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Background and Epidemiology

The Pediatric clinics of North America, 2016-08, Vol.63 (4), p.567-584

2016

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Changing Epidemiology of the Respiratory Bacteriology of Patients With Cystic Fibrosis

Chest, 2016-02, Vol.149 (2), p.390-400

2016

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Palivizumab and Long-term Outcomes in Cystic Fibrosis

Pediatrics (Evanston), 2019-07, Vol.144 (1)

2019

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Patient Beliefs and Tamoxifen Discontinuance in Older Women With Estrogen Receptor—Positive Breast Cancer

Journal of clinical oncology, 2004-08, Vol.22 (16), p.3309-3315

2004

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Survival Comparison of Patients With Cystic Fibrosis in Canada and the United States: A Population-Based Cohort Study

Annals of internal medicine, 2017-04, Vol.166 (8), p.537

2017

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The Cystic Fibrosis Foundation Patient Registry. Design and Methods of a National Observational Disease Registry

Annals of the American Thoracic Society, 2016-07, Vol.13 (7), p.1173-1179

2016

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Obesity in Cystic fibrosis: prevalence, trends and associated factors data from the US cystic fibrosis foundation patient registry

Journal of cystic fibrosis, 2022-09, Vol.21 (5), p.777-783

2022

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The Cystic Fibrosis Foundation Patient Registry as a tool for use in quality improvement

BMJ quality & safety, 2014-04, Vol.23 (Suppl 1), p.i9-i14

2014

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Decreased survival in cystic fibrosis patients with a positive screen for depression

Journal of cystic fibrosis, 2021-01, Vol.20 (1), p.120-126

2021

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Impact of Socioeconomic Position on Access to the U.S. Lung Transplant Waiting List in a Matched Cystic Fibrosis Cohort

Annals of the American Thoracic Society, 2020-11, Vol.17 (11), p.1384-1392

2020

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Precision Medicine In Action: The Impact Of Ivacaftor On Cystic Fibrosis-Related Hospitalizations

Health affairs (Millwood, Va.), 2018-05, Vol.37 (5), p.773-779D

2018

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Clinical outcomes at 9–10 years of age in children born with cystic fibrosis transmembrane conductance regulator related metabolic syndrome

Pediatric pulmonology, 2024-06, Vol.59 (6), p.1606-1613

2024

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Outcomes of infants with indeterminate diagnosis detected by cystic fibrosis newborn screening

Pediatrics (Evanston), 2015-06, Vol.135 (6), p.e1386

2015

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Lung function in children with cystic fibrosis in the USA and UK: a comparative longitudinal analysis of national registry data

Thorax, 2022-02, Vol.77 (2), p.136

2022

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Bridging the survival gap in cystic fibrosis: An investigation of lung transplant outcomes in Canada and the United States

The Journal of heart and lung transplantation, 2021-03, Vol.40 (3), p.201-209

2021

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Evaluation of hospitalization data for the CFFPR‐PHIS linked data set

Pediatric pulmonology, 2020-01, Vol.55 (1), p.30-32

2020

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Cost Effectiveness of Screening Individuals With Cystic Fibrosis for Colorectal Cancer

Gastroenterology (New York, N.Y. 1943), 2018-02, Vol.154 (3), p.556-567.e18

2018

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Risk Factors for Gaps in Care during Transfer from Pediatric to Adult Cystic Fibrosis Programs in the United States

Annals of the American Thoracic Society, 2018-02, Vol.15 (2), p.234-240

2018

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Impact of loss to follow-up on survival estimation for cystic fibrosis

Annals of epidemiology, 2023-10, Vol.86, p.98-103.e5

2023

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Linkage of the CF foundation patient registry with the pediatric health information system database

Pediatric pulmonology, 2019-06, Vol.54 (6), p.721-728

2019

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Adherence to tamoxifen over the five-year course

Breast cancer research and treatment, 2006-09, Vol.99 (2), p.215-220

2006

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Prevalence, variability, and predictors of sinus surgery in pediatric patients with cystic fibrosis

Pediatric pulmonology, 2021-12, Vol.56 (12), p.4029-4038

2021

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Rate of Uptake of Ivacaftor Use after U.S. Food and Drug Administration Approval among Patients Enrolled in the U.S. Cystic Fibrosis Foundation Patient Registry

Annals of the American Thoracic Society, 2015-08, Vol.12 (8), p.1146-1152

2015

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The accuracy of cancer mortality statistics based on death certificates in the United States

Cancer epidemiology, 2011-04, Vol.35 (2), p.126-131

2011

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Bone mineral density screening by DXA for people with cystic fibrosis: A registry analysis of patient and program factors influencing rates of screening

Journal of cystic fibrosis, 2022-09, Vol.21 (5), p.784-791

2022

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Background and Epidemiology

Changing Epidemiology of the Respiratory Bacteriology of Patients With Cystic Fibrosis

Palivizumab and Long-term Outcomes in Cystic Fibrosis

Patient Beliefs and Tamoxifen Discontinuance in Older Women With Estrogen Receptor—Positive Breast Cancer

Survival Comparison of Patients With Cystic Fibrosis in Canada and the United States: A Population-Based Cohort Study

The Cystic Fibrosis Foundation Patient Registry. Design and Methods of a National Observational Disease Registry

Obesity in Cystic fibrosis: prevalence, trends and associated factors data from the US cystic fibrosis foundation patient registry

The Cystic Fibrosis Foundation Patient Registry as a tool for use in quality improvement

Decreased survival in cystic fibrosis patients with a positive screen for depression

Impact of Socioeconomic Position on Access to the U.S. Lung Transplant Waiting List in a Matched Cystic Fibrosis Cohort

Precision Medicine In Action: The Impact Of Ivacaftor On Cystic Fibrosis-Related Hospitalizations

Clinical outcomes at 9–10 years of age in children born with cystic fibrosis transmembrane conductance regulator related metabolic syndrome

Outcomes of infants with indeterminate diagnosis detected by cystic fibrosis newborn screening

Lung function in children with cystic fibrosis in the USA and UK: a comparative longitudinal analysis of national registry data

Bridging the survival gap in cystic fibrosis: An investigation of lung transplant outcomes in Canada and the United States

Evaluation of hospitalization data for the CFFPR‐PHIS linked data set

Cost Effectiveness of Screening Individuals With Cystic Fibrosis for Colorectal Cancer

Risk Factors for Gaps in Care during Transfer from Pediatric to Adult Cystic Fibrosis Programs in the United States

Impact of loss to follow-up on survival estimation for cystic fibrosis

Linkage of the CF foundation patient registry with the pediatric health information system database

Adherence to tamoxifen over the five-year course

Prevalence, variability, and predictors of sinus surgery in pediatric patients with cystic fibrosis

Rate of Uptake of Ivacaftor Use after U.S. Food and Drug Administration Approval among Patients Enrolled in the U.S. Cystic Fibrosis Foundation Patient Registry

The accuracy of cancer mortality statistics based on death certificates in the United States

Bone mineral density screening by DXA for people with cystic fibrosis: A registry analysis of patient and program factors influencing rates of screening

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