvenile Idiopathic Arthritis: Current Insights And Impact On Quality Of Life, A Systematic Review

Open access rheumatology: research and reviews, 2019-11, Vol.11, p.237-252

2019

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Health Equity Implications of Missing Data Among Youths With Childhood-Onset Systemic Lupus Erythematosus: A Proof-of-Concept Study in the Childhood Arthritis and Rheumatology Research Alliance Registry

Arthritis care & research (2010), 2023-11, Vol.75 (11), p.2285-2294

2023

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American College of Rheumatology Guidance for the Management of Pediatric Rheumatic Disease During the COVID‐19 Pandemic: Version 1

Arthritis & rheumatology (Hoboken, N.J.), 2020-11, Vol.72 (11), p.1809-1819

2020

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Correspondence on ‘EULAR recommendations for the management of systemic lupus erythematosus: 2023 update’ by Fanouriakis et al

Annals of the rheumatic diseases, 2024-09, p.ard-2024-226392

2024

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Disparities in Pediatric Rheumatic Diseases

Rheumatic diseases clinics of North America, 2022-02, Vol.48 (1), p.183-198

2022

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Adverse Childhood Experiences Are Associated with Childhood-Onset Arthritis in a National Sample of US Youth: An Analysis of the 2016 National Survey of Children's Health

The Journal of pediatrics, 2020-11, Vol.226, p.243-250.e2

2020

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Prioritized Agenda for Mental Health Research in Pediatric Rheumatology from the Childhood Arthritis and Rheumatology Research Alliance Mental Health Workgroup

Journal of rheumatology, 2020-11, Vol.47 (11), p.1687-1695

2020

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American College of Rheumatology Guidance for the Management of Pediatric Rheumatic Disease During the COVID‐19 Pandemic: Version 2

Arthritis & rheumatology (Hoboken, N.J.), 2021-08, Vol.73 (8), p.e46-e59

2021

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Multicenter Study of Utility and Acceptability of Depression and Anxiety Screening in Adolescents and Young Adults With Childhood‐Onset Systemic Lupus

Arthritis care & research (2010), 2023-04, Vol.75 (4), p.724-733

2023

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An ecological approach to understanding and addressing health inequities of systemic lupus erythematosus

Lupus, 2023-04, Vol.32 (5), p.612-624

2023

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Mental health in paediatric and adult myositis-related diseases: current state of research, interventions, and future steps from the MIHRA Psychological Impact Scientific Working Group

Clinical and experimental rheumatology, 2024-02, Vol.42 (2), p.413

2024

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Medication access difficulty and COVID-related distress are associated with disease flares in rheumatology patients during the COVID-19 pandemic

Arthritis care & research (2010), 2020-12, Vol.73 (8), p.1162-1170

2020

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Validation of the Attention, Memory, and Frontal Abilities Screening Test (AMFAST)

Assessment (Odessa, Fla.), 2020-10, Vol.27 (7), p.1502-1514

2020

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Biomarkers for kidney involvement in pediatric lupus

Biomarkers in medicine, 2015-06, Vol.9 (6), p.529-543

2015

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Biomarkers for CNS involvement in pediatric lupus

Biomarkers in medicine, 2015-06, Vol.9 (6), p.545-558

2015

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Disordered eating in adulthood is associated with reported weight loss attempts in childhood

The International journal of eating disorders, 2010-11, Vol.43 (7), p.663-666

2010

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Association of Medication Access Difficulty and COVID‐19–Related Distress With Disease Flares in Rheumatology Patients During the COVID‐19 Pandemic

Relationship of regional ultraviolet index data with rash and systemic disease activity in youth with childhood-onset systemic lupus: results from the Childhood Arthritis and Rheumatology Research Alliance Registry

The case for open science: rare diseases

Mental health care for youth with rheumatologic diseases - bridging the gap

Reproductive Health Care for Female Adolescents Prescribed Mycophenolate at a Children’s Hospital: A 10-Year Retrospective Cohort Study

The Effect of Psychiatric Comorbidity on Healthcare Utilization for Youth With Newly Diagnosed Systemic Lupus Erythematosus

Discordant Perception of Disease Activity Between Providers and Adolescents with Systemic Lupus Erythematosus: A Cohort Study

Disparities in Childhood-Onset Lupus

Psychological impact of the COVID-19 pandemic on healthcare worker parents

Depression And Anxiety In Patients With Juvenile Idiopathic Arthritis: Current Insights And Impact On Quality Of Life, A Systematic Review

Health Equity Implications of Missing Data Among Youths With Childhood-Onset Systemic Lupus Erythematosus: A Proof-of-Concept Study in the Childhood Arthritis and Rheumatology Research Alliance Registry

American College of Rheumatology Guidance for the Management of Pediatric Rheumatic Disease During the COVID‐19 Pandemic: Version 1

Correspondence on ‘EULAR recommendations for the management of systemic lupus erythematosus: 2023 update’ by Fanouriakis et al

Disparities in Pediatric Rheumatic Diseases

Adverse Childhood Experiences Are Associated with Childhood-Onset Arthritis in a National Sample of US Youth: An Analysis of the 2016 National Survey of Children's Health

Prioritized Agenda for Mental Health Research in Pediatric Rheumatology from the Childhood Arthritis and Rheumatology Research Alliance Mental Health Workgroup

American College of Rheumatology Guidance for the Management of Pediatric Rheumatic Disease During the COVID‐19 Pandemic: Version 2

Multicenter Study of Utility and Acceptability of Depression and Anxiety Screening in Adolescents and Young Adults With Childhood‐Onset Systemic Lupus

An ecological approach to understanding and addressing health inequities of systemic lupus erythematosus

Mental health in paediatric and adult myositis-related diseases: current state of research, interventions, and future steps from the MIHRA Psychological Impact Scientific Working Group

Medication access difficulty and COVID-related distress are associated with disease flares in rheumatology patients during the COVID-19 pandemic

Validation of the Attention, Memory, and Frontal Abilities Screening Test (AMFAST)

Biomarkers for kidney involvement in pediatric lupus

Biomarkers for CNS involvement in pediatric lupus

Disordered eating in adulthood is associated with reported weight loss attempts in childhood

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