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Development and validation of Gaucher disease type 1 (GD1)-specific patient-reported outcome measures (PROMs) for clinical monitoring and for clinical trials

Orphanet journal of rare diseases, 2022-01, Vol.17 (1), p.9-9, Article 9

2022

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Development and validation of a quality of life and treatment satisfaction measure in canine osteoarthritis

Frontiers in veterinary science, 2024-05, Vol.11, p.1377019-1377019

2024

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The Humanistic Burden of Small Cell Lung Cancer (SCLC): A Systematic Review of Health-Related Quality of Life (HRQoL) Literature

Frontiers in pharmacology, 2017-06, Vol.8, p.339-339

2017

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Patient Experience of Lichen Planus: A Qualitative Exploration of Signs, Symptoms, and Health-Related Quality of Life Impacts

Dermatology and therapy, 2023-09, Vol.13 (9), p.2001-2017

2023

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Qualitative Exploration of the Visual Function Impairments and Health-Related Quality of Life Impacts of Amblyopia in Adult and Pediatric Populations

Ophthalmology and therapy, 2023-10, Vol.12 (5), p.2505-2528

2023

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The Amblyopia Quality of Life (AmbQoL): Development and Content Validation of a Novel Health-Related Quality of Life Instrument for Use in Adult and Pediatric Amblyopia Populations

Ophthalmology and therapy, 2023-04, Vol.12 (2), p.1281-1313

2023

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A qualitative exploration of the patient experience of erosive and non-erosive hand osteoarthritis

Journal of patient-reported outcomes, 2021-02, Vol.5 (1), p.18-18, Article 18

2021

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Development and validation of the angiotensin-converting enzyme inhibitor (ACEI) induced angioedema investigator rating scale and proposed discharge criteria

BMC health services research, 2017-05, Vol.17 (1), p.366-366, Article 366

2017

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Content validity of patient-reported outcomes for use in lower-risk myelodysplastic syndromes

Journal of patient-reported outcomes, 2020-08, Vol.4 (1), p.69-69, Article 69

2020

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The endometriosis daily diary: qualitative research to explore the patient experience of endometriosis and inform the development of a patient-reported outcome (PRO) for endometriosis-related pain

Journal of patient-reported outcomes, 2022-01, Vol.6 (1), p.5-5, Article 5

2022

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Measuring dengue illness intensity: Development and content validity of the dengue virus daily diary (DENV-DD)

Journal of patient-reported outcomes, 2023-08, Vol.7 (1), p.84-84, Article 84

2023

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The impact of gout as described by patients, using the lens of The International Classification of Functioning, Disability and Health (ICF): a qualitative study

BMC rheumatology, 2020-08, Vol.4 (1), p.50-9, Article 50

2020

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Understanding and measuring symptoms and health status in asthma COPD overlap: content validity of the EXACT and SGRQ

Journal of patient-reported outcomes, 2018-04, Vol.2 (1), p.18-18, Article 18

2018

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Assessing the Comparability of Paper and Electronic Versions of the EORTC QOL Module for Head and Neck Cancer: A Qualitative Study

JMIR cancer, 2017-05, Vol.3 (1), p.e7-e7

2017

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Gaucher disease (GD)-specific patient-reported outcome (PRO) measures for clinical monitoring and for clinical trials

Molecular genetics and metabolism, 2019-02, Vol.126 (2), p.S52-S52

2019

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A fork in the road: A mixed methods study exploring why older adults with acute myeloid leukemia choose different treatment paths

Journal of clinical oncology, 2020-05, Vol.38 (15_suppl), p.7520-7520

2020

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A mixed methods study exploring the role of perceived side effects on treatment decision-making in older adults with acute myeloid leukemia (AML)

Journal of clinical oncology, 2021-05, Vol.39 (15_suppl), p.7016-7016

2021

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What Outcomes are Important for Gout Patients? In-Depth Qualitative Research into the Gout Patient Experience to Determine Optimal Endpoints for Evaluating Therapeutic Interventions

The patient : patient-centered outcomes research, 2017-02, Vol.10 (1), p.65-79

2017

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Patient, Family Member and Physician Perspectives and Experiences with AML Treatment Decision-Making

Oncology and therapy, 2022-12, Vol.10 (2), p.421-440

2022

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The Managing Advanced Cancer Pain Together (MACPT) conversation tool: an evaluation of use in clinical practice

Pain management, 2022-05, Vol.12 (4), p.435-446

2022

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Effects of the synthetic estrogen 17α-ethinylestradiol on the life-cycle of the fathead minnow (Pimephales promelas)

Environmental toxicology and chemistry, 2001-06, Vol.20 (6), p.1216-1227

2001

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Myxobacteria-Derived Outer Membrane Vesicles: Potential Applicability Against Intracellular Infections

Cells (Basel, Switzerland), 2020-01, Vol.9 (1), p.194

2020

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Health, risk, and adversity

NED - New edition, 1, 2008

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Development of the "Teamwork in Endoscopy Assessment Module for Endoscopic Non-Technical Skills" (TEAM-ENTS) behavioral marker system

Endoscopy, 2023-05, Vol.55 (5), p.403-412

2023

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Ecosystem Restoration: What, Why, How, and Where?

Frontiers for young minds, 2022-11, Vol.10

2022

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Development and validation of Gaucher disease type 1 (GD1)-specific patient-reported outcome measures (PROMs) for clinical monitoring and for clinical trials

Development and validation of a quality of life and treatment satisfaction measure in canine osteoarthritis

The Humanistic Burden of Small Cell Lung Cancer (SCLC): A Systematic Review of Health-Related Quality of Life (HRQoL) Literature

Patient Experience of Lichen Planus: A Qualitative Exploration of Signs, Symptoms, and Health-Related Quality of Life Impacts

Qualitative Exploration of the Visual Function Impairments and Health-Related Quality of Life Impacts of Amblyopia in Adult and Pediatric Populations

The Amblyopia Quality of Life (AmbQoL): Development and Content Validation of a Novel Health-Related Quality of Life Instrument for Use in Adult and Pediatric Amblyopia Populations

A qualitative exploration of the patient experience of erosive and non-erosive hand osteoarthritis

Development and validation of the angiotensin-converting enzyme inhibitor (ACEI) induced angioedema investigator rating scale and proposed discharge criteria

Content validity of patient-reported outcomes for use in lower-risk myelodysplastic syndromes

The endometriosis daily diary: qualitative research to explore the patient experience of endometriosis and inform the development of a patient-reported outcome (PRO) for endometriosis-related pain

Measuring dengue illness intensity: Development and content validity of the dengue virus daily diary (DENV-DD)

The impact of gout as described by patients, using the lens of The International Classification of Functioning, Disability and Health (ICF): a qualitative study

Understanding and measuring symptoms and health status in asthma COPD overlap: content validity of the EXACT and SGRQ

Assessing the Comparability of Paper and Electronic Versions of the EORTC QOL Module for Head and Neck Cancer: A Qualitative Study

Gaucher disease (GD)-specific patient-reported outcome (PRO) measures for clinical monitoring and for clinical trials

A fork in the road: A mixed methods study exploring why older adults with acute myeloid leukemia choose different treatment paths

A mixed methods study exploring the role of perceived side effects on treatment decision-making in older adults with acute myeloid leukemia (AML)

What Outcomes are Important for Gout Patients? In-Depth Qualitative Research into the Gout Patient Experience to Determine Optimal Endpoints for Evaluating Therapeutic Interventions

Patient, Family Member and Physician Perspectives and Experiences with AML Treatment Decision-Making

The Managing Advanced Cancer Pain Together (MACPT) conversation tool: an evaluation of use in clinical practice

Effects of the synthetic estrogen 17α-ethinylestradiol on the life-cycle of the fathead minnow (Pimephales promelas)

Myxobacteria-Derived Outer Membrane Vesicles: Potential Applicability Against Intracellular Infections

Health, risk, and adversity

Development of the "Teamwork in Endoscopy Assessment Module for Endoscopic Non-Technical Skills" (TEAM-ENTS) behavioral marker system

Ecosystem Restoration: What, Why, How, and Where?

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