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Auswirkungen einer Pandemie auf Menschen mit Seltenen Erkrankungen und Empfehlungen zur Aufrechterhaltung von Versorgung und Teilhabe

Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz, 2024, Vol.67 (1), p.57-65

2024

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Versorgung von Menschen mit Seltenen Erkrankungen: Empfehlungen für eine gelungene intersektorale Zusammenarbeit

Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz, 2023-08, Vol.66 (8), p.940-948

2023

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Parents as informal caregivers of children and adolescents with spinal muscular atrophy: a systematic review of quantitative and qualitative data on the psychosocial situation, caregiver burden, and family needs

Orphanet journal of rare diseases, 2022-07, Vol.17 (1), p.1-274, Article 274

2022

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When a mother has cancer: strains and resources of affected families from the mother's and father's perspective - a qualitative study

BMC women's health, 2018-05, Vol.18 (1), p.72-72, Article 72

2018

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Impact of the COVID-19 pandemic on health care and daily life of patients with rare diseases from the perspective of patient organizations - a qualitative interview study

Orphanet journal of rare diseases, 2023-06, Vol.18 (1), p.154-154, Article 154

2023

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Psychosocial interventions for rehabilitation and reintegration into daily life of pediatric cancer survivors and their families: A systematic review

PloS one, 2018-04, Vol.13 (4), p.e0196151-e0196151

2018

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Families Affected by Parental Cancer: Quality of Life, Impact on Children and Psychosocial Care Needs

Frontiers in psychiatry, 2021-11, Vol.12, p.765327-765327

2021

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Psychosocial Interventions for Families with Parental Cancer and Barriers and Facilitators to Implementation and Use - A Systematic Review

PloS one, 2016-06, Vol.11 (6), p.e0156967

2016

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Parental Cancer: Acceptance and Usability of an Information Booklet for Affected Parents

Frontiers in psychology, 2022-02, Vol.13, p.769298-769298

2022

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Anxiety and depression in working-age cancer survivors: a register-based study

BMC cancer, 2017-05, Vol.17 (1), p.347-347, Article 347

2017

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Uncertainties of healthcare professionals and informal caregivers in rare diseases: A systematic review

Heliyon, 2024-10, Vol.10 (19), p.e38677, Article e38677

2024

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Parents’ perception of their children’s process of reintegration after childhood cancer treatment

PloS one, 2020-10, Vol.15 (10), p.e0239967-e0239967

2020

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Social relationships and physician utilization among older adults-A systematic review

PloS one, 2017-09, Vol.12 (9), p.e0185672-e0185672

2017

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Children with cancer and their families after active treatment: analyses of biopsychosocial needs and implications for healthcare – a study protocol

BMJ open, 2022-04, Vol.12 (4), p.e055633-e055633

2022

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Estimates of Prevalence Rates of Cancer Patients With Children and Well-Being in Affected Children: A Systematic Review on Population-Based Findings

Frontiers in psychiatry, 2021-11, Vol.12, p.765314-765314

2021

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Returning to daily life: a qualitative interview study on parents of childhood cancer survivors in Germany

BMJ open, 2020-03, Vol.10 (3), p.e033730-e033730

2020

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Experiences and the psychosocial situation of parental caregivers of children with spinal muscular atrophy against the background of new treatment options: a qualitative interview study

BMC Psychology, 2024-10, Vol.12 (1), p.566-15, Article 566

2024

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Patient experiences of interprofessional collaboration and intersectoral communication in rare disease healthcare in Germany - a mixed-methods study

Orphanet journal of rare diseases, 2024-05, Vol.19 (1), p.197-197, Article 197

2024

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Interface management concepts in healthcare for rare diseases in Germany: a study protocol for a mixed-methods study to develop best practice recommendations

BMJ open, 2020-11, Vol.10 (11), p.e040470-e040470

2020

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Exploring the perspective of adolescent childhood cancer survivors on follow‐up care and their concerns regarding the transition process—A qualitative content analysis

Cancer medicine (Malden, MA), 2024-05, Vol.13 (10), p.e7234-n/a

2024

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Reintegration into school, kindergarten and work in families of childhood cancer survivors after a family-oriented rehabilitation program

Frontiers in pediatrics, 2024-03, Vol.12, p.1288567-1288567

2024

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Gesundheitsbezogene Versorgungsforschung im Kindes- und Jugendalter: Ziele, Aktivitäten, Zukunftsperspektiven und Bedeutung für die Sozialpädiatrie

Monatsschrift Kinderheilkunde, 2023-12, Vol.171 (12), p.1092-1099

2023

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Decision-making for children and adolescents: a scoping review of interventions increasing participation in decision-making

Pediatric research, 2024-10

2024

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Erratum: Krebskranke Kinder in der familienorientierten Rehabilitation: Ziele und Veränderung der körperlichen Leistungsfähigkeit

Rehabilitation (Stuttgart), 2021-04, Vol.60 (2), p.e2-e2

2021

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Does a Train-the-Trainer Approach for Enhancing Healthcare Professionals’ Skills in Patient Education during Inpatient Medical Rehabilitation Improve Patient Outcomes?

Rehabilitation research and practice, 2020, Vol.2020 (2020), p.1-16

2020

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Auswirkungen einer Pandemie auf Menschen mit Seltenen Erkrankungen und Empfehlungen zur Aufrechterhaltung von Versorgung und Teilhabe

Versorgung von Menschen mit Seltenen Erkrankungen: Empfehlungen für eine gelungene intersektorale Zusammenarbeit

Parents as informal caregivers of children and adolescents with spinal muscular atrophy: a systematic review of quantitative and qualitative data on the psychosocial situation, caregiver burden, and family needs

When a mother has cancer: strains and resources of affected families from the mother's and father's perspective - a qualitative study

Impact of the COVID-19 pandemic on health care and daily life of patients with rare diseases from the perspective of patient organizations - a qualitative interview study

Psychosocial interventions for rehabilitation and reintegration into daily life of pediatric cancer survivors and their families: A systematic review

Families Affected by Parental Cancer: Quality of Life, Impact on Children and Psychosocial Care Needs

Psychosocial Interventions for Families with Parental Cancer and Barriers and Facilitators to Implementation and Use - A Systematic Review

Parental Cancer: Acceptance and Usability of an Information Booklet for Affected Parents

Anxiety and depression in working-age cancer survivors: a register-based study

Uncertainties of healthcare professionals and informal caregivers in rare diseases: A systematic review

Parents’ perception of their children’s process of reintegration after childhood cancer treatment

Social relationships and physician utilization among older adults-A systematic review

Children with cancer and their families after active treatment: analyses of biopsychosocial needs and implications for healthcare – a study protocol

Estimates of Prevalence Rates of Cancer Patients With Children and Well-Being in Affected Children: A Systematic Review on Population-Based Findings

Returning to daily life: a qualitative interview study on parents of childhood cancer survivors in Germany

Experiences and the psychosocial situation of parental caregivers of children with spinal muscular atrophy against the background of new treatment options: a qualitative interview study

Patient experiences of interprofessional collaboration and intersectoral communication in rare disease healthcare in Germany - a mixed-methods study

Interface management concepts in healthcare for rare diseases in Germany: a study protocol for a mixed-methods study to develop best practice recommendations

Exploring the perspective of adolescent childhood cancer survivors on follow‐up care and their concerns regarding the transition process—A qualitative content analysis

Reintegration into school, kindergarten and work in families of childhood cancer survivors after a family-oriented rehabilitation program

Gesundheitsbezogene Versorgungsforschung im Kindes- und Jugendalter: Ziele, Aktivitäten, Zukunftsperspektiven und Bedeutung für die Sozialpädiatrie

Decision-making for children and adolescents: a scoping review of interventions increasing participation in decision-making

Erratum: Krebskranke Kinder in der familienorientierten Rehabilitation: Ziele und Veränderung der körperlichen Leistungsfähigkeit

Does a Train-the-Trainer Approach for Enhancing Healthcare Professionals’ Skills in Patient Education during Inpatient Medical Rehabilitation Improve Patient Outcomes?

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