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Self-reported cognitive concerns and abilities: two sides of one coin?

Psycho-oncology (Chichester, England), 2014-10, Vol.23 (10), p.1133-1141

2014

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Psychometric validation of a patient‐reported experience measure of obstetric racism© (The PREM‐OB Scale™ suite)

Birth (Berkeley, Calif.), 2022-09, Vol.49 (3), p.514-525

2022

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The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008

Journal of clinical epidemiology, 2010-11, Vol.63 (11), p.1179-1194

2010

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An overactive bladder symptom and health-related quality of life short-form: Validation of the OAB-q SF

Neurourology and urodynamics, 2015-03, Vol.34 (3), p.255-263

2015

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Long‐term psychological and educational outcomes for survivors of neuroblastoma: A report from the Childhood Cancer Survivor Study

Cancer, 2018-08, Vol.124 (15), p.3220-3230

2018

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Comparison of Patient‐Reported Outcomes Measurement Information System Computerized Adaptive Testing Versus Fixed Short Forms in Juvenile Myositis

Arthritis care & research (2010), 2023-02, Vol.75 (2), p.381-390

2023

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How Item Banks and Their Application Can Influence Measurement Practice in Rehabilitation Medicine: A PROMIS Fatigue Item Bank Example

Archives of physical medicine and rehabilitation, 2011-10, Vol.92 (10), p.S20-S27

2011

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Health‐related quality of life and adherence to hydroxyurea in adolescents and young adults with sickle cell disease

Pediatric blood & cancer, 2017-06, Vol.64 (6), p.np-n/a

2017

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An item response analysis of the pediatric PROMIS anxiety and depressive symptoms scales

Quality of life research, 2010-05, Vol.19 (4), p.595-607

2010

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Symptom burden trajectories experienced by patients with brain tumors

Cancer, 2020-07, Vol.126 (14), p.3341-3351

2020

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Positive and negative psychosocial impacts on cancer survivors

Scientific reports, 2023-09, Vol.13 (1), p.14749-14749, Article 14749

2023

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Barriers to hydroxyurea adherence and health‐related quality of life in adolescents and young adults with sickle cell disease

European journal of haematology, 2017-06, Vol.98 (6), p.608-614

2017

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Adherence to hydroxyurea, health-related quality of life domains, and patients' perceptions of sickle cell disease and hydroxyurea: a cross-sectional study in adolescents and young adults

Health and quality of life outcomes, 2017-07, Vol.15 (1), p.136-136, Article 136

2017

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Development and psychometric properties of the PROMIS®pediatric fatigue item banks

Quality of life research, 2013-11, Vol.22 (9), p.2417-2427

2013

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Prevalence and associations of fatigue in childhood atopic dermatitis: A cross‐sectional study

Journal of the European Academy of Dermatology and Venereology, 2023-04, Vol.37 (4), p.763-771

2023

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The Neurology Quality-of-Life Measurement Initiative

Archives of physical medicine and rehabilitation, 2011-10, Vol.92 (10), p.S28-S36

2011

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Generation and Validation of the Patient-Reported Outcome Measurement Information System Itch Questionnaire–Child (PIQ-C) to Measure the Impact of Itch on Life Quality

Journal of investigative dermatology, 2022-05, Vol.142 (5), p.1309-1317.e1

2022

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Parent report of sleep health and attention regulation in a cross‐sectional study of infants and preschool‐aged children with atopic dermatitis

Pediatric dermatology, 2022-01, Vol.39 (1), p.61-68

2022

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Using the Patient‐Reported Outcomes Measurement Information System (PROMIS) to measure symptom burden reported by patients with brain tumors

Pediatric blood & cancer, 2019-03, Vol.66 (3), p.e27526-n/a

2019

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Validation of remote anthropometric measurements in a rural randomized pediatric clinical trial in primary care settings

Scientific reports, 2024-01, Vol.14 (1), p.411-10, Article 411

2024

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Assessing psychological well-being: self-report instruments for the NIH Toolbox

Quality of life research, 2014-02, Vol.23 (1), p.205-215

2014

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A Pilot Study of a Screening Tool for Pediatric Minimal Hepatic Encephalopathy

Journal of pediatric gastroenterology and nutrition, 2019-12, Vol.69 (6), p.655-661

2019

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How different aspects of motor dysfunction influence day‐to‐day function in huntington's disease

Movement disorders, 2019-12, Vol.34 (12), p.1910-1914

2019

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Standardizing Patient-Reported Outcomes Assessment in Cancer Clinical Trials: A Patient-Reported Outcomes Measurement Information System Initiative

Journal of clinical oncology, 2007-11, Vol.25 (32), p.5106-5112

2007

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Linking Fatigue Measures on a Common Reporting Metric

Journal of pain and symptom management, 2014-10, Vol.48 (4), p.639-648

2014

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Self-reported cognitive concerns and abilities: two sides of one coin?

Psychometric validation of a patient‐reported experience measure of obstetric racism© (The PREM‐OB Scale™ suite)

The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008

An overactive bladder symptom and health-related quality of life short-form: Validation of the OAB-q SF

Long‐term psychological and educational outcomes for survivors of neuroblastoma: A report from the Childhood Cancer Survivor Study

Comparison of Patient‐Reported Outcomes Measurement Information System Computerized Adaptive Testing Versus Fixed Short Forms in Juvenile Myositis

How Item Banks and Their Application Can Influence Measurement Practice in Rehabilitation Medicine: A PROMIS Fatigue Item Bank Example

Health‐related quality of life and adherence to hydroxyurea in adolescents and young adults with sickle cell disease

An item response analysis of the pediatric PROMIS anxiety and depressive symptoms scales

Symptom burden trajectories experienced by patients with brain tumors

Positive and negative psychosocial impacts on cancer survivors

Barriers to hydroxyurea adherence and health‐related quality of life in adolescents and young adults with sickle cell disease

Adherence to hydroxyurea, health-related quality of life domains, and patients' perceptions of sickle cell disease and hydroxyurea: a cross-sectional study in adolescents and young adults

Development and psychometric properties of the PROMIS®pediatric fatigue item banks

Prevalence and associations of fatigue in childhood atopic dermatitis: A cross‐sectional study

The Neurology Quality-of-Life Measurement Initiative

Generation and Validation of the Patient-Reported Outcome Measurement Information System Itch Questionnaire–Child (PIQ-C) to Measure the Impact of Itch on Life Quality

Parent report of sleep health and attention regulation in a cross‐sectional study of infants and preschool‐aged children with atopic dermatitis

Using the Patient‐Reported Outcomes Measurement Information System (PROMIS) to measure symptom burden reported by patients with brain tumors

Validation of remote anthropometric measurements in a rural randomized pediatric clinical trial in primary care settings

Assessing psychological well-being: self-report instruments for the NIH Toolbox

A Pilot Study of a Screening Tool for Pediatric Minimal Hepatic Encephalopathy

How different aspects of motor dysfunction influence day‐to‐day function in huntington's disease

Standardizing Patient-Reported Outcomes Assessment in Cancer Clinical Trials: A Patient-Reported Outcomes Measurement Information System Initiative

Linking Fatigue Measures on a Common Reporting Metric

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