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Integrating Ethics and Equity with Economics and Effectiveness for newborn screening in the genomic age: A qualitative study protocol of stakeholder perspectives

PloS one, 2024-03, Vol.19 (3), p.e0299336-e0299336

2024

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Implementation considerations for offering personal genomic risk information to the public: a qualitative study

BMC public health, 2020-06, Vol.20 (1), p.1-1028, Article 1028

2020

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The promise of public health ethics for precision medicine: the case of newborn preventive genomic sequencing

Human genetics, 2022-05, Vol.141 (5), p.1035-1043

Newson, Ainsley J.

2022

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Ethical and legal issues in mitochondrial transfer

EMBO molecular medicine, 2016-06, Vol.8 (6), p.589-591

2016

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Acceptability of risk‐stratified population screening across cancer types: Qualitative interviews with the Australian public

Health expectations : an international journal of public participation in health care and health policy, 2021-08, Vol.24 (4), p.1326-1336

2021

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Human Genetics Society of Australasia Position Statement: Predictive and Presymptomatic Genetic Testing in Adults and Children

Twin research and human genetics, 2020-06, Vol.23 (3), p.184-189

2020

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Dynamic Consent: An Evaluation and Reporting Framework

Journal of empirical research on human research ethics, 2020-07, Vol.15 (3), p.175-186

2020

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Patient perspectives on molecular tumor profiling: "Why wouldn't you?"

BMC cancer, 2019-07, Vol.19 (1), p.753-753, Article 753

2019

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Advanced cancer patient preferences for receiving molecular profiling results

Psycho-oncology (Chichester, England), 2020-10, Vol.29 (10), p.1533-1539

2020

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Disclosure to genetic relatives without consent - Australian genetic professionals' awareness of the health privacy law

BMC medical ethics, 2020-02, Vol.21 (1), p.13-13, Article 13

2020

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Dynamics and ethics of comprehensive preimplantation genetic testing: a review of the challenges

Human reproduction update, 2013-07, Vol.19 (4), p.366-375

2013

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The need for ethics as well as evidence in evidence-based medicine

Journal of clinical epidemiology, 2016-09, Vol.77, p.7-10

2016

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Liminality between direct and family-mediated contact in the communication of genetic information to at-risk relatives

European journal of human genetics : EJHG, 2024-05, Vol.32 (5), p.477-478

2024

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Ethical issues in reproductive genetic carrier screening

Medical journal of Australia, 2021-03, Vol.214 (4), p.165-167.e1

2021

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Reproductive carrier screening: responding to the eugenics critique

Journal of medical ethics, 2022-12, Vol.48 (12), p.1060-1067

2022

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Views of the Australian public on the delivery of risk-stratified cancer screening in the population: a qualitative study

Public Health Research & Practice, 2023-07, Vol.33 (2)

2023

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Is there a duty to routinely reinterpret genomic variant classifications?

Journal of medical ethics, 2023-12, Vol.49 (12), p.808-814

2023

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"Who is watching the watchdog?": ethical perspectives of sharing health-related data for precision medicine in Singapore

BMC medical ethics, 2020-11, Vol.21 (1), p.118-118, Article 118

2020

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Why should ethics approval be required prior to publication of health promotion research?

Health promotion journal of Australia, 2015-12, Vol.26 (3), p.170-175

2015

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Ethical preparedness in the clinical genomics laboratory: the value of embedded ethics expertise

Journal of medical ethics, 2024-08, Vol.50 (8), p.530-531

2024

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Is It Just for a Screening Program to Give People All the Information They Want?

American journal of bioethics, 2023-07, Vol.23 (7), p.34-42

2023

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The PiGeOn project: protocol for a longitudinal study examining psychosocial, behavioural and ethical issues and outcomes in cancer tumour genomic profiling

BMC cancer, 2018-04, Vol.18 (1), p.389-389, Article 389

2018

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Rapid Challenges: Ethics and Genomic Neonatal Intensive Care

Pediatrics (Evanston), 2019-01, Vol.143 (Suppl 1), p.S14-S21

2019

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Ethically robust reproductive genetic carrier screening needs to measure outcomes that matter to patients

European journal of human genetics : EJHG, 2022-07, Vol.30 (7), p.754-755

2022

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Taking seriousness seriously in genomic health

European journal of human genetics : EJHG, 2022-02, Vol.30 (2), p.140-141

2022

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Integrating Ethics and Equity with Economics and Effectiveness for newborn screening in the genomic age: A qualitative study protocol of stakeholder perspectives

Implementation considerations for offering personal genomic risk information to the public: a qualitative study

The promise of public health ethics for precision medicine: the case of newborn preventive genomic sequencing

Ethical and legal issues in mitochondrial transfer

Acceptability of risk‐stratified population screening across cancer types: Qualitative interviews with the Australian public

Human Genetics Society of Australasia Position Statement: Predictive and Presymptomatic Genetic Testing in Adults and Children

Dynamic Consent: An Evaluation and Reporting Framework

Patient perspectives on molecular tumor profiling: "Why wouldn't you?"

Advanced cancer patient preferences for receiving molecular profiling results

Disclosure to genetic relatives without consent - Australian genetic professionals' awareness of the health privacy law

Dynamics and ethics of comprehensive preimplantation genetic testing: a review of the challenges

The need for ethics as well as evidence in evidence-based medicine

Liminality between direct and family-mediated contact in the communication of genetic information to at-risk relatives

Ethical issues in reproductive genetic carrier screening

Reproductive carrier screening: responding to the eugenics critique

Views of the Australian public on the delivery of risk-stratified cancer screening in the population: a qualitative study

Is there a duty to routinely reinterpret genomic variant classifications?

"Who is watching the watchdog?": ethical perspectives of sharing health-related data for precision medicine in Singapore

Why should ethics approval be required prior to publication of health promotion research?

Ethical preparedness in the clinical genomics laboratory: the value of embedded ethics expertise

Is It Just for a Screening Program to Give People All the Information They Want?

The PiGeOn project: protocol for a longitudinal study examining psychosocial, behavioural and ethical issues and outcomes in cancer tumour genomic profiling

Rapid Challenges: Ethics and Genomic Neonatal Intensive Care

Ethically robust reproductive genetic carrier screening needs to measure outcomes that matter to patients

Taking seriousness seriously in genomic health

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