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Literature Review of Methods to Translate Health-Related Quality of Life Questionnaires for Use in Multinational Clinical Trials

Value in health, 2008-05, Vol.11 (3), p.509-521

2008

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Impact and burden of acid sphingomyelinase deficiency from a patient and caregiver perspective

Scientific reports, 2021-10, Vol.11 (1), p.20972-20972, Article 20972

2021

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Multinational Trials—Recommendations on the Translations Required, Approaches to Using the Same Language in Different Countries, and the Approaches to Support Pooling the Data: The ISPOR Patient-Reported Outcomes Translation and Linguistic Validation Good Research Practices Task Force Report

Value in health, 2009-06, Vol.12 (4), p.430-440

2009

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Development and exploration of the content validity of a patient-reported outcome measure to evaluate the impact of migraine- the migraine physical function impact diary (MPFID)

Health and quality of life outcomes, 2017-11, Vol.15 (1), p.224-224, Article 224

2017

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Using Health-Related Social Media to Understand the Experiences of Adults With Lung Cancer in the Era of Immuno-Oncology and Targeted Therapies: Observational Study

JMIR cancer, 2023-07, Vol.9, p.e45707-e45707

2023

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The Severity of Chronic Cough Diary (SCCD): development and content validation of a novel patient-reported outcome instrument for evaluating the symptom experience of chronic cough

Journal of patient-reported outcomes, 2023-07, Vol.7 (1), p.65-65, Article 65

2023

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Assessing the impact on caregivers caring for patients with rare pediatric lysosomal storage diseases: development of the Caregiver Impact Questionnaire

Journal of patient-reported outcomes, 2019-07, Vol.3 (1), p.44-14, Article 44

2019

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Outcome measures for migraine: Measuring the impact of migraine and results of migraine treatment

Handbook of clinical neurology, 2024, Vol.199, p.303-328

2024

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Patients’ experience of asthma control and clinical guidelines: Perspectives from a qualitative study

Respiratory medicine, 2012-06, Vol.106 (6), p.909-911

2012

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The development of a patient-reported outcome measure for assessing nighttime symptoms of chronic obstructive pulmonary disease

Health and quality of life outcomes, 2013-06, Vol.11 (1), p.104-104, Article 104

2013

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EQ-5D™-derived utility values for different levels of migraine severity from a UK sample of migraineurs

Health and quality of life outcomes, 2012-06, Vol.10 (1), p.65-65, Article 65

2012

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The venous leg ulcer quality of life (VLU-QoL) questionnaire: development and psychometric validation

Wound repair and regeneration, 2007-07, Vol.15 (4), p.465-473

2007

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Measuring the impact of migraine for evaluating outcomes of preventive treatments for migraine headaches

Health and quality of life outcomes, 2016-10, Vol.14 (1), p.143-143, Article 143

2016

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Development of the SMA independence scale–upper limb module (SMAIS–ULM): A novel scale for individuals with Type 2 and non-ambulant Type 3 SMA

Journal of the neurological sciences, 2022-01, Vol.432, p.120059-120059, Article 120059

2022

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Defining Patient Engagement in Research: Results of a Systematic Review and Analysis: Report of the ISPOR Patient-Centered Special Interest Group

Value in health, 2020-06, Vol.23 (6), p.677-688

2020

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Developing a Conceptual Disease Model of Patient Experiences and Identifying Patient-Reported Clinical Outcome Assessments for Use in Trials of Treatments for Focal Onset Seizures

Neuropsychiatric disease and treatment, 2022-05, Vol.18, p.611-631

2022

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Psychometric Evaluation of a Novel Instrument Assessing the Impact of Migraine on Physical Functioning: The Migraine Physical Function Impact Diary

Headache, 2017-10, Vol.57 (9), p.1385-1398

2017

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WITHDRAWN: Development of the SMA Independence Scale–Upper Limb Module (SMAIS–ULM): A novel scale for individuals with Type 2 and non-ambulant Type 3 SMA

Journal of the neurological sciences, 2021-01, p.117318, Article 117318

2021

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Reducing the physical, social, and emotional impact of episodic migraine: Results from erenumab STRIVE and ARISE phase III randomized trials

Headache, 2022-02, Vol.62 (2), p.159-168

2022

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Evaluating functional disability in clinical trials of lisdexamfetamine dimesylate in binge eating disorder using the Sheehan Disability Scale

International journal of methods in psychiatric research, 2021-03, Vol.30 (1), p.e1849-n/a

2021

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Evaluating the Psychometric Properties of the Migraine Functional Impact Questionnaire (MFIQ)

Headache, 2019-09, Vol.59 (8), p.1253-1269

2019

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Reliability of the modified rankin scale across multiple raters : Benefits of a structured interview

Stroke (1970), 2005-04, Vol.36 (4), p.777-781

2005

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Improving the assessment of outcomes in stroke: Use of a structured interview to assign grades on the modified Rankin Scale

Stroke (1970), 2002-09, Vol.33 (9), p.2243-2246

2002

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Development of a New Tool for Evaluating the Benefit of Preventive Treatments for Migraine on Functional Outcomes – The Migraine Functional Impact Questionnaire (MFIQ)

Headache, 2018-11, Vol.58 (10), p.1612-1628

2018

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Beyond study participants: a framework for engaging patients in the selection or development of clinical outcome assessments for evaluating the benefits of treatment in medical product development

Quality of life research, 2018-01, Vol.27 (1), p.5-16

2018

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Literature Review of Methods to Translate Health-Related Quality of Life Questionnaires for Use in Multinational Clinical Trials

Impact and burden of acid sphingomyelinase deficiency from a patient and caregiver perspective

Multinational Trials—Recommendations on the Translations Required, Approaches to Using the Same Language in Different Countries, and the Approaches to Support Pooling the Data: The ISPOR Patient-Reported Outcomes Translation and Linguistic Validation Good Research Practices Task Force Report

Development and exploration of the content validity of a patient-reported outcome measure to evaluate the impact of migraine- the migraine physical function impact diary (MPFID)

Using Health-Related Social Media to Understand the Experiences of Adults With Lung Cancer in the Era of Immuno-Oncology and Targeted Therapies: Observational Study

The Severity of Chronic Cough Diary (SCCD): development and content validation of a novel patient-reported outcome instrument for evaluating the symptom experience of chronic cough

Assessing the impact on caregivers caring for patients with rare pediatric lysosomal storage diseases: development of the Caregiver Impact Questionnaire

Outcome measures for migraine: Measuring the impact of migraine and results of migraine treatment

Patients’ experience of asthma control and clinical guidelines: Perspectives from a qualitative study

The development of a patient-reported outcome measure for assessing nighttime symptoms of chronic obstructive pulmonary disease

EQ-5D™-derived utility values for different levels of migraine severity from a UK sample of migraineurs

The venous leg ulcer quality of life (VLU-QoL) questionnaire: development and psychometric validation

Measuring the impact of migraine for evaluating outcomes of preventive treatments for migraine headaches

Development of the SMA independence scale–upper limb module (SMAIS–ULM): A novel scale for individuals with Type 2 and non-ambulant Type 3 SMA

Defining Patient Engagement in Research: Results of a Systematic Review and Analysis: Report of the ISPOR Patient-Centered Special Interest Group

Developing a Conceptual Disease Model of Patient Experiences and Identifying Patient-Reported Clinical Outcome Assessments for Use in Trials of Treatments for Focal Onset Seizures

Psychometric Evaluation of a Novel Instrument Assessing the Impact of Migraine on Physical Functioning: The Migraine Physical Function Impact Diary

WITHDRAWN: Development of the SMA Independence Scale–Upper Limb Module (SMAIS–ULM): A novel scale for individuals with Type 2 and non-ambulant Type 3 SMA

Reducing the physical, social, and emotional impact of episodic migraine: Results from erenumab STRIVE and ARISE phase III randomized trials

Evaluating functional disability in clinical trials of lisdexamfetamine dimesylate in binge eating disorder using the Sheehan Disability Scale

Evaluating the Psychometric Properties of the Migraine Functional Impact Questionnaire (MFIQ)

Reliability of the modified rankin scale across multiple raters : Benefits of a structured interview

Improving the assessment of outcomes in stroke: Use of a structured interview to assign grades on the modified Rankin Scale

Development of a New Tool for Evaluating the Benefit of Preventive Treatments for Migraine on Functional Outcomes – The Migraine Functional Impact Questionnaire (MFIQ)

Beyond study participants: a framework for engaging patients in the selection or development of clinical outcome assessments for evaluating the benefits of treatment in medical product development

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