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Clinical practice guideline and expert consensus recommendations for rehabilitation among children with cancer: A systematic review
CA: a cancer journal for clinicians, 2023-09, Vol.73 (5), p.524-545
2023
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Infertility and treatment‐seeking practices among females and males with sickle cell disease in the Sickle Cell Disease Implementation Consortium registry
Pediatric blood & cancer, 2023-07, Vol.70 (7), p.e30356-n/a
2023
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Long-Term Outcomes Among Adult Survivors of Childhood Central Nervous System Malignancies in the Childhood Cancer Survivor Study
JNCI : Journal of the National Cancer Institute, 2009-07, Vol.101 (13), p.946-958
2009
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Sex-based differences in the manifestations and complications of sickle cell disease: Report from the Sickle Cell Disease Implementation Consortium
PloS one, 2021-10, Vol.16 (10), p.e0258638-e0258638
2021
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Perspectives on How to Implement Developmental Screening and Intervention for Children With Sickle Cell Disease
Journal of early intervention, 2024-03, Vol.46 (1), p.76-93
2024
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Assessing quality of life in childhood cancer survivors at risk for hearing loss: a comparison of HEAR-QL and PROMIS measures
Frontiers in oncology, 2024-03, Vol.14, p.1362315-1362315
2024
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Symptom management care pathway adaptation process and specific adaptation decisions
BMC cancer, 2023-04, Vol.23 (1), p.350-350, Article 350
2023
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Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry
Orphanet journal of rare diseases, 2020-07, Vol.15 (1), p.178-178, Article 178
2020
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Identifying barriers to evidence-based care for sickle cell disease: results from the Sickle Cell Disease Implementation Consortium cross-sectional survey of healthcare providers in the USA
BMJ open, 2021-11, Vol.11 (11), p.e050880-e050880
2021
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Academic Performance of Children With Sickle Cell Disease in the United States: A Meta-Analysis
Frontiers in neurology, 2021-12, Vol.12, p.786065
2021
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Corrigendum: Academic performance of children with sickle cell disease in the United States: a meta-analysis
Frontiers in neurology, 2023-12, Vol.14, p.1281630-1281630
2023
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Social determinants of health and treatment center affiliation: analysis from the sickle cell disease implementation consortium registry
BMC health services research, 2024-03, Vol.24 (1), p.291-13, Article 291
2024
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"The project did not come to us with a solution": Perspectives of research teams on implementing a study about electronic health record-embedded individualized pain plans for emergency department treatment of vaso-occlusive episodes in adults with sickle cell disease
BMC health services research, 2023-11, Vol.23 (1), p.1245-1245, Article 1245
2023
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Children with non-central nervous system tumors treated with platinum-based chemotherapy are at risk for hearing loss and cognitive impairments
Frontiers in pediatrics, 2024-03, Vol.12, p.1341762-1341762
2024
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Incidence and Risk Factors for New and Recurrent Infarcts in Adults With Sickle Cell Disease
Journal of the American Heart Association, 2024-06, Vol.13 (12), p.e033278
2024
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Translating research to usual care of children with sickle cell disease in Northern Nigeria: lessons learned from the SPRING Trial Team
BMC research notes, 2022-01, Vol.15 (1), p.1-1, Article 1
2022
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Specifying sickle cell disease interventions: a study protocol of the Sickle Cell Disease Implementation Consortium (SCDIC)
BMC health services research, 2018-06, Vol.18 (1), p.500-500, Article 500
2018
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iTPP: nature vs nurture?
Blood, 2022-09, Vol.140 (12), p.1329-1330
2022
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End points for sickle cell disease clinical trials: patient-reported outcomes, pain, and the brain
Blood advances, 2019-12, Vol.3 (23), p.3982-4001
2019
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Burden of Aging: Health Outcomes Among Adolescents and Young Adults With Sickle Cell Disease
HemaSphere, 2023-08, Vol.7 (8), p.e930-n/a
2023
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Barriers and facilitators to a task-shifted stroke prevention program for children with sickle cell anemia in a community hospital: a qualitative study
Implementation science communications, 2024-01, Vol.5 (1), p.10-10, Article 10
2024
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“If I have a limited amount of time left, this is not how I want to spend it”: A qualitative descriptive study of factors influencing daily life participation following a cancer diagnosis
Psycho-oncology (Chichester, England), 2024-06, Vol.33 (6), p.e6366-n/a
2024
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Activity competence among infants and toddlers with developmental disabilities: Rasch analysis of the Infant Toddler Activity Card Sort (ITACS)
Journal of patient-reported outcomes, 2021-01, Vol.5 (1), p.14-14, Article 14
2021
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Primary Prevention of Stroke in Children With Sickle Cell Anemia in Nigeria: Protocol for a Mixed Methods Implementation Study in a Community Hospital
JMIR research protocols, 2022-06, Vol.11 (6), p.e37927-e37927
2022
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Children with sickle cell disease: the case for developmental screening
Developmental medicine and child neurology, 2018-05, Vol.60 (5), p.443-444
2018
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