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Development and content validity of the Barth Syndrome Symptom Assessment (BTHS-SA) for adolescents and adults

Orphanet journal of rare diseases, 2021-06, Vol.16 (1), p.264-13, Article 264

2021

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“I Want That Life a Lot…How on Earth Do I Get That?” Examining Challenges for Men With Barth Syndrome in Their Transitions to Adulthood

Journal of patient experience, 2021, Vol.8, p.23743735211060783-23743735211060783

2021

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Development of symptom-focused outcome measures for advanced and indolent systemic mastocytosis: the AdvSM-SAF and ISM-SAF

Orphanet journal of rare diseases, 2021-10, Vol.16 (1), p.414-12, Article 414

2021

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Understanding the life experience of Barth syndrome from the perspective of adults: a qualitative one-on-one interview study

Orphanet journal of rare diseases, 2019-11, Vol.14 (1), p.243-8, Article 243

2019

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Patient-Reported Outcomes in Metastatic Breast Cancer: A Review of Industry-Sponsored Clinical Trials

Breast Cancer: Basic and Clinical Research, 2016-01, Vol.2016 (10), p.93-102

2016

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Psychometric performance of the Primary Mitochondrial Myopathy Symptom Assessment (PMMSA) in a randomized, double-blind, placebo-controlled crossover study in subjects with mitochondrial disease

Journal of patient-reported outcomes, 2022-12, Vol.6 (1), p.129-129, Article 129

2022

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Clinical Trial Patient-Reported Outcomes Data: Going Beyond the Label in Oncology

Clinical therapeutics, 2016-04, Vol.38 (4), p.811-820

2016

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Patient-reported preferences for oral versus intravenous administration for the treatment of cancer: a review of the literature

Patient preference and adherence, 2016-01, Vol.10, p.1609-1621

2016

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A summary of neurological and neurocognitive manifestations for Gaucher disease type 3 from infancy to adulthood

Molecular genetics and metabolism, 2023-02, Vol.138 (2), p.107292, Article 107292

2023

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Understanding Foreclosure Risk: The Role of Nativity and Gender

Critical sociology, 2015-01, Vol.41 (1), p.115-132

2015

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Measurement of Sickle Cell Disease Symptoms from the Patient Perspective: Considerations for Clinical Trials

Blood, 2018-11, Vol.132 (Supplement 1), p.3571-3571

2018

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Development of the Rheumatoid Arthritis Symptom Questionnaire (RASQ): a patient reported outcome scale for measuring symptoms of rheumatoid arthritis

Current medical research and opinion, 2017-09, Vol.33 (9), p.1643-1651

2017

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"On a Good Day No One Knows:" Management of Disease Impacts in Barth Syndrome

Mazar, Iyar

2019

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The use of patient-reported outcomes in advanced breast cancer clinical trials: a review of the published literature

Current medical research and opinion, 2016-10, Vol.32 (10), p.1709-1717

2016

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Development of a Patient-Reported Outcome Questionnaire to Evaluate Primary Mitochondrial Myopathy Symptoms: The Primary Mitochondrial Myopathy Symptom Assessment

Journal of clinical neuromuscular disease, 2020-12, Vol.22 (2), p.65-76

2020

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Patient-reported outcomes for US oncology labeling: review and discussion of score interpretation and analysis methods

Expert review of pharmacoeconomics & outcomes research, 2015-11, Vol.15 (6), p.951-959

2015

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Patient-Reported Outcomes in Oncology Drug Labeling in the United States: A Framework for Navigating Early Challenges

American health & drug benefits, 2016-06, Vol.9 (4), p.188-197

2016

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Fatherhood at work and at home: An analysis of men's joint identifications with parenting and work

Mazar, Iyar

2012

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Patient-reported outcomes in advanced breast cancer: inside the label and approval documents

Expert review of quality of life in cancer care, 2016-05, Vol.1 (3), p.197-205

2016

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Patient-Reported Outcomes in Metastatic Breast Cancer: A Review of Industry-Sponsored Clinical Trials

Breast cancer : basic and clinical research, 2016-01, Vol.10

2016

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Development and content validity of the Barth Syndrome Symptom Assessment (BTHS-SA) for adolescents and adults

“I Want That Life a Lot…How on Earth Do I Get That?” Examining Challenges for Men With Barth Syndrome in Their Transitions to Adulthood

Development of symptom-focused outcome measures for advanced and indolent systemic mastocytosis: the AdvSM-SAF and ISM-SAF

Understanding the life experience of Barth syndrome from the perspective of adults: a qualitative one-on-one interview study

Patient-Reported Outcomes in Metastatic Breast Cancer: A Review of Industry-Sponsored Clinical Trials

Psychometric performance of the Primary Mitochondrial Myopathy Symptom Assessment (PMMSA) in a randomized, double-blind, placebo-controlled crossover study in subjects with mitochondrial disease

Clinical Trial Patient-Reported Outcomes Data: Going Beyond the Label in Oncology

Patient-reported preferences for oral versus intravenous administration for the treatment of cancer: a review of the literature

A summary of neurological and neurocognitive manifestations for Gaucher disease type 3 from infancy to adulthood

Understanding Foreclosure Risk: The Role of Nativity and Gender

Measurement of Sickle Cell Disease Symptoms from the Patient Perspective: Considerations for Clinical Trials

Development of the Rheumatoid Arthritis Symptom Questionnaire (RASQ): a patient reported outcome scale for measuring symptoms of rheumatoid arthritis

"On a Good Day No One Knows:" Management of Disease Impacts in Barth Syndrome

The use of patient-reported outcomes in advanced breast cancer clinical trials: a review of the published literature

Development of a Patient-Reported Outcome Questionnaire to Evaluate Primary Mitochondrial Myopathy Symptoms: The Primary Mitochondrial Myopathy Symptom Assessment

Patient-reported outcomes for US oncology labeling: review and discussion of score interpretation and analysis methods

Patient-Reported Outcomes in Oncology Drug Labeling in the United States: A Framework for Navigating Early Challenges

Fatherhood at work and at home: An analysis of men's joint identifications with parenting and work

Patient-reported outcomes in advanced breast cancer: inside the label and approval documents

Patient-Reported Outcomes in Metastatic Breast Cancer: A Review of Industry-Sponsored Clinical Trials

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