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Integrating Ethics and Equity with Economics and Effectiveness for newborn screening in the genomic age: A qualitative study protocol of stakeholder perspectives

PloS one, 2024-03, Vol.19 (3), p.e0299336-e0299336

2024

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The promise of public health ethics for precision medicine: the case of newborn preventive genomic sequencing

Human genetics, 2022-05, Vol.141 (5), p.1035-1043

Newson, Ainsley J.

2022

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Implementation considerations for offering personal genomic risk information to the public: a qualitative study

BMC public health, 2020-06, Vol.20 (1), p.1-1028, Article 1028

2020

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Acceptability of risk‐stratified population screening across cancer types: Qualitative interviews with the Australian public

Health expectations : an international journal of public participation in health care and health policy, 2021-08, Vol.24 (4), p.1326-1336

2021

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Human Genetics Society of Australasia Position Statement: Predictive and Presymptomatic Genetic Testing in Adults and Children

Twin research and human genetics, 2020-06, Vol.23 (3), p.184-189

2020

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Patient perspectives on molecular tumor profiling: "Why wouldn't you?"

BMC cancer, 2019-07, Vol.19 (1), p.753-753, Article 753

2019

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Advanced cancer patient preferences for receiving molecular profiling results

Psycho-oncology (Chichester, England), 2020-10, Vol.29 (10), p.1533-1539

2020

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Dynamics and ethics of comprehensive preimplantation genetic testing: a review of the challenges

Human reproduction update, 2013-07, Vol.19 (4), p.366-375

2013

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Disclosure to genetic relatives without consent - Australian genetic professionals' awareness of the health privacy law

BMC medical ethics, 2020-02, Vol.21 (1), p.13-13, Article 13

2020

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The need for ethics as well as evidence in evidence-based medicine

Journal of clinical epidemiology, 2016-09, Vol.77, p.7-10

2016

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Dynamic Consent: An Evaluation and Reporting Framework

Journal of empirical research on human research ethics, 2020-07, Vol.15 (3), p.175-186

2020

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Liminality between direct and family-mediated contact in the communication of genetic information to at-risk relatives

European journal of human genetics : EJHG, 2024-05, Vol.32 (5), p.477-478

2024

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Ethical issues in reproductive genetic carrier screening

Medical journal of Australia, 2021-03, Vol.214 (4), p.165-167.e1

2021

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Views of the Australian public on the delivery of risk-stratified cancer screening in the population: a qualitative study

Public Health Research & Practice, 2023-07, Vol.33 (2)

2023

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Why should ethics approval be required prior to publication of health promotion research?

Health promotion journal of Australia, 2015-12, Vol.26 (3), p.170-175

2015

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"Who is watching the watchdog?": ethical perspectives of sharing health-related data for precision medicine in Singapore

BMC medical ethics, 2020-11, Vol.21 (1), p.118-118, Article 118

2020

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Motivations and Barriers to Participation in a Randomized Trial on Melanoma Genomic Risk: A Mixed-Methods Analysis

Journal of personalized medicine, 2022-10, Vol.12 (10), p.1704

2022

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Is It Just for a Screening Program to Give People All the Information They Want?

American journal of bioethics, 2023-07, Vol.23 (7), p.34-42

2023

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The PiGeOn project: protocol for a longitudinal study examining psychosocial, behavioural and ethical issues and outcomes in cancer tumour genomic profiling

BMC cancer, 2018-04, Vol.18 (1), p.389-389, Article 389

2018

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The PiGeOn project: protocol of a longitudinal study examining psychosocial and ethical issues and outcomes in germline genomic sequencing for cancer

BMC cancer, 2018-04, Vol.18 (1), p.454-454, Article 454

2018

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Ethically robust reproductive genetic carrier screening needs to measure outcomes that matter to patients

European journal of human genetics : EJHG, 2022-07, Vol.30 (7), p.754-755

2022

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Taking seriousness seriously in genomic health

European journal of human genetics : EJHG, 2022-02, Vol.30 (2), p.140-141

2022

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Ethical aspects of the changing landscape for spinal muscular atrophy management in Australia

Australian journal of general practice, 2022-03, Vol.51 (3), p.131-135

2022

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Rapid Challenges: Ethics and Genomic Neonatal Intensive Care

Pediatrics (Evanston), 2019-01, Vol.143 (Suppl 1), p.S14

2019

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Ethical considerations in gene selection for reproductive carrier screening

Human genetics, 2022-05, Vol.141 (5), p.1003-1012

2022

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Integrating Ethics and Equity with Economics and Effectiveness for newborn screening in the genomic age: A qualitative study protocol of stakeholder perspectives

The promise of public health ethics for precision medicine: the case of newborn preventive genomic sequencing

Implementation considerations for offering personal genomic risk information to the public: a qualitative study

Acceptability of risk‐stratified population screening across cancer types: Qualitative interviews with the Australian public

Human Genetics Society of Australasia Position Statement: Predictive and Presymptomatic Genetic Testing in Adults and Children

Patient perspectives on molecular tumor profiling: "Why wouldn't you?"

Advanced cancer patient preferences for receiving molecular profiling results

Dynamics and ethics of comprehensive preimplantation genetic testing: a review of the challenges

Disclosure to genetic relatives without consent - Australian genetic professionals' awareness of the health privacy law

The need for ethics as well as evidence in evidence-based medicine

Dynamic Consent: An Evaluation and Reporting Framework

Liminality between direct and family-mediated contact in the communication of genetic information to at-risk relatives

Ethical issues in reproductive genetic carrier screening

Views of the Australian public on the delivery of risk-stratified cancer screening in the population: a qualitative study

Why should ethics approval be required prior to publication of health promotion research?

"Who is watching the watchdog?": ethical perspectives of sharing health-related data for precision medicine in Singapore

Motivations and Barriers to Participation in a Randomized Trial on Melanoma Genomic Risk: A Mixed-Methods Analysis

Is It Just for a Screening Program to Give People All the Information They Want?

The PiGeOn project: protocol for a longitudinal study examining psychosocial, behavioural and ethical issues and outcomes in cancer tumour genomic profiling

The PiGeOn project: protocol of a longitudinal study examining psychosocial and ethical issues and outcomes in germline genomic sequencing for cancer

Ethically robust reproductive genetic carrier screening needs to measure outcomes that matter to patients

Taking seriousness seriously in genomic health

Ethical aspects of the changing landscape for spinal muscular atrophy management in Australia

Rapid Challenges: Ethics and Genomic Neonatal Intensive Care

Ethical considerations in gene selection for reproductive carrier screening

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