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A large-scale study of anxiety and depression in people with Multiple Sclerosis: a survey via the web portal of the UK MS Register

PloS one, 2012-07, Vol.7 (7), p.e41910-e41910

2012

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The SAIL Databank: building a national architecture for e-health research and evaluation

BMC health services research, 2009-09, Vol.9 (1), p.157-157, Article 157

2009

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How people with multiple sclerosis rate their quality of life: an EQ-5D survey via the UK MS register

PloS one, 2013-06, Vol.8 (6), p.e65640-e65640

2013

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The SAIL databank: linking multiple health and social care datasets

BMC medical informatics and decision making, 2009-01, Vol.9 (1), p.3-3, Article 3

2009

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Physical disability, anxiety and depression in people with MS: an internet-based survey via the UK MS Register

PloS one, 2014-08, Vol.9 (8), p.e104604-e104604

2014

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Incidence of Campylobacter and Salmonella infections following first prescription for PPI: a cohort study using routine data

The American journal of gastroenterology, 2013-07, Vol.108 (7), p.1094-1100

2013

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The physical and psychological impact of multiple sclerosis using the MSIS-29 via the web portal of the UK MS Register

PloS one, 2013-01, Vol.8 (1), p.e55422-e55422

2013

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The Potential of Research Drawing on Clinical Free Text to Bring Benefits to Patients in the United Kingdom: A Systematic Review of the Literature

Frontiers in digital health, 2021-02, Vol.3, p.606599-606599

2021

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The feasibility of collecting information from people with Multiple Sclerosis for the UK MS Register via a web portal: characterising a cohort of people with MS

BMC medical informatics and decision making, 2012-07, Vol.12 (1), p.73-73, Article 73

2012

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The other side of the coin: Harm due to the non-use of health-related data

International journal of medical informatics (Shannon, Ireland), 2017-01, Vol.97, p.43-51

2017

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A case study of the Secure Anonymous Information Linkage (SAIL) Gateway: A privacy-protecting remote access system for health-related research and evaluation

Journal of biomedical informatics, 2014-08, Vol.50 (100), p.196-204

2014

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A Profile of the SAIL Databank on the UK Secure Research Platform

International journal of population data science, 2019-11, Vol.4 (2), p.1134-1134

2019

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Commentary on ‘Disability outcome measures in multiple sclerosis clinical trials’

Multiple sclerosis, 2012-12, Vol.18 (12), p.1718-1720

2012

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Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study

Journal of medical Internet research, 2019-08, Vol.21 (8), p.e14384-e14384

2019

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Genetic influences on epilepsy outcomes: A whole‐exome sequencing and health care records data linkage study

Epilepsia (Copenhagen), 2023-11, Vol.64 (11), p.3099-3108

2023

Volltextzugriff (PDF)

Toward the Development of Data Governance Standards for Using Clinical Free-Text Data in Health Research: Position Paper

Journal of medical Internet research, 2020-06, Vol.22 (6), p.e16760-e16760

2020

Volltextzugriff (PDF)

The Resilience of Pandemic Digital Deliberation: An Analysis of Online Synchronous Forums

Javnost (Ljubljana, Slovenia), 2021-07, Vol.28 (3), p.237-255

2021

Volltextzugriff (PDF)

Public involvement & engagement in the work of a data safe haven: a case study of the SAIL Databank

International journal of population data science, 2020-08, Vol.5 (3), p.1371-1371

2020

Volltextzugriff (PDF)

Protocol for a population-based ankylosing spondylitis (PAS) cohort in Wales

BMC musculoskeletal disorders, 2010-09, Vol.11 (1), p.197-197, Article 197

2010

Volltextzugriff (PDF)

Consensus Statement on Public Involvement and Engagement with Data Intensive Health Research

International journal of population data science, 2019-02, Vol.4 (1), p.586

2019

Volltextzugriff (PDF)

Personal and societal costs of multiple sclerosis in the UK: A population-based MS Registry study

Multiple sclerosis journal - experimental, translational and clinical, 2020-01, Vol.6 (1), p.2055217320901727-2055217320901727

2020

Volltextzugriff (PDF)

Assessing the medium-term impact of a home-visiting programme on child maltreatment in England: protocol for a routine data linkage study

BMJ open, 2017-07, Vol.7 (7), p.e015728-e015728

2017

Volltextzugriff (PDF)

Cohort Profile: The Housing Regeneration and Health Study

International journal of epidemiology, 2014-02, Vol.43 (1), p.52-60

2014

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Exploring barriers and solutions in advancing cross-centre population data science

International journal of population data science, 2019-08, Vol.4 (1), p.1109-1109

2019

Volltextzugriff (PDF)

Residential Anonymous Linking Fields (RALFs): a novel information infrastructure to study the interaction between the environment and individuals' health

Journal of public health (Oxford, England), 2009-12, Vol.31 (4), p.582-588

2009

Volltextzugriff (PDF)

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A large-scale study of anxiety and depression in people with Multiple Sclerosis: a survey via the web portal of the UK MS Register

The SAIL Databank: building a national architecture for e-health research and evaluation

How people with multiple sclerosis rate their quality of life: an EQ-5D survey via the UK MS register

The SAIL databank: linking multiple health and social care datasets

Physical disability, anxiety and depression in people with MS: an internet-based survey via the UK MS Register

Incidence of Campylobacter and Salmonella infections following first prescription for PPI: a cohort study using routine data

The physical and psychological impact of multiple sclerosis using the MSIS-29 via the web portal of the UK MS Register

The Potential of Research Drawing on Clinical Free Text to Bring Benefits to Patients in the United Kingdom: A Systematic Review of the Literature

The feasibility of collecting information from people with Multiple Sclerosis for the UK MS Register via a web portal: characterising a cohort of people with MS

The other side of the coin: Harm due to the non-use of health-related data

A case study of the Secure Anonymous Information Linkage (SAIL) Gateway: A privacy-protecting remote access system for health-related research and evaluation

A Profile of the SAIL Databank on the UK Secure Research Platform

Commentary on ‘Disability outcome measures in multiple sclerosis clinical trials’

Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study

Genetic influences on epilepsy outcomes: A whole‐exome sequencing and health care records data linkage study

Toward the Development of Data Governance Standards for Using Clinical Free-Text Data in Health Research: Position Paper

The Resilience of Pandemic Digital Deliberation: An Analysis of Online Synchronous Forums

Public involvement & engagement in the work of a data safe haven: a case study of the SAIL Databank

Protocol for a population-based ankylosing spondylitis (PAS) cohort in Wales

Consensus Statement on Public Involvement and Engagement with Data Intensive Health Research

Personal and societal costs of multiple sclerosis in the UK: A population-based MS Registry study

Assessing the medium-term impact of a home-visiting programme on child maltreatment in England: protocol for a routine data linkage study

Cohort Profile: The Housing Regeneration and Health Study

Exploring barriers and solutions in advancing cross-centre population data science

Residential Anonymous Linking Fields (RALFs): a novel information infrastructure to study the interaction between the environment and individuals' health

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