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Patients' and clinicians' perspectives on item importance, scoring, and clinically meaningful differences for the Endometriosis Symptom Diary (ESD) and Endometriosis Impact Scale (EIS)

Health and quality of life outcomes, 2021-01, Vol.19 (1), p.7-14, Article 7

2021

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Development and Psychometric Validation of the 27 Item Zarit Caregiver Interview for Alzheimer's Disease (ZCI-AD-27)

Current Alzheimer research, 2023, Vol.19 (13), p.878-891

2023

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Development and content validation of two new patient-reported outcome measures for endometriosis: the Endometriosis Symptom Diary (ESD) and Endometriosis Impact Scale (EIS)

Journal of patient-reported outcomes, 2020-02, Vol.4 (1), p.13-17, Article 13

2020

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Qualitative interviews of patients with COPD and muscle weakness enrolled in a clinical trial evaluating a new anabolic treatment: patient perspectives of disease experience, trial participation and outcome assessments

Journal of patient-reported outcomes, 2024-04, Vol.8 (1), p.45-45, Article 45

2024

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Qualitative evaluation of the symptoms and quality of life impacts of long-chain fatty acid oxidation disorders

Therapeutic advances in endocrinology and metabolism, 2022-01, Vol.13, p.20420188211065655-20420188211065655

2022

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Generation of evidence supporting the content validity of SF-36, FACIT-F, and LupusQoL, and novel patient-reported symptom items for use in patients with systemic lupus erythematosus (SLE) and SLE with lupus nephritis (LN)

Lupus science & medicine, 2022-08, Vol.9 (1), p.e000712

2022

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Assessing Asthma Symptoms in Adolescents and Adults: Qualitative Research Supporting Development of the Asthma Daily Symptom Diary

Value in health, 2016-06, Vol.19 (4), p.440-450

2016

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Patient‐Reported Outcome Measures for Severe Recurrent Bilateral Nasal Polyps: Psychometric Evaluation and Content Validity

OTO open : the official open access journal of the American Academy of Otolaryngology--Head and Neck Surgery Foundation, 2023-10, Vol.7 (4), p.e84-n/a

2023

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Sometimes It's Difficult to Have a Normal Life＂: Results from a Qualitative Study Exploring Caregiver Burden in Schizophrenia

Schizophrenia Research and Treatment, 2014-01, Vol.2014 (2014), p.54-66

2014

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Content validity of patient-reported outcomes for use in lower-risk myelodysplastic syndromes

Journal of patient-reported outcomes, 2020-08, Vol.4 (1), p.69-13, Article 69

2020

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Pain in castration-resistant prostate cancer with bone metastases: a qualitative study

Health and quality of life outcomes, 2011-10, Vol.9 (1), p.88-88

2011

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Measuring dengue illness intensity: Development and content validity of the dengue virus daily diary (DENV-DD)

Journal of patient-reported outcomes, 2023-08, Vol.7 (1), p.84-84, Article 84

2023

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Understanding and measuring symptoms and health status in asthma COPD overlap: content validity of the EXACT and SGRQ

Journal of patient-reported outcomes, 2018-04, Vol.2 (1), p.18-18, Article 18

2018

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Assessing the Comparability of Paper and Electronic Versions of the EORTC QOL Module for Head and Neck Cancer: A Qualitative Study

JMIR cancer, 2017-05, Vol.3 (1), p.e7-e7

2017

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EVAPIL-R Scale: Continuous Development and Validation of a Tool to Assess Patient-Reported Tolerability of Different Contraceptive Methods in Longitudinal Studies

Clinical therapeutics, 2014-05, Vol.36 (5), p.638-647.e3

2014

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Health-Related Quality of Life, Treatment Satisfaction, Adherence and Persistence in β-Thalassemia and Myelodysplastic Syndrome Patients with Iron Overload Receiving Deferasirox: Results from the EPIC Clinical Trial

Anemia, 2012-01, Vol.2012 (2012), p.98-107

2012

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The humanistic, economic and societal burden of herpes zoster in Europe: a critical review

BMC public health, 2015-02, Vol.15 (1), p.193-193, Article 193

2015

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Burden of herpes zoster in the UK: findings from the zoster quality of life (ZQOL) study

BMC infectious diseases, 2014-07, Vol.14 (1), p.402-402, Article 402

2014

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Comparing patient global impression of severity and patient global impression of change to evaluate test–retest reliability of depression, non-small cell lung cancer, and asthma measures

Quality of life research, 2022-12, Vol.31 (12), p.3501-3512

2022

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A Patient-Centred Approach to Understanding the Trade-Offs Associated with Treatment Decision Making in Hematological Cancers with Short Life Expectancy

Blood, 2018-11, Vol.132 (Supplement 1), p.5899-5899

2018

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Burden of post-herpetic neuralgia in a sample of UK residents aged 50 years or older: findings from the Zoster Quality of Life (ZQOL) study

Health and quality of life outcomes, 2014-06, Vol.12 (1), p.92-92, Article 92

2014

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Fatigue, treatment satisfaction and health‐related quality of life among patients receiving novel drugs suppressing androgen signalling for the treatment of metastatic castrate‐resistant prostate cancer

European journal of cancer care, 2019-01, Vol.28 (1), p.e12949-n/a

2019

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Patients' and clinicians' perspectives on item importance, scoring, and clinically meaningful differences for the Endometriosis Symptom Diary

Health and quality of life outcomes, 2021-01, Vol.19 (1)

2021

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Haemophilia B: impact on patients and economic burden of disease

Thrombosis and haemostasis, 2011-09, Vol.106 (3), p.398-404

2011

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Preliminary Exploration of Patient Perspectives on Tyrosine Kinase Inhibitors for the Treatment of Chronic-Phase Chronic Myeloid Leukemia

Blood, 2019-11, Vol.134 (Supplement_1), p.5918-5918

2019

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Patients' and clinicians' perspectives on item importance, scoring, and clinically meaningful differences for the Endometriosis Symptom Diary (ESD) and Endometriosis Impact Scale (EIS)

Development and Psychometric Validation of the 27 Item Zarit Caregiver Interview for Alzheimer's Disease (ZCI-AD-27)

Development and content validation of two new patient-reported outcome measures for endometriosis: the Endometriosis Symptom Diary (ESD) and Endometriosis Impact Scale (EIS)

Qualitative interviews of patients with COPD and muscle weakness enrolled in a clinical trial evaluating a new anabolic treatment: patient perspectives of disease experience, trial participation and outcome assessments

Qualitative evaluation of the symptoms and quality of life impacts of long-chain fatty acid oxidation disorders

Generation of evidence supporting the content validity of SF-36, FACIT-F, and LupusQoL, and novel patient-reported symptom items for use in patients with systemic lupus erythematosus (SLE) and SLE with lupus nephritis (LN)

Assessing Asthma Symptoms in Adolescents and Adults: Qualitative Research Supporting Development of the Asthma Daily Symptom Diary

Patient‐Reported Outcome Measures for Severe Recurrent Bilateral Nasal Polyps: Psychometric Evaluation and Content Validity

Sometimes It's Difficult to Have a Normal Life＂: Results from a Qualitative Study Exploring Caregiver Burden in Schizophrenia

Content validity of patient-reported outcomes for use in lower-risk myelodysplastic syndromes

Pain in castration-resistant prostate cancer with bone metastases: a qualitative study

Measuring dengue illness intensity: Development and content validity of the dengue virus daily diary (DENV-DD)

Understanding and measuring symptoms and health status in asthma COPD overlap: content validity of the EXACT and SGRQ

Assessing the Comparability of Paper and Electronic Versions of the EORTC QOL Module for Head and Neck Cancer: A Qualitative Study

EVAPIL-R Scale: Continuous Development and Validation of a Tool to Assess Patient-Reported Tolerability of Different Contraceptive Methods in Longitudinal Studies

Health-Related Quality of Life, Treatment Satisfaction, Adherence and Persistence in β-Thalassemia and Myelodysplastic Syndrome Patients with Iron Overload Receiving Deferasirox: Results from the EPIC Clinical Trial

The humanistic, economic and societal burden of herpes zoster in Europe: a critical review

Burden of herpes zoster in the UK: findings from the zoster quality of life (ZQOL) study

Comparing patient global impression of severity and patient global impression of change to evaluate test–retest reliability of depression, non-small cell lung cancer, and asthma measures

A Patient-Centred Approach to Understanding the Trade-Offs Associated with Treatment Decision Making in Hematological Cancers with Short Life Expectancy

Burden of post-herpetic neuralgia in a sample of UK residents aged 50 years or older: findings from the Zoster Quality of Life (ZQOL) study

Fatigue, treatment satisfaction and health‐related quality of life among patients receiving novel drugs suppressing androgen signalling for the treatment of metastatic castrate‐resistant prostate cancer

Patients' and clinicians' perspectives on item importance, scoring, and clinically meaningful differences for the Endometriosis Symptom Diary

Haemophilia B: impact on patients and economic burden of disease

Preliminary Exploration of Patient Perspectives on Tyrosine Kinase Inhibitors for the Treatment of Chronic-Phase Chronic Myeloid Leukemia

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