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Long-term effects of glucocorticoids on function, quality of life, and survival in patients with Duchenne muscular dystrophy: a prospective cohort study

The Lancet (British edition), 2018-02, Vol.391 (10119), p.451-461

2018

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Rehabilitation interventions in Rett syndrome: a scoping review

Developmental medicine and child neurology, 2020-08, Vol.62 (8), p.906-916

2020

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Cheer in Health Care Practice: What It Excludes and Why It Matters

Qualitative health research, 2019-11, Vol.29 (13), p.1890-1903

2019

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Glucocorticoid treatment for the prevention of scoliosis in children with Duchenne muscular dystrophy: long-term follow-up

Journal of bone and joint surgery. American volume, 2013-06, Vol.95 (12), p.1057-1061

2013

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Routine lung volume recruitment in boys with Duchenne muscular dystrophy: a randomised clinical trial

Thorax, 2022-08, Vol.77 (8), p.805-811

2022

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Enhancing human aspects of care with young people with muscular dystrophy: An evaluation of a participatory qualitative study with clinicians

PloS one, 2022-02, Vol.17 (2), p.e0263956-e0263956

2022

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Understanding the experiences of lung volume recruitment among boys with Duchenne muscular dystrophy: A multicenter qualitative study

Pediatric pulmonology, 2023-01, Vol.58 (1), p.46-54

2023

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Enhancing the human dimensions of children’s neuromuscular care: piloting a methodology for fostering team reflexivity

Advances in health sciences education : theory and practice, 2018-12, Vol.23 (5), p.867-889

2018

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The Accuracy of an Ambulatory Level III Sleep Study Compared to a Level I Sleep Study for the Diagnosis of Sleep-Disordered Breathing in Children With Neuromuscular Disease

Journal of clinical sleep medicine, 2018-12, Vol.14 (12), p.2013-2020

2018

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Twice-Weekly Outpatient Rehabilitation Intervention for Young Children With Spinal Muscular Atrophy Treated With Genetic-Based Therapies: Protocol for a Feasibility Study

JMIR research protocols, 2023-01, Vol.12, p.e46363-e46363

2023

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Fat Embolism Syndrome following minor trauma in Duchenne muscular dystrophy

Neuromuscular disorders : NMD, 2012-12, Vol.22 (12), p.1035-1039

2012

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“It’s all about the beaches”: Sargassum algae, tourism, and coastal transformations along the Mexican Caribbean

Coastal Studies & Society, 2023-12, Vol.2 (4), p.356-377

McAdam-Otto, Laura K

2023

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Evidence for ACTN3 as a genetic modifier of Duchenne muscular dystrophy

Nature communications, 2017-01, Vol.8 (1), p.14143-14143, Article 14143

2017

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Telling My Tale: Reflections on the Process of Visual Storytelling for Children and Youth Living With Cystic Fibrosis and Muscular Dystrophy in Canada

International journal of qualitative methods, 2020, Vol.19, p.160940691989891

2020

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Perspectives on and Experiences With Bullying From Youth With Neuromuscular Conditions

Journal of child neurology, 2024-06, Vol.39 (7-8), p.246-252

2024

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Local ecological knowledge and perception of the causes, impacts and effects of Sargassum massive influxes: a binational approach

Ecosystems and people (Abingdon, England), 2023-12, Vol.19 (1)

2023

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Sleep disordered breathing in infants identified through newborn screening with spinal muscular atrophy

Sleep medicine, 2023-11, Vol.111, p.161-169

2023

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Development of a New Self-Reporting Instrument Measuring Benefits and Side Effects of Corticosteroids in Duchenne Muscular Dystrophy: Report from a Pilot Study

Journal of neuromuscular diseases, 2017, Vol.4 (3), p.217-236

2017

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Being There While Not Being There: Reflections on Multi-sited Ethnography and Field Access in the Context of Forced Migration

Anthropological journal of European cultures, 2021-09, Vol.30 (2), p.41-61

2021

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Meaningful occupations of young adults with muscular dystrophy and other neuromuscular disorders

Canadian journal of occupational therapy (1939), 2019-10, Vol.86 (4), p.277-288

2019

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A qualitative exploration of the priorities and experiences of children with Duchenne muscular dystrophy, their parents, and healthcare professionals around weight management

Disability and rehabilitation, 2022-12, Vol.44 (26), p.8234-8242

2022

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Vulnerability-Making at Europe’s Edge: How Policies, Documents, and Spatiality Intra-Act in the Context of Young Refugees

Journal of contemporary ethnography, 2023-10, Vol.52 (5), p.721-747

McAdam-Otto, Laura

2023

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‘Our time is precious’: An exploration of parental feeding behaviours for boys with Duchenne muscular dystrophy

Child : care, health & development, 2023-03, Vol.49 (2), p.366-372

2023

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Growth assessment and weight management in paediatric neuromuscular clinics: a cross-sectional survey across Canada

Disability and rehabilitation, 2021-10, Vol.43 (21), p.3015-3020

2021

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Enablers and barriers of men with Duchenne muscular dystrophy transitioning from an adult clinic within a pediatric hospital

Disability and health journal, 2017-01, Vol.10 (1), p.73-79

2017

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Long-term effects of glucocorticoids on function, quality of life, and survival in patients with Duchenne muscular dystrophy: a prospective cohort study

Rehabilitation interventions in Rett syndrome: a scoping review

Cheer in Health Care Practice: What It Excludes and Why It Matters

Glucocorticoid treatment for the prevention of scoliosis in children with Duchenne muscular dystrophy: long-term follow-up

Routine lung volume recruitment in boys with Duchenne muscular dystrophy: a randomised clinical trial

Enhancing human aspects of care with young people with muscular dystrophy: An evaluation of a participatory qualitative study with clinicians

Understanding the experiences of lung volume recruitment among boys with Duchenne muscular dystrophy: A multicenter qualitative study

Enhancing the human dimensions of children’s neuromuscular care: piloting a methodology for fostering team reflexivity

The Accuracy of an Ambulatory Level III Sleep Study Compared to a Level I Sleep Study for the Diagnosis of Sleep-Disordered Breathing in Children With Neuromuscular Disease

Twice-Weekly Outpatient Rehabilitation Intervention for Young Children With Spinal Muscular Atrophy Treated With Genetic-Based Therapies: Protocol for a Feasibility Study

Fat Embolism Syndrome following minor trauma in Duchenne muscular dystrophy

“It’s all about the beaches”: Sargassum algae, tourism, and coastal transformations along the Mexican Caribbean

Evidence for ACTN3 as a genetic modifier of Duchenne muscular dystrophy

Telling My Tale: Reflections on the Process of Visual Storytelling for Children and Youth Living With Cystic Fibrosis and Muscular Dystrophy in Canada

Perspectives on and Experiences With Bullying From Youth With Neuromuscular Conditions

Local ecological knowledge and perception of the causes, impacts and effects of Sargassum massive influxes: a binational approach

Sleep disordered breathing in infants identified through newborn screening with spinal muscular atrophy

Development of a New Self-Reporting Instrument Measuring Benefits and Side Effects of Corticosteroids in Duchenne Muscular Dystrophy: Report from a Pilot Study

Being There While Not Being There: Reflections on Multi-sited Ethnography and Field Access in the Context of Forced Migration

Meaningful occupations of young adults with muscular dystrophy and other neuromuscular disorders

A qualitative exploration of the priorities and experiences of children with Duchenne muscular dystrophy, their parents, and healthcare professionals around weight management

Vulnerability-Making at Europe’s Edge: How Policies, Documents, and Spatiality Intra-Act in the Context of Young Refugees

‘Our time is precious’: An exploration of parental feeding behaviours for boys with Duchenne muscular dystrophy

Growth assessment and weight management in paediatric neuromuscular clinics: a cross-sectional survey across Canada

Enablers and barriers of men with Duchenne muscular dystrophy transitioning from an adult clinic within a pediatric hospital

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