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The need for evidence‐based treatment decisions in spinal muscular atrophy type 0

Annals of clinical and translational neurology, 2021-10, Vol.8 (10), p.2094-2095

2021

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Importance of Patient Involvement in the Value Assessment Process: On the Way Towards Personalised Treatments

PharmacoEconomics, 2022-04, Vol.40 (Suppl 1), p.7-10

Gusset, Nicole

2022

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A Patient-Centered Evaluation of Meaningful Change on the 32-Item Motor Function Measure in Spinal Muscular Atrophy Using Qualitative and Quantitative Data

Frontiers in neurology, 2022-01, Vol.12, p.770423-770423

2022

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Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers' perspective: a two-part study

BMC neurology, 2021-03, Vol.21 (1), p.143-143, Article 143

2021

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Correction to: Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers’ perspective: a two-part study

BMC neurology, 2021-09, Vol.21 (1), p.1-354, Article 354

2021

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Patientenpartizipation in der pädiatrischen Versorgungsforschung am Universitätsklinikum Freiburg: von der Projektbeteiligung zum Patientenbeirat

Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen, 2022-09, Vol.173, p.98-105

2022

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Systematic Literature Review of the Natural History of Spinal Muscular Atrophy: Motor Function, Scoliosis, and Contractures

Neurology, 2023-11, Vol.101 (21), p.e2103

2023

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Zeitschrift fur Evidenz, Fortbildung und Qualitat im Gesundheitswesen

Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen, 2022-09, Vol.173, p.98-105

2022

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Understanding European patient expectations towards current therapeutic development in spinal muscular atrophy

Neuromuscular disorders : NMD, 2021-05, Vol.31 (5), p.419-430

2021

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Disease impact on general well-being and therapeutic expectations of european type II and type III spinal muscular atrophy patients

Neuromuscular disorders : NMD, 2017-05, Vol.27 (5), p.428-438

2017

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Delphi Consensus Panel on Assessing Clinically Meaningful Treatment Outcomes in Adults Living with Spinal Muscular Atrophy (SMA) (P2-11.007)

Neurology, 2024-04, Vol.102 (17_supplement_1)

2024

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A Decision for Life – Treatment decisions in newly diagnosed families with spinal muscular atrophy (SMA)

European journal of paediatric neurology, 2021-01, Vol.30, p.105-107

2021

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254th ENMC international workshop. Formation of a European network to initiate a European data collection, along with development and sharing of treatment guidelines for adult SMA patients. Virtual meeting 28 – 30 January 2022

Neuromuscular disorders : NMD, 2023-06, Vol.33 (6), p.511-522

2023

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Medical-ethical recommendations: preimplantation genetic testing PGT

Swiss medical weekly, 2020-06, Vol.150 (2526), p.w20298

Swiss Medical Weekly

2020

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A Systematic Literature Review of the Natural History of Respiratory, Swallowing, Feeding, and Speech Functions in Spinal Muscular Atrophy (SMA)

Journal of neuromuscular diseases, 2024-09, Vol.11 (5), p.889-904

2024

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Estimating larger carnivore numbers from track counts and measurements

African journal of ecology, 2005-12, Vol.43 (4), p.320-324

2005

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Frustrated appetitive foraging behavior, stereotypic pacing, and fecal glucocorticoid levels in snow leopards (Uncia uncia) in the Zurich Zoo

Journal of applied animal welfare science, 2008, Vol.11 (1), p.74-83

2008

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The feeding habits of brown hyaenas (Hyaena brunnea) on a game ranch in Limpopo Province, South Africa

African zoology, 2003-04, Vol.38 (1), p.181-184

2003

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The feeding habits of brown hyaenas (Hyaena brunnea) on a game ranch in Limpopo Province, South Africa : short communication

African zoology, 2003-04, Vol.38 (1), p.181-184

2003

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The need for evidence‐based treatment decisions in spinal muscular atrophy type 0

Importance of Patient Involvement in the Value Assessment Process: On the Way Towards Personalised Treatments

A Patient-Centered Evaluation of Meaningful Change on the 32-Item Motor Function Measure in Spinal Muscular Atrophy Using Qualitative and Quantitative Data

Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers' perspective: a two-part study

Correction to: Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers’ perspective: a two-part study

Reverse Engineering of Digital Measures: Inviting Patients to the Conversation

Patientenpartizipation in der pädiatrischen Versorgungsforschung am Universitätsklinikum Freiburg: von der Projektbeteiligung zum Patientenbeirat

Systematic Literature Review of the Natural History of Spinal Muscular Atrophy: Motor Function, Scoliosis, and Contractures

Zeitschrift fur Evidenz, Fortbildung und Qualitat im Gesundheitswesen

Understanding European patient expectations towards current therapeutic development in spinal muscular atrophy

Disease impact on general well-being and therapeutic expectations of european type II and type III spinal muscular atrophy patients

Delphi Consensus Panel on Assessing Clinically Meaningful Treatment Outcomes in Adults Living with Spinal Muscular Atrophy (SMA) (P2-11.007)

A Decision for Life – Treatment decisions in newly diagnosed families with spinal muscular atrophy (SMA)

254th ENMC international workshop. Formation of a European network to initiate a European data collection, along with development and sharing of treatment guidelines for adult SMA patients. Virtual meeting 28 – 30 January 2022

Patient and parent oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in SMA. Rome, 13 July 2019

Medical-ethical recommendations: preimplantation genetic testing PGT

A Systematic Literature Review of the Natural History of Respiratory, Swallowing, Feeding, and Speech Functions in Spinal Muscular Atrophy (SMA)

Estimating larger carnivore numbers from track counts and measurements

Frustrated appetitive foraging behavior, stereotypic pacing, and fecal glucocorticoid levels in snow leopards (Uncia uncia) in the Zurich Zoo

The feeding habits of brown hyaenas (Hyaena brunnea) on a game ranch in Limpopo Province, South Africa

The feeding habits of brown hyaenas (Hyaena brunnea) on a game ranch in Limpopo Province, South Africa : short communication

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