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Just Dissemination of Genomics-Informed Public Health Applications: Time to Deepen Our Public Engagement Approaches

Public health genomics, 2023-01, Vol.26 (1), p.165-170

2023

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Direct-to-Consumer Genetic Testing: User Motivations, Decision Making, and Perceived Utility of Results

Public health genomics, 2017-01, Vol.20 (1), p.36-45

2017

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Encouraging Participation And Transparency In Biobank Research

Health Affairs, 2018-08, Vol.37 (8), p.1313-1320

2018

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Patient and Provider Perspectives Regarding Enrollment in Head and Neck Cancer Research

Otolaryngology-head and neck surgery, 2020-01, Vol.162 (1), p.73-78

2020

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Adolescent and parent perspectives on genomic sequencing to inform cancer care

Pediatric blood & cancer, 2022-09, Vol.69 (9), p.e29791-n/a

2022

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Knowledge regarding and patterns of genetic testing in patients newly diagnosed with breast cancer participating in the iCanDecide trial

Cancer, 2018-10, Vol.124 (20), p.4000-4009

2018

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Next‐generation sequencing in precision oncology: Patient understanding and expectations

Cancer medicine (Malden, MA), 2019-01, Vol.8 (1), p.227-237

2019

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Testing a deliberative democracy method with citizens of African ancestry to weigh pros and cons of targeted screening for hereditary breast and ovarian cancer risk

Frontiers in public health, 2022-11, Vol.10, p.984926

2022

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What Clinical Ethics Can Learn From Decision Science

AMA journal of ethics, 2019-10, Vol.21 (10), p.E906-912

2019

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Interpretations of the Term "Actionable" when Discussing Genetic Test Results: What you Mean Is Not What I Heard

Journal of genetic counseling, 2019-04, Vol.28 (2), p.334

2019

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Interpretations of the Term “Actionable” when Discussing Genetic Test Results: What you Mean Is Not What I Heard

Journal of genetic counseling, 2019-04, Vol.28 (2), p.334-342

2019

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How Well Do Customers of Direct-to-Consumer Personal Genomic Testing Services Comprehend Genetic Test Results? Findings from the Impact of Personal Genomics Study

Public health genomics, 2015-01, Vol.18 (4), p.216-224

2015

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Public’s Views toward Return of Secondary Results in Genomic Sequencing: It’s (Almost) All about the Choice

Journal of genetic counseling, 2017-12, Vol.26 (6), p.1197-1212

2017

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Support for association between ADHD and two candidate genes: NET1 and DRD1

American journal of medical genetics. Part B, Neuropsychiatric genetics, 2005-04, Vol.134B (1), p.67-72

2005

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Family History Collection Practices: National Survey of Pediatric Primary Care Providers

Clinical pediatrics, 2018-05, Vol.57 (5), p.537-546

2018

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Human papillomavirus is not associated with colorectal cancer in a large international study

Cancer causes & control, 2010-05, Vol.21 (5), p.737-743

2010

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Huntington's Disease Community Perspectives on Desired Characteristics of Disease Modifying Therapies

Tremor and other hyperkinetic movements (New York, N.Y.), 2021-01, Vol.11 (1), p.3-3

2021

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Impact of Non-Welfare Interests on Willingness to Donate to Biobanks: An Experimental Survey

Journal of empirical research on human research ethics, 2014-10, Vol.9 (4), p.22-33

2014

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Effect of Public Deliberation on Attitudes toward Return of Secondary Results in Genomic Sequencing

Journal of genetic counseling, 2017-02, Vol.26 (1), p.122-132

2017

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Pervasive developmental disorder and childhood-onset schizophrenia: comorbid disorder or a phenotypic variant of a very early onset illness?

Biological psychiatry (1969), 2004-05, Vol.55 (10), p.989-994

2004

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Oncologists’ Use of Genomic Sequencing Data to Inform Clinical Management

JCO precision oncology, 2018 (2), p.1-13

2018

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3313 “My research is their business, but I’m not their business”: Patient and Oncologist Perspectives on the Commercialization of Research Data

Journal of clinical and translational science, 2019-03, Vol.3 (s1), p.136-136

2019

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Germline Findings in Tumor-Only Sequencing: Points to Consider for Clinicians and Laboratories

JNCI : Journal of the National Cancer Institute, 2016-04, Vol.108 (4), p.1

2016

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Sleep disturbances in childhood-onset schizophrenia

Schizophrenia research, 2006-09, Vol.86 (1), p.123-129

2006

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Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine

American journal of human genetics, 2016-06, Vol.98 (6), p.1051-1066

2016

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Just Dissemination of Genomics-Informed Public Health Applications: Time to Deepen Our Public Engagement Approaches

Direct-to-Consumer Genetic Testing: User Motivations, Decision Making, and Perceived Utility of Results

Encouraging Participation And Transparency In Biobank Research

Patient and Provider Perspectives Regarding Enrollment in Head and Neck Cancer Research

Adolescent and parent perspectives on genomic sequencing to inform cancer care

Knowledge regarding and patterns of genetic testing in patients newly diagnosed with breast cancer participating in the iCanDecide trial

Next‐generation sequencing in precision oncology: Patient understanding and expectations

Testing a deliberative democracy method with citizens of African ancestry to weigh pros and cons of targeted screening for hereditary breast and ovarian cancer risk

What Clinical Ethics Can Learn From Decision Science

Interpretations of the Term "Actionable" when Discussing Genetic Test Results: What you Mean Is Not What I Heard

Interpretations of the Term “Actionable” when Discussing Genetic Test Results: What you Mean Is Not What I Heard

How Well Do Customers of Direct-to-Consumer Personal Genomic Testing Services Comprehend Genetic Test Results? Findings from the Impact of Personal Genomics Study

Public’s Views toward Return of Secondary Results in Genomic Sequencing: It’s (Almost) All about the Choice

Support for association between ADHD and two candidate genes: NET1 and DRD1

Family History Collection Practices: National Survey of Pediatric Primary Care Providers

Human papillomavirus is not associated with colorectal cancer in a large international study

Huntington's Disease Community Perspectives on Desired Characteristics of Disease Modifying Therapies

Impact of Non-Welfare Interests on Willingness to Donate to Biobanks: An Experimental Survey

Effect of Public Deliberation on Attitudes toward Return of Secondary Results in Genomic Sequencing

Pervasive developmental disorder and childhood-onset schizophrenia: comorbid disorder or a phenotypic variant of a very early onset illness?

Oncologists’ Use of Genomic Sequencing Data to Inform Clinical Management

3313 “My research is their business, but I’m not their business”: Patient and Oncologist Perspectives on the Commercialization of Research Data

Germline Findings in Tumor-Only Sequencing: Points to Consider for Clinicians and Laboratories

Sleep disturbances in childhood-onset schizophrenia

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine

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