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Content Validity—Establishing and Reporting the Evidence in Newly Developed Patient-Reported Outcomes (PRO) Instruments for Medical Product Evaluation: ISPOR PRO Good Research Practices Task Force Report: Part 2—Assessing Respondent Understanding

Value in health, 2011-12, Vol.14 (8), p.978-988

2011

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Content Validity—Establishing and Reporting the Evidence in Newly Developed Patient-Reported Outcomes (PRO) Instruments for Medical Product Evaluation: ISPOR PRO Good Research Practices Task Force Report: Part 1—Eliciting Concepts for a New PRO Instrument

Value in health, 2011-12, Vol.14 (8), p.967-977

2011

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The symptom experience of hereditary angioedema (HAE) patients beyond HAE attacks: literature review and clinician interviews

Orphanet journal of rare diseases, 2022-06, Vol.17 (1), p.1-232, Article 232

2022

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Patient experience of medication administration and development of a Patient Experience and Preference Questionnaire (PEPQ) for patients with advanced or metastatic cancer

Frontiers in pharmacology, 2024-03, Vol.15, p.1310546-1310546

2024

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Understanding polycystic ovary syndrome from the patient perspective: a concept elicitation patient interview study

Health and quality of life outcomes, 2017-08, Vol.15 (1), p.162-162, Article 162

2017

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Measuring health-related quality of life in patients with rare disease

Journal of patient-reported outcomes, 2021-07, Vol.5 (1), p.61-61, Article 61

2021

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Patient-reported outcome measures for lupus nephritis: content validity of LupusQoL and FACIT-Fatigue

Journal of patient-reported outcomes, 2024-09, Vol.8 (1), p.115-14, Article 115

2024

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Initial psychometric validation of the questionnaire on pain caused by spasticity (QPS)

Health and quality of life outcomes, 2017-11, Vol.15 (1), p.229-229, Article 229

2017

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Impact of Erythropoiesis-Stimulating Agents on Energy and Physical Function in Nondialysis CKD Patients With Anemia: A Systematic Review

American journal of kidney diseases, 2010-03, Vol.55 (3), p.519-534

2010

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Emerging good practices for Translatability Assessment (TA) of Patient-Reported Outcome (PRO) measures

Journal of patient-reported outcomes, 2018-02, Vol.2 (1), p.8-8, Article 8

2018

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Willingness to report treatment-related symptoms of immunotherapy among patients with non-small cell lung cancer

Quality of life research, 2022-04, Vol.31 (4), p.1147-1155

2022

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How patients being treated for non-small cell lung cancer value treatment benefit despite side effects

Quality of life research, 2022-01, Vol.31 (1), p.135-146

2022

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The Cystic Fibrosis Impact Questionnaire: qualitative development and cognitive evaluation of a new patient-reported outcome instrument to assess the life impacts of cystic fibrosis

Journal of patient-reported outcomes, 2020-05, Vol.4 (1), p.36-36, Article 36

2020

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Development and adaptation of patient-reported outcome measures for patients who experience itch associated with primary biliary cholangitis

Journal of patient-reported outcomes, 2019-01, Vol.3 (1), p.2-2, Article 2

2019

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Development and validation of the self-management profile for type 2 diabetes (SMP-T2D)

Health and quality of life outcomes, 2012-10, Vol.10 (1), p.125-125

2012

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Quality of Life of Women with Urinary Incontinence: Cross-Cultural Performance of 15 Language Versions of the I-QOL

Quality of life research, 2005-10, Vol.14 (8), p.1901-1913

2005

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Development of the symptoms and impacts questionnaire for Crohn's disease and ulcerative colitis

Alimentary pharmacology & therapeutics, 2020-06, Vol.51 (11), p.1047-1066

2020

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“Lower abdominal pains, as if I was being squeezed…in a clamp”: A Qualitative Analysis of Symptoms, Patient-Perceived Side Effects and Impacts of Ovarian Cancer

The patient : patient-centered outcomes research, 2020-04, Vol.13 (2), p.189-200

2020

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Pain assessment for chronic lower back pain: performance of the PAL-S and PAL-I patient-reported measures for symptoms and impacts

Current medical research and opinion, 2020-05, Vol.36 (5), p.853-863

2020

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Synchrony of change in depressive symptoms, health status, and quality of life in persons with clinical depression

Health and quality of life outcomes, 2006-04, Vol.4 (1), p.27-27, Article 27

2006

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The STatin Adverse Treatment Experience Survey: Experience of patients reporting side effects of statin therapy

Journal of clinical lipidology, 2019-05, Vol.13 (3), p.415-424

2019

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Assessment of Patient-Reported Outcome Instruments to Assess Chronic Low Back Pain

Pain medicine (Malden, Mass.), 2017-06, Vol.18 (6), p.1098-1110

2017

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Quality of Life and Parkinson's Disease: Translation and Validation of the US Parkinson's Disease Questionnaire (PDQ-39)

Quality of life research, 1999-06, Vol.8 (4), p.345-350

1999

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Mixed-methods development of a new patient-reported outcome instrument for chronic low back pain: part 1-the Patient Assessment for Low Back Pain - Symptoms (PAL-S)

Pain (Amsterdam), 2018-06, Vol.159 (6), p.1045-1055

2018

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Understanding the Patient Perception of Statin Experience: A Qualitative Study

Advances in therapy, 2019-10, Vol.36 (10), p.2723-2743

2019

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Content Validity—Establishing and Reporting the Evidence in Newly Developed Patient-Reported Outcomes (PRO) Instruments for Medical Product Evaluation: ISPOR PRO Good Research Practices Task Force Report: Part 2—Assessing Respondent Understanding

Content Validity—Establishing and Reporting the Evidence in Newly Developed Patient-Reported Outcomes (PRO) Instruments for Medical Product Evaluation: ISPOR PRO Good Research Practices Task Force Report: Part 1—Eliciting Concepts for a New PRO Instrument

The symptom experience of hereditary angioedema (HAE) patients beyond HAE attacks: literature review and clinician interviews

Patient experience of medication administration and development of a Patient Experience and Preference Questionnaire (PEPQ) for patients with advanced or metastatic cancer

Understanding polycystic ovary syndrome from the patient perspective: a concept elicitation patient interview study

Measuring health-related quality of life in patients with rare disease

Patient-reported outcome measures for lupus nephritis: content validity of LupusQoL and FACIT-Fatigue

Initial psychometric validation of the questionnaire on pain caused by spasticity (QPS)

Impact of Erythropoiesis-Stimulating Agents on Energy and Physical Function in Nondialysis CKD Patients With Anemia: A Systematic Review

Emerging good practices for Translatability Assessment (TA) of Patient-Reported Outcome (PRO) measures

Willingness to report treatment-related symptoms of immunotherapy among patients with non-small cell lung cancer

How patients being treated for non-small cell lung cancer value treatment benefit despite side effects

The Cystic Fibrosis Impact Questionnaire: qualitative development and cognitive evaluation of a new patient-reported outcome instrument to assess the life impacts of cystic fibrosis

Development and adaptation of patient-reported outcome measures for patients who experience itch associated with primary biliary cholangitis

Development and validation of the self-management profile for type 2 diabetes (SMP-T2D)

Quality of Life of Women with Urinary Incontinence: Cross-Cultural Performance of 15 Language Versions of the I-QOL

Development of the symptoms and impacts questionnaire for Crohn's disease and ulcerative colitis

“Lower abdominal pains, as if I was being squeezed…in a clamp”: A Qualitative Analysis of Symptoms, Patient-Perceived Side Effects and Impacts of Ovarian Cancer

Pain assessment for chronic lower back pain: performance of the PAL-S and PAL-I patient-reported measures for symptoms and impacts

Synchrony of change in depressive symptoms, health status, and quality of life in persons with clinical depression

The STatin Adverse Treatment Experience Survey: Experience of patients reporting side effects of statin therapy

Assessment of Patient-Reported Outcome Instruments to Assess Chronic Low Back Pain

Quality of Life and Parkinson's Disease: Translation and Validation of the US Parkinson's Disease Questionnaire (PDQ-39)

Mixed-methods development of a new patient-reported outcome instrument for chronic low back pain: part 1-the Patient Assessment for Low Back Pain - Symptoms (PAL-S)

Understanding the Patient Perception of Statin Experience: A Qualitative Study

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