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Development and content validation of a sunlight exposure diary in patients with erythropoietic protoporphyria

Journal of patient-reported outcomes, 2023-11, Vol.7 (1), p.119-5, Article 119

2023

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Symptoms and impacts in anemia of chronic kidney disease

Journal of patient-reported outcomes, 2020-07, Vol.4 (1), p.64-10, Article 64

2020

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Evaluating the Content Validity, Clarity, and Relevance of Two Patient-Reported Outcomes for Use With Adults With EGFR-Mutated NSCLC

JTO clinical and research reports, 2021-08, Vol.2 (8), p.100198, Article 100198

2021

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Development of a patient-reported outcome questionnaire to assess signs and symptoms of hidradenitis suppurativa: The Hidradenitis Suppurativa Symptom Diary

Journal of the American Academy of Dermatology, 2023-05, Vol.88 (5), p.1123-1125

2023

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Development and Content Validation of Novel Patient-Reported Outcome Measures to Assess Disease Severity and Change in Patients with Erythropoietic Protoporphyria: The EPP Impact Questionnaire (EPIQ)

Patient related outcome measures, 2024-02, Vol.15, p.17-30

2024

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Development of a novel patient-reported measure for acromegaly: the Acro-TSQ

Pituitary, 2019-12, Vol.22 (6), p.581-593

2019

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Development of the Systemic Lupus Erythematosus Steroid Questionnaire (SSQ): a novel patient-reported outcome tool to assess the impact of oral steroid treatment

Health and quality of life outcomes, 2017-02, Vol.15 (1), p.43-43, Article 43

2017

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Measurement properties of a patient-reported outcome measure assessing psoriasis severity: The psoriasis symptoms and signs diary

The Journal of dermatological treatment, 2016-07, Vol.27 (4), p.322-327

2016

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Assessing health-related quality of life for advanced basal cell carcinoma and basal cell carcinoma nevus syndrome: development of the first disease-specific patient-reported outcome questionnaires

JAMA dermatology (Chicago, Ill.), 2014-02, Vol.150 (2), p.169

2014

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Treatment Satisfaction in Systemic Lupus Erythematosus: Development of a Patient-Reported Outcome Measure

Journal of clinical rheumatology, 2017-03, Vol.23 (2), p.94-101

2017

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The Diabetes Intention, Attitude, and Behavior Questionnaire: evaluation of a brief questionnaire to measure physical activity, dietary control, maintenance of a healthy weight, and psychological antecedents

Patient preference and adherence, 2016-01, Vol.10 (Issue 1), p.213-222

2016

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Psychometric Evaluation of the FACT Colorectal Cancer Symptom Index (FCSI‐9): Reliability, Validity, Responsiveness, and Clinical Meaningfulness

The oncologist (Dayton, Ohio), 2010-01, Vol.15 (3), p.308-316

2010

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Development of a patient-reported outcome questionnaire for use in adults with moderate-to-severe plaque psoriasis: The Psoriasis Symptoms and Signs Diary

Journal of Dermatology & Dermatologic Surgery, 2016-01, Vol.20 (1), p.19-26

2016

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Assessing Health-Related Quality-of-Life and Health State Preference in Persons with Obesity: A Validation Study

Quality of life research, 1997-05, Vol.6 (4), p.311-322

1997

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Pragmatic measurement of health satisfaction in people with type 2 diabetes mellitus using the Current Health Satisfaction Questionnaire

Patient related outcome measures, 2015-01, Vol.6 (default), p.103-115

2015

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Psychological Impact of Erectile Dysfunction: Validation of a New Health Related Quality of Life Measure for Patients With Erectile Dysfunction

The Journal of urology, 2002-11, Vol.168 (5), p.2086-2091

2002

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27630 Assessing signs and symptoms of hidradenitis suppurativa from the patient perspective

Journal of the American Academy of Dermatology, 2021-09, Vol.85 (3), p.AB157-AB157

2021

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A Comparison of Two Approaches for Assessing Patient Importance Weights to Conduct an Extended Q-TWiST Analysis

Quality of life research, 1999-05, Vol.8 (3), p.197-207

1999

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The impact of infusion reactions on oncology patients and clinicians in the inpatient and outpatient practice settings: oncology nurses' perspectives

Journal of infusion nursing, 2007-05, Vol.30 (3), p.153-160

2007

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Health-related quality-of-life and quality-days incrementally gained in symptomatic nonerosive GERD patients treated with lansoprazole or ranitidine

Digestive diseases and sciences, 2001-11, Vol.46 (11), p.2416-2423

2001

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ORTHO birth control satisfaction assessment tool: assessing sensitivity to change and predictors of satisfaction

Contraception (Stoneham), 2006-10, Vol.74 (4), p.303-308

2006

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Development of a health-related quality-of-life questionnaire for individuals with gastroesophageal reflux disease a validation study

Digestive diseases and sciences, 1999-07, Vol.44 (7), p.1376-1383

1999

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PSAT103 Qualitative Research in Children with Achondroplasia and Parents of Children with Achondroplasia: Medical Challenges and Impacts

Journal of the Endocrine Society, 2022-11, Vol.6 (Supplement_1), p.A631-A632

2022

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PSAT102 Qualitative Research in Children and Parents of Children with Achondroplasia to Cognitively Debrief Three Patient-Reported Outcome Measures and Confirm the Content Validity of a Clinical-Assessed Measure

Journal of the Endocrine Society, 2022-11, Vol.6 (Supplement_1), p.A630-A631

2022

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A New Treatment Satisfaction Measure for Asthmatics: A Validation Study

Quality of life research, 2000-01, Vol.9 (7), p.873-882

2000

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Development and content validation of a sunlight exposure diary in patients with erythropoietic protoporphyria

Symptoms and impacts in anemia of chronic kidney disease

Evaluating the Content Validity, Clarity, and Relevance of Two Patient-Reported Outcomes for Use With Adults With EGFR-Mutated NSCLC

Development of a patient-reported outcome questionnaire to assess signs and symptoms of hidradenitis suppurativa: The Hidradenitis Suppurativa Symptom Diary

Development and Content Validation of Novel Patient-Reported Outcome Measures to Assess Disease Severity and Change in Patients with Erythropoietic Protoporphyria: The EPP Impact Questionnaire (EPIQ)

Development of a novel patient-reported measure for acromegaly: the Acro-TSQ

Development of the Systemic Lupus Erythematosus Steroid Questionnaire (SSQ): a novel patient-reported outcome tool to assess the impact of oral steroid treatment

Measurement properties of a patient-reported outcome measure assessing psoriasis severity: The psoriasis symptoms and signs diary

Assessing health-related quality of life for advanced basal cell carcinoma and basal cell carcinoma nevus syndrome: development of the first disease-specific patient-reported outcome questionnaires

Treatment Satisfaction in Systemic Lupus Erythematosus: Development of a Patient-Reported Outcome Measure

The Diabetes Intention, Attitude, and Behavior Questionnaire: evaluation of a brief questionnaire to measure physical activity, dietary control, maintenance of a healthy weight, and psychological antecedents

Psychometric Evaluation of the FACT Colorectal Cancer Symptom Index (FCSI‐9): Reliability, Validity, Responsiveness, and Clinical Meaningfulness

Development of a patient-reported outcome questionnaire for use in adults with moderate-to-severe plaque psoriasis: The Psoriasis Symptoms and Signs Diary

Assessing Health-Related Quality-of-Life and Health State Preference in Persons with Obesity: A Validation Study

Pragmatic measurement of health satisfaction in people with type 2 diabetes mellitus using the Current Health Satisfaction Questionnaire

Psychological Impact of Erectile Dysfunction: Validation of a New Health Related Quality of Life Measure for Patients With Erectile Dysfunction

27630 Assessing signs and symptoms of hidradenitis suppurativa from the patient perspective

A Comparison of Two Approaches for Assessing Patient Importance Weights to Conduct an Extended Q-TWiST Analysis

The impact of infusion reactions on oncology patients and clinicians in the inpatient and outpatient practice settings: oncology nurses' perspectives

Health-related quality-of-life and quality-days incrementally gained in symptomatic nonerosive GERD patients treated with lansoprazole or ranitidine

ORTHO birth control satisfaction assessment tool: assessing sensitivity to change and predictors of satisfaction

Development of a health-related quality-of-life questionnaire for individuals with gastroesophageal reflux disease a validation study

PSAT103 Qualitative Research in Children with Achondroplasia and Parents of Children with Achondroplasia: Medical Challenges and Impacts

PSAT102 Qualitative Research in Children and Parents of Children with Achondroplasia to Cognitively Debrief Three Patient-Reported Outcome Measures and Confirm the Content Validity of a Clinical-Assessed Measure

A New Treatment Satisfaction Measure for Asthmatics: A Validation Study

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