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Pediatric Patient-Reported Outcome Instruments for Research to Support Medical Product Labeling: Report of the ISPOR PRO Good Research Practices for the Assessment of Children and Adolescents Task Force

Value in health, 2013-06, Vol.16 (4), p.461-479

2013

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Factors Driving Patient Preferences for Growth Hormone Deficiency (GHD) Injection Regimen and Injection Device Features: A Discrete Choice Experiment

Patient preference and adherence, 2020-01, Vol.14, p.781-793

2020

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Multinational Study of Reliability and Validity of the King's Health Questionnaire in Patients with Overactive Bladder

Quality of life research, 2003-06, Vol.12 (4), p.427-442

2003

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Psychometric assessment of the Injection Pen Assessment Questionnaire (IPAQ): measuring ease of use and preference with injection pens for human growth hormone

Health and quality of life outcomes, 2012-10, Vol.10 (1), p.126-126

2012

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Real-world outcomes associated with standard half-life and extended half-life factor replacement products for treatment of haemophilia A and B

Blood coagulation & fibrinolysis, 2020-04, Vol.31 (3), p.186-192

2020

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Real-World Analysis of Dispensed IUs of Coagulation Factor IX and Resultant Expenditures in Hemophilia B Patients Receiving Standard Half-Life Versus Extended Half-Life Products and Those Switching from Standard Half-Life to Extended Half-Life Products

Journal of managed care & specialty pharmacy, 2018-07, Vol.24 (7), p.643-653

2018

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Photodynamic therapy with verteporfin in age‐related macular degeneration: a systematic review of efficacy, safety, treatment modifications and pharmacoeconomic properties

Acta ophthalmologica (Oxford, England), 2009-03, Vol.87 (2), p.118-132

2009

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Changes in vision- and health-related quality of life in patients with diabetic macular edema treated with pegaptanib sodium or sham

Investigative ophthalmology & visual science, 2011-09, Vol.52 (10), p.7498-7505

2011

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Development and Psychometric Evaluation of the Life Interference Questionnaire for Growth Hormone Deficiency (LIQ-GHD) to Assess Growth Hormone Injection Burden in Children and Adults

The patient : patient-centered outcomes research, 2020-06, Vol.13 (3), p.289-306

2020

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Cost-Effectiveness Model for Neovascular Age-Related Macular Degeneration: Comparing Early and Late Treatment with Pegaptanib Sodium Based on Visual Acuity

Value in health, 2008-07, Vol.11 (4), p.563-574

2008

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How much is enough and who says so? The case of the King's Health Questionnaire and overactive bladder

BJOG : an international journal of obstetrics and gynaecology, 2004-06, Vol.111 (6), p.605-612

2004

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Predicting EQ-5D Utility Scores from the 25-Item National Eye Institute Vision Function Questionnaire (NEI-VFQ 25) in Patients with Age-Related Macular Degeneration

Quality of life research, 2009-09, Vol.18 (7), p.801-813

2009

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A Brief Version of the Quality of Life in Short Stature Youth Questionnaire - the QoLISSY-Brief

Child indicators research, 2016-12, Vol.9 (4), p.971-984

2016

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The Validation of Patient-Rated Global Assessments of Treatment Benefit, Satisfaction, and Willingness to Continue—The BSW

Value in health, 2005-11, Vol.8, p.S25-S34

2005

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Patient preferences for diabetic retinopathy health States

Investigative ophthalmology & visual science, 2010-07, Vol.51 (7), p.3387-3394

2010

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Comparison of Length of Hospital Stay for Patients with Known or Suspected Methicillin-Resistant Staphylococcus Species Infections Treated with Linezolid or Vancomycin: A Randomized, Multicenter Trial

Pharmacotherapy, 2001-03, Vol.21 (3), p.263-274

2001

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How much is enough and who says so?

BJOG : an international journal of obstetrics and gynaecology, 2004-06, Vol.111 (6), p.605-612

2004

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Results from an international multicenter trial evaluating the ease-of-use of and preference for a newly developed disposable injection pen for the treatment of growth hormone deficiency in treatment-naïve children and adults

Medical devices (Auckland, N.Z.), 2014-01, Vol.7 (default), p.61-71

2014

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Health-related quality of life of patients receiving extended-release tolterodine for overactive bladder

The American journal of managed care, 2002-12, Vol.8 (19 Suppl), p.S608-S615

2002

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Long-term health-related quality of life of patients receiving extended-release tolterodine for overactive bladder

The American journal of managed care, 2002-12, Vol.8 (19 Suppl), p.S616-S630

2002

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Real-World Expenditures Associated with Treatment of Hemophilia a and B Patients with Standard and Extended Half-Life Factor Replacement Products in the US

Blood, 2017-12, Vol.130, p.2351-2351

2017

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A New Measure Assessing Recovery from a Sickle Cell Crisis

Blood, 2016-12, Vol.128 (22), p.2392-2392

2016

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Real World Data Analysis of Coagulation Factor IX Costs in Specific Patients with Hemophilia B Switching from Standard Half-Life to Extended Half-Life Products

Blood, 2016-12, Vol.128 (22), p.4963-4963

2016

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Defining Vaso-Occlusive Crises in Sickle Cell Disease from the Perspective of the Patient: Development of a New Toolbox to Measure Treatment Outcomes

Blood, 2017-12, Vol.130, p.3415-3415

2017

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Understanding patient and caregiver perspectives using a dyad approach for data collection: A systematic review of the literature

Patient experience journal, 2022-08, Vol.9 (2), p.71-81

2022

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Pediatric Patient-Reported Outcome Instruments for Research to Support Medical Product Labeling: Report of the ISPOR PRO Good Research Practices for the Assessment of Children and Adolescents Task Force

Factors Driving Patient Preferences for Growth Hormone Deficiency (GHD) Injection Regimen and Injection Device Features: A Discrete Choice Experiment

Multinational Study of Reliability and Validity of the King's Health Questionnaire in Patients with Overactive Bladder

Psychometric assessment of the Injection Pen Assessment Questionnaire (IPAQ): measuring ease of use and preference with injection pens for human growth hormone

Real-world outcomes associated with standard half-life and extended half-life factor replacement products for treatment of haemophilia A and B

Real-World Analysis of Dispensed IUs of Coagulation Factor IX and Resultant Expenditures in Hemophilia B Patients Receiving Standard Half-Life Versus Extended Half-Life Products and Those Switching from Standard Half-Life to Extended Half-Life Products

Photodynamic therapy with verteporfin in age‐related macular degeneration: a systematic review of efficacy, safety, treatment modifications and pharmacoeconomic properties

Changes in vision- and health-related quality of life in patients with diabetic macular edema treated with pegaptanib sodium or sham

Development and Psychometric Evaluation of the Life Interference Questionnaire for Growth Hormone Deficiency (LIQ-GHD) to Assess Growth Hormone Injection Burden in Children and Adults

Cost-Effectiveness Model for Neovascular Age-Related Macular Degeneration: Comparing Early and Late Treatment with Pegaptanib Sodium Based on Visual Acuity

How much is enough and who says so? The case of the King's Health Questionnaire and overactive bladder

Predicting EQ-5D Utility Scores from the 25-Item National Eye Institute Vision Function Questionnaire (NEI-VFQ 25) in Patients with Age-Related Macular Degeneration

A Brief Version of the Quality of Life in Short Stature Youth Questionnaire - the QoLISSY-Brief

The Validation of Patient-Rated Global Assessments of Treatment Benefit, Satisfaction, and Willingness to Continue—The BSW

Patient preferences for diabetic retinopathy health States

Comparison of Length of Hospital Stay for Patients with Known or Suspected Methicillin-Resistant Staphylococcus Species Infections Treated with Linezolid or Vancomycin: A Randomized, Multicenter Trial

How much is enough and who says so?

Results from an international multicenter trial evaluating the ease-of-use of and preference for a newly developed disposable injection pen for the treatment of growth hormone deficiency in treatment-naïve children and adults

Health-related quality of life of patients receiving extended-release tolterodine for overactive bladder

Long-term health-related quality of life of patients receiving extended-release tolterodine for overactive bladder

Real-World Expenditures Associated with Treatment of Hemophilia a and B Patients with Standard and Extended Half-Life Factor Replacement Products in the US

A New Measure Assessing Recovery from a Sickle Cell Crisis

Real World Data Analysis of Coagulation Factor IX Costs in Specific Patients with Hemophilia B Switching from Standard Half-Life to Extended Half-Life Products

Defining Vaso-Occlusive Crises in Sickle Cell Disease from the Perspective of the Patient: Development of a New Toolbox to Measure Treatment Outcomes

Understanding patient and caregiver perspectives using a dyad approach for data collection: A systematic review of the literature

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