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Patient-reported outcomes in performance measurement

2015

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Measuring Health-Related Quality of Life in Leukemia: The Functional Assessment of Cancer Therapy – Leukemia (FACT-Leu) Questionnaire

Value in health, 2012-12, Vol.15 (8), p.1051-1058

2012

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Information needs and development of a question prompt sheet for upper extremity vascularized composite allotransplantation: A mixed methods study

Frontiers in psychology, 2022-09, Vol.13, p.960373-960373

2022

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Enhanced clinical decisions for management of benign prostatic hyperplasia using patient-reported outcomes: protocol for a prospective observational study

BMC urology, 2024-05, Vol.24 (1), p.110-110, Article 110

2024

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Using IT to Improve Outcomes for Children Living With Cancer (SyMon-SAYS): Protocol for a Single-Institution Waitlist Randomized Controlled Trial

JMIR research protocols, 2023-09, Vol.12, p.e50993-e50993

2023

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Patient preferences of patient selection criteria for upper extremity vascularized composite allotransplantation: A qualitative study

SAGE open medicine, 2023-01, Vol.11, p.20503121231181236-20503121231181236

2023

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Validity of PROMIS physical function measured in diverse clinical samples

Journal of clinical epidemiology, 2016-05, Vol.73, p.112-118

2016

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Quality of Life Considerations in Upper Limb Transplantation: Review and Future Directions

The Journal of hand surgery (American ed.), 2012-10, Vol.37 (10), p.2126-2135

2012

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PROMIS Fatigue Item Bank had Clinical Validity across Diverse Chronic Conditions

Journal of clinical epidemiology, 2016-05, Vol.73, p.128-134

2016

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Development and Initial Validation of the NCCN/FACT Symptom Index for Advanced Kidney Cancer

Value in health, 2013-07, Vol.16 (5), p.789-796

2013

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PROMIS measures of pain, fatigue, negative affect, physical function, and social function demonstrated clinical validity across a range of chronic conditions

Journal of clinical epidemiology, 2016-05, Vol.73, p.89-102

2016

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Patient Reported Outcomes Measurement Information System and Quality of Life in Neurological Disorders Measurement System to Evaluate Quality of Life for Children and Adolescents with Neurofibromatosis Type 1 Associated Plexiform Neurofibroma

The Journal of pediatrics, 2019-03, Vol.206, p.190-196

2019

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Patient definitions of transplant success in upper extremity vascularized composite allotransplantation: A mixed-methods study

SAGE open medicine, 2023-01, Vol.11, p.20503121231184677

2023

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Adjustment to amputation and interest in upper limb transplantation

SAGE open medicine, 2019, Vol.7, p.2050312119858248-2050312119858248

2019

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Measuring PROMIS® Physical Activity and Sleep Problems in Early Childhood

Journal of pediatric psychology, 2022-05, Vol.47 (5), p.534-546

2022

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Psychological stress and infectious illnesses: One step closer to understanding the mechanisms

Brain, behavior, and immunity, 2016-02, Vol.52, p.9-10

Jensen, Sally E

2016

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Development of a Symptom Index for Patients with Primary Brain Tumors

Value in health, 2014, Vol.17 (1), p.62-69

2014

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Considerations for conducting qualitative research with pediatric patients for the purpose of PRO development

Quality of life research, 2016-09, Vol.25 (9), p.2193-2199

2016

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An evaluation of health-related quality of life in patients with systemic lupus erythematosus using PROMIS and Neuro-QoL

Clinical rheumatology, 2017-03, Vol.36 (3), p.555-562

2017

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Using a qualitative approach to conceptualize concerns of patients with neurofibromatosis type 1 associated plexiform neurofibromas (pNF) across the lifespan

American journal of medical genetics. Part A, 2017-01, Vol.173 (1), p.79-87

2017

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Content validity of the NCCN-FACT Ovarian Symptom Index-18 (NFOSI-18)

Gynecologic oncology, 2015-02, Vol.136 (2), p.317-322

2015

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Lifespan Development: Symptoms Experienced by Individuals with Neurofibromatosis Type 1 Associated Plexiform Neurofibromas from Childhood into Adulthood

Journal of clinical psychology in medical settings, 2019-09, Vol.26 (3), p.259-270

2019

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Life stress, negative mood states, and antibodies to heat shock protein 70 in endometrial cancer

Brain, behavior, and immunity, 2010-02, Vol.24 (2), p.210-214

2010

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Development and Preliminary Validation of a New Patient-Reported Outcome Measure for Chronic Rhinosinusitis (CRS-PRO)

The journal of allergy and clinical immunology in practice (Cambridge, MA), 2020-07, Vol.8 (7), p.2341-2350.e1

2020

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Cognitive-Behavioral Stress Management and Psychological Well-Being in HIV+ Racial/Ethnic Minority Women With Human Papillomavirus

Health psychology, 2013-02, Vol.32 (2), p.227-230

2013

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Patient-reported outcomes in performance measurement

Measuring Health-Related Quality of Life in Leukemia: The Functional Assessment of Cancer Therapy – Leukemia (FACT-Leu) Questionnaire

Information needs and development of a question prompt sheet for upper extremity vascularized composite allotransplantation: A mixed methods study

Enhanced clinical decisions for management of benign prostatic hyperplasia using patient-reported outcomes: protocol for a prospective observational study

Using IT to Improve Outcomes for Children Living With Cancer (SyMon-SAYS): Protocol for a Single-Institution Waitlist Randomized Controlled Trial

Patient preferences of patient selection criteria for upper extremity vascularized composite allotransplantation: A qualitative study

Validity of PROMIS physical function measured in diverse clinical samples

Quality of Life Considerations in Upper Limb Transplantation: Review and Future Directions

PROMIS Fatigue Item Bank had Clinical Validity across Diverse Chronic Conditions

Development and Initial Validation of the NCCN/FACT Symptom Index for Advanced Kidney Cancer

PROMIS measures of pain, fatigue, negative affect, physical function, and social function demonstrated clinical validity across a range of chronic conditions

Patient Reported Outcomes Measurement Information System and Quality of Life in Neurological Disorders Measurement System to Evaluate Quality of Life for Children and Adolescents with Neurofibromatosis Type 1 Associated Plexiform Neurofibroma

Patient definitions of transplant success in upper extremity vascularized composite allotransplantation: A mixed-methods study

Adjustment to amputation and interest in upper limb transplantation

Measuring PROMIS® Physical Activity and Sleep Problems in Early Childhood

Psychological stress and infectious illnesses: One step closer to understanding the mechanisms

Development of a Symptom Index for Patients with Primary Brain Tumors

Considerations for conducting qualitative research with pediatric patients for the purpose of PRO development

An evaluation of health-related quality of life in patients with systemic lupus erythematosus using PROMIS and Neuro-QoL

Using a qualitative approach to conceptualize concerns of patients with neurofibromatosis type 1 associated plexiform neurofibromas (pNF) across the lifespan

Content validity of the NCCN-FACT Ovarian Symptom Index-18 (NFOSI-18)

Lifespan Development: Symptoms Experienced by Individuals with Neurofibromatosis Type 1 Associated Plexiform Neurofibromas from Childhood into Adulthood

Life stress, negative mood states, and antibodies to heat shock protein 70 in endometrial cancer

Development and Preliminary Validation of a New Patient-Reported Outcome Measure for Chronic Rhinosinusitis (CRS-PRO)

Cognitive-Behavioral Stress Management and Psychological Well-Being in HIV+ Racial/Ethnic Minority Women With Human Papillomavirus

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