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P087 Experiences and opinions of cystic fibrosis patients and their families about their inability to access modulator treatments in Türkiye: a qualitative study

Journal of cystic fibrosis, 2024-06, Vol.23, p.S94-S94

2024

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P027This study presents a comprehensive genetic and clinical profiling of patients with cystic fibrosis ineligible for CFTR modulator therapy, offering insights from a diverse patient cohort

Journal of cystic fibrosis, 2024-06, Vol.23, p.S75-S75

2024

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EPS1.06 The validity and reliability of the Turkish version of the AWESCORE test

Journal of cystic fibrosis, 2024-06, Vol.23, p.S35-S36

2024

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P453 Correlation of the upper and lower extremity muscle strength with performance tests in patients with cystic fibrosis

Journal of cystic fibrosis, 2024-06, Vol.23, p.S206-S206

2024

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P356 A qualitative study on awareness, attitudes, behaviors and social adaptation of mothers of children with cystic fibrosis

Journal of cystic fibrosis, 2023-06, Vol.22, p.S173-S173

2023

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171P Newborn spinal muscular atrophy screening: 2-year results of multi-center experience in Turkey

Neuromuscular disorders : NMD, 2024-10, Vol.43, p.104441, Article 104441.606

2024

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307 Beneficial effects of breathing and relaxation exercises on psychological status, sleep, and quality of life of caregivers of children with cystic fibrosis

Journal of cystic fibrosis, 2022-10, Vol.21, p.S181-S182

2022

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135 Electronic home monitoring of children with cystic fibrosis to detect and treat acute pulmonary exacerbations and its effect on 1-year FEV1 loss

Journal of cystic fibrosis, 2022-10, Vol.21, p.S79-S79

2022

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505 Methicillin-resistant Staphylococcus aureus eradication rate increased after the initiation of a standardized regimen in children with cystic fibrosis

Journal of cystic fibrosis, 2022-10, Vol.21, p.S285-S285

2022

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134 Effect of hypertonic saline therapy on lung clearance index in preschool children with cystic fibrosis

Journal of cystic fibrosis, 2022-10, Vol.21, p.S79-S79

2022

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P251 The effect of breathing exercises on the quality of life of 3- to 12-yearold patients with cystic fibrosis and their families

Journal of cystic fibrosis, 2022-06, Vol.21, p.S137-137

2022

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P221 Identifying knowledge gaps by using adapted cystic fibrosis R.I.S.E. in a low-resource setting

Journal of cystic fibrosis, 2023-06, Vol.22, p.S132-S133

2023

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83: CF Global Care: Continuation of the collaboration between 2 CF centers; University of Michigan, USA, and Marmara University, Istanbul, Turkey, in the COVID-19 pandemic

Journal of cystic fibrosis, 2021-11, Vol.20, p.S41-S42

2021

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P407 Is it possible to increase parental knowledge about cystic fibrosis through education?

Journal of cystic fibrosis, 2024-06, Vol.23, p.S192-S192

2024

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86 Identifying Knowledge Gaps Using Adapted CF R.I.S.E in a Low Resource Setting

Journal of cystic fibrosis, 2022-10, Vol.21, p.S53-S54

2022

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109: Implementation of standardized nutritional algorithm increased the body mass index of children with cystic fibrosis: Quality improvement project

Journal of cystic fibrosis, 2021-11, Vol.20, p.S55

2021

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108: Change in FEV1 after implementation of standardized CF care algorithm: A quality improvement project

Journal of cystic fibrosis, 2021-11, Vol.20, p.S54-S55

2021

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Related factors of dental caries and molar incisor hypomineralisation in a group of children with cystic fibrosis

European archives of paediatric dentistry, 2014-08, Vol.15 (4), p.275-280

2014

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14 Genetic analysis results of our cystic fibrosis patients

Journal of cystic fibrosis, 2017-06, Vol.16, p.S66-S67

2017

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Incidence of SARS-CoV-2 in people with cystic fibrosis in Europe between February and June 2020

Journal of cystic fibrosis, 2021-07, Vol.20 (4), p.566-577

2021

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111THE INFLUENCE OF SELECTIVE LUNG PERFUSION ON THE INFLAMMATORY RESPONSE AND CLINICAL OUTCOME OF PATIENTS WITH CHRONIC OBSTRUCTIVE PULMONARY DISEASE UNDERGOING CARDIOPULMONARY BYPASS

Interactive cardiovascular and thoracic surgery, 2013-10, Vol.17 (suppl_2), p.S96-S96

2013

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266 Cystic fibrosis related osteopenia: What is the etiology?

Journal of cystic fibrosis, 2013-06, Vol.12, p.S116-S116

2013

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EE200 Cost of Illness of Spinal Muscular Atrophy in Turkey

Value in health, 2023-12, Vol.26 (12), p.S89-S90

2023

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Asymptomatic adults and older siblings with biotinidase deficiency ascertained by family studies of index cases

Journal of inherited metabolic disease, 2005-12, Vol.28 (6), p.903-912

2005

Volltextzugriff (PDF)

EPS5.08 The effects of nutrition therapy applied in patients with cystic fibrosis the quality of life and muscle strength

Journal of cystic fibrosis, 2024-06, Vol.23, p.S48-S49

2024

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P087 Experiences and opinions of cystic fibrosis patients and their families about their inability to access modulator treatments in Türkiye: a qualitative study

P027This study presents a comprehensive genetic and clinical profiling of patients with cystic fibrosis ineligible for CFTR modulator therapy, offering insights from a diverse patient cohort

EPS1.06 The validity and reliability of the Turkish version of the AWESCORE test

P453 Correlation of the upper and lower extremity muscle strength with performance tests in patients with cystic fibrosis

P356 A qualitative study on awareness, attitudes, behaviors and social adaptation of mothers of children with cystic fibrosis

171P Newborn spinal muscular atrophy screening: 2-year results of multi-center experience in Turkey

307 Beneficial effects of breathing and relaxation exercises on psychological status, sleep, and quality of life of caregivers of children with cystic fibrosis

135 Electronic home monitoring of children with cystic fibrosis to detect and treat acute pulmonary exacerbations and its effect on 1-year FEV1 loss

505 Methicillin-resistant Staphylococcus aureus eradication rate increased after the initiation of a standardized regimen in children with cystic fibrosis

134 Effect of hypertonic saline therapy on lung clearance index in preschool children with cystic fibrosis

P251 The effect of breathing exercises on the quality of life of 3- to 12-yearold patients with cystic fibrosis and their families

P221 Identifying knowledge gaps by using adapted cystic fibrosis R.I.S.E. in a low-resource setting

83: CF Global Care: Continuation of the collaboration between 2 CF centers; University of Michigan, USA, and Marmara University, Istanbul, Turkey, in the COVID-19 pandemic

P407 Is it possible to increase parental knowledge about cystic fibrosis through education?

86 Identifying Knowledge Gaps Using Adapted CF R.I.S.E in a Low Resource Setting

109: Implementation of standardized nutritional algorithm increased the body mass index of children with cystic fibrosis: Quality improvement project

108: Change in FEV1 after implementation of standardized CF care algorithm: A quality improvement project

Related factors of dental caries and molar incisor hypomineralisation in a group of children with cystic fibrosis

14 Genetic analysis results of our cystic fibrosis patients

Incidence of SARS-CoV-2 in people with cystic fibrosis in Europe between February and June 2020

111THE INFLUENCE OF SELECTIVE LUNG PERFUSION ON THE INFLAMMATORY RESPONSE AND CLINICAL OUTCOME OF PATIENTS WITH CHRONIC OBSTRUCTIVE PULMONARY DISEASE UNDERGOING CARDIOPULMONARY BYPASS

266 Cystic fibrosis related osteopenia: What is the etiology?

EE200 Cost of Illness of Spinal Muscular Atrophy in Turkey

Asymptomatic adults and older siblings with biotinidase deficiency ascertained by family studies of index cases

EPS5.08 The effects of nutrition therapy applied in patients with cystic fibrosis the quality of life and muscle strength

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