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Fundamental Outcome Measurement: Selecting Patient Reported Outcome Instruments and Interpreting the Data they Produce

Innovations in pharmacy, 2021-05, Vol.12 (2), p.17

2021

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The development of the PlexiQoL: A patient‐reported outcome measure for adults with neurofibromatosis type 1‐associated plexiform neurofibromas

Molecular genetics & genomic medicine, 2020-12, Vol.8 (12), p.e1530-n/a

2020

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Cross-cultural adaptation of the Cambridge Pulmonary Hypertension Outcome Review for use in patients with pulmonary hypertension in Colombia

Jornal brasileiro de pneumologia, 2019, Vol.45 (6), p.e20180332

2019

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A Review of the Psychometric Properties and Use of the Rheumatoid Arthritis Quality of Life Questionnaire (RAQoL) in Clinical Research

Current rheumatology reviews, 2017-12, Vol.13 (3)

2017

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Psoriatic Arthritis Quality of Life Questionnaire: translation, cultural adaptation and validation into Brazilian Portuguese language

Advances in rheumatology (London, England), 2021-02, Vol.61 (1), p.13-13, Article 13

2021

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Assessment of the performance of the Brazilian Portuguese Nottingham Health Profile in adult growth hormone deficiency and pulmonary hypertension [version 2; peer review: 2 approved]

F1000 research, 2021, Vol.9, p.1399-1399

2021

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Adaptation and validation of the quality of life assessment of the Cambridge pulmonary hypertension outcome review (CAMPHOR) for Brazil

Journal of patient-reported outcomes, 2020-06, Vol.4 (1), p.43-43, Article 43

2020

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A qualitative study of the impact of plexiform neurofibromas on need fulfilment in adults with neurofibromatosis type 1

SAGE open medicine, 2019, Vol.7, p.2050312119829680-2050312119829680

2019

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ADAPTATION AND VALIDATION OF THE CAMBRIDGE PULMONARY HYPERTENSION OUTCOME REVIEW (CAMPHOR) FOR CROATIA

Acta clinica Croatica (Tisak), 2019-03, Vol.58 (1), p.3-12

2019

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Setting and maintaining standards for patient-reported outcome measures: can we rely on the COSMIN checklists?

Journal of medical economics, 2021-01, Vol.24 (1), p.502-511

2021

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Composite outcome measurement in clinical research: the triumph of illusion over reality?

Journal of medical economics, 2020-10, Vol.23 (10), p.1196-1204

2020

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Evaluation of the Unidimensional Fatigue Impact Scale in Crohn’s Disease: The Importance of Local Item Dependency

Journal of nursing measurement, 2022-06, Vol.30 (2), p.345-360

2022

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Measurement of patient-reported outcomes. 2: Are current measures failing us?

Journal of medical economics, 2019-06, Vol.22 (6), p.523-530

2019

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COSMIN reviews: the need to consider measurement theory, modern measurement and a prospective rather than retrospective approach to evaluating patient-based measures

Journal of medical economics, 2021-01, Vol.24 (1), p.860-861

2021

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Development and validation of the Parenteral Nutrition Impact Questionnaire (PNIQ), a patient-centric outcome measure for Home Parenteral Nutrition

Clinical nutrition (Edinburgh, Scotland), 2018-06, Vol.37 (3), p.978-983

2018

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Improving Scoring Precision and Internal Construct Validity of the Bath Ankylosing Spondylitis Disease Activity Index Using Rasch Measurement Theory

Journal of rheumatology, 2020-03, Vol.47 (3), p.354-361

2020

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Needs-based quality of life in adults dependent on home parenteral nutrition

Clinical nutrition (Edinburgh, Scotland), 2019-06, Vol.38 (3), p.1433-1438

2019

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Measurement of patient-reported outcomes. 1: The search for the Holy Grail

Journal of medical economics, 2019-06, Vol.22 (6), p.516-522

2019

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Adaptation and validation of the Rheumatoid Arthritis Quality of Life (RAQoL) questionnaire for use in Bulgaria

Rheumatology international, 2020-12, Vol.40 (12), p.2077-2083

2020

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International Development of the Alzheimer's Patient Partners Life Impact Questionnaire (APPLIQue)

American journal of Alzheimer's disease and other dementias, 2020-01, Vol.35, p.1533317520951690

2020

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The impact of Home Parenteral Nutrition on the lives of adults with Type 3 Intestinal Failure

Clinical nutrition ESPEN, 2018-04, Vol.24, p.35-40

2018

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Development and validation of a voice-hearing task for research on auditory verbal hallucinations and auditory misperception

Psychosis, 2017-10, Vol.9 (4), p.338-346

2017

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Translation, cross-cultural adaptation and validation of the Osteoarthritis Quality of Life (OAQoL) questionnaire for use in Portugal

Rheumatology international, 2019-04, Vol.39 (4), p.715-722

2019

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The Polish adaptation of the CAMbridge Pulmonary Hypertension Outcome Review (CAMPHOR)

Cardiology journal, 2020, Vol.27 (5), p.608-615

2020

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Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal

Acta reumatológica portuguesa, 2018-04, Vol.43 (2), p.132

2018

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Fundamental Outcome Measurement: Selecting Patient Reported Outcome Instruments and Interpreting the Data they Produce

The development of the PlexiQoL: A patient‐reported outcome measure for adults with neurofibromatosis type 1‐associated plexiform neurofibromas

Cross-cultural adaptation of the Cambridge Pulmonary Hypertension Outcome Review for use in patients with pulmonary hypertension in Colombia

A Review of the Psychometric Properties and Use of the Rheumatoid Arthritis Quality of Life Questionnaire (RAQoL) in Clinical Research

Psoriatic Arthritis Quality of Life Questionnaire: translation, cultural adaptation and validation into Brazilian Portuguese language

Assessment of the performance of the Brazilian Portuguese Nottingham Health Profile in adult growth hormone deficiency and pulmonary hypertension [version 2; peer review: 2 approved]

Adaptation and validation of the quality of life assessment of the Cambridge pulmonary hypertension outcome review (CAMPHOR) for Brazil

A qualitative study of the impact of plexiform neurofibromas on need fulfilment in adults with neurofibromatosis type 1

ADAPTATION AND VALIDATION OF THE CAMBRIDGE PULMONARY HYPERTENSION OUTCOME REVIEW (CAMPHOR) FOR CROATIA

Setting and maintaining standards for patient-reported outcome measures: can we rely on the COSMIN checklists?

Composite outcome measurement in clinical research: the triumph of illusion over reality?

Evaluation of the Unidimensional Fatigue Impact Scale in Crohn’s Disease: The Importance of Local Item Dependency

Measurement of patient-reported outcomes. 2: Are current measures failing us?

COSMIN reviews: the need to consider measurement theory, modern measurement and a prospective rather than retrospective approach to evaluating patient-based measures

Development and validation of the Parenteral Nutrition Impact Questionnaire (PNIQ), a patient-centric outcome measure for Home Parenteral Nutrition

Improving Scoring Precision and Internal Construct Validity of the Bath Ankylosing Spondylitis Disease Activity Index Using Rasch Measurement Theory

Needs-based quality of life in adults dependent on home parenteral nutrition

Measurement of patient-reported outcomes. 1: The search for the Holy Grail

Adaptation and validation of the Rheumatoid Arthritis Quality of Life (RAQoL) questionnaire for use in Bulgaria

International Development of the Alzheimer's Patient Partners Life Impact Questionnaire (APPLIQue)

The impact of Home Parenteral Nutrition on the lives of adults with Type 3 Intestinal Failure

Development and validation of a voice-hearing task for research on auditory verbal hallucinations and auditory misperception

Translation, cross-cultural adaptation and validation of the Osteoarthritis Quality of Life (OAQoL) questionnaire for use in Portugal

The Polish adaptation of the CAMbridge Pulmonary Hypertension Outcome Review (CAMPHOR)

Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal

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