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Return of individual genomic research results: what do consent forms tell participants?

European journal of human genetics : EJHG, 2016-11, Vol.24 (11), p.1524-1529

2016

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Researchers' Ethical Concerns About Using Adaptive Deep Brain Stimulation for Enhancement

Frontiers in human neuroscience, 2022-04, Vol.16, p.813922-813922

2022

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Do privacy and security regulations need a status update? Perspectives from an intergenerational survey

PloS one, 2017-09, Vol.12 (9), p.e0184525-e0184525

2017

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Parental Attitudes Toward Standard Newborn Screening and Newborn Genomic Sequencing: Findings From the BabySeq Study

Frontiers in genetics, 2022-04, Vol.13, p.867371-867371

2022

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Ask me later: deciding to have clinical exome trio sequencing for my critically ill child

Genetics in medicine, 2021-10, Vol.23 (10), p.1836-1837

Robinson, Jill Oliver

2021

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Challenges to Building a Gene Variant Commons to Assess Hereditary Cancer Risk: Results of a Modified Policy Delphi Panel Deliberation

Journal of personalized medicine, 2021-07, Vol.11 (7), p.646

2021

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Participants’ recall and understanding of genomic research and large-scale data sharing

Journal of empirical research on human research ethics, 2013-10, Vol.8 (4), p.42-52

2013

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Perceived Benefits, Risks, and Utility of Newborn Genomic Sequencing in the BabySeq Project

Pediatrics (Evanston), 2019-01, Vol.143 (Suppl 1), p.S6

2019

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Psychosocial Effect of Newborn Genomic Sequencing on Families in the BabySeq Project: A Randomized Clinical Trial

JAMA pediatrics, 2021-11, Vol.175 (11), p.1132

2021

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Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for pediatric diagnostic testing

Genetics in medicine, 2024-04, p.101146-101146, Article 101146

2024

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Pediatric data sharing in genomic research: attitudes and preferences of parents

Pediatrics (Evanston), 2014-04, Vol.133 (4), p.690

2014

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Comprehensive red blood cell and platelet antigen prediction from whole genome sequencing: proof of principle

Transfusion (Philadelphia, Pa.), 2016-03, Vol.56 (3), p.743-754

2016

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The MedSeq Project: a randomized trial of integrating whole genome sequencing into clinical medicine

Trials, 2014-03, Vol.15 (1), p.85-85, Article 85

2014

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Airmen and health-care providers' attitudes toward the use of genomic sequencing in the US Air Force: findings from the MilSeq Project

Genetics in medicine, 2020-12, Vol.22 (12), p.2003-2010

2020

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Experiences and attitudes of genome investigators regarding return of individual genetic test results

Genetics in medicine, 2013-11, Vol.15 (11), p.882-887

2013

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A systematic approach to the reporting of medically relevant findings from whole genome sequencing

BMC medical genetics, 2014-12, Vol.15 (1), p.134-134, Article 134

2014

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Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development

The patient : patient-centered outcomes research, 2022-05, Vol.15 (3), p.317-328

2022

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Airmen and Healthcare Providers’ attitudes toward the use of genomic sequencing in the US Air Force: Findings from the MilSeq Project

Genetics in medicine, 2020-08, Vol.22 (12), p.2003-2010

2020

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Summarizing polygenic risks for complex diseases in a clinical whole-genome report

Genetics in medicine, 2015-07, Vol.17 (7), p.536-544

2015

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Participants and Study Decliners’ Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing

Journal of empirical research on human research ethics, 2016-02, Vol.11 (1), p.21-30

2016

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MEDICAL INFORMATION COMMONS: CONCEPTUAL, LEGAL AND ETHICAL CONSIDERATIONS FOR STAKEHOLDERS

Bioinformatics, Medical Informatics and the Law, 2022

2022

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'Someday it will be the norm': physician perspectives on the utility of genome sequencing for patient care in the MedSeq Project

Personalized medicine, 2015, Vol.12 (1), p.23-32

2015

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'Someday it will be the norm': physician perspectives on the utility of genome sequencing for patient care in the MedSeqProject

Personalized medicine, 2015-01, Vol.12 (1), p.23-32

2015

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The price of whole-genome sequencing may be decreasing, but who will be sequenced?

Personalized medicine, 2017-05, Vol.14 (3), p.203-211

2017

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Participant and study decliners’ perspectives about the risks of participating in a clinical trial of whole genome sequencing

Journal of empirical research on human research ethics, 2016-02, Vol.11 (1), p.21-30

2016

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Return of individual genomic research results: what do consent forms tell participants?

Researchers' Ethical Concerns About Using Adaptive Deep Brain Stimulation for Enhancement

Do privacy and security regulations need a status update? Perspectives from an intergenerational survey

Parental Attitudes Toward Standard Newborn Screening and Newborn Genomic Sequencing: Findings From the BabySeq Study

Ask me later: deciding to have clinical exome trio sequencing for my critically ill child

Challenges to Building a Gene Variant Commons to Assess Hereditary Cancer Risk: Results of a Modified Policy Delphi Panel Deliberation

Participants’ recall and understanding of genomic research and large-scale data sharing

Perceived Benefits, Risks, and Utility of Newborn Genomic Sequencing in the BabySeq Project

Psychosocial Effect of Newborn Genomic Sequencing on Families in the BabySeq Project: A Randomized Clinical Trial

Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for pediatric diagnostic testing

Pediatric data sharing in genomic research: attitudes and preferences of parents

Comprehensive red blood cell and platelet antigen prediction from whole genome sequencing: proof of principle

The MedSeq Project: a randomized trial of integrating whole genome sequencing into clinical medicine

Airmen and health-care providers' attitudes toward the use of genomic sequencing in the US Air Force: findings from the MilSeq Project

Experiences and attitudes of genome investigators regarding return of individual genetic test results

A systematic approach to the reporting of medically relevant findings from whole genome sequencing

Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development

Airmen and Healthcare Providers’ attitudes toward the use of genomic sequencing in the US Air Force: Findings from the MilSeq Project

Summarizing polygenic risks for complex diseases in a clinical whole-genome report

Participants and Study Decliners’ Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing

MEDICAL INFORMATION COMMONS: CONCEPTUAL, LEGAL AND ETHICAL CONSIDERATIONS FOR STAKEHOLDERS

'Someday it will be the norm': physician perspectives on the utility of genome sequencing for patient care in the MedSeq Project

'Someday it will be the norm': physician perspectives on the utility of genome sequencing for patient care in the MedSeqProject

The price of whole-genome sequencing may be decreasing, but who will be sequenced?

Participant and study decliners’ perspectives about the risks of participating in a clinical trial of whole genome sequencing

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