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"Knowledge is Power": Parent Views on the Benefits of Early Diagnosis and Awareness of Sex Chromosome Multisomy Among Pediatric Professionals

Journal of developmental and behavioral pediatrics, 2023-02, Vol.44 (2), p.e119

2023

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Role of patient and family engagement in quality improvement for pediatric surgery

Seminars in pediatric surgery, 2023-04, Vol.32 (2), p.151281-151281, Article 151281

2023

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P885: Connecting patient experience literature to clinical practice: What individuals and parents desire in delivering the diagnosis of sex chromosome aneuploidy

Genetics in Medicine Open, 2024, Vol.2, p.101799, Article 101799

2024

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Evidence-based recommendations for delivering the diagnosis of X & Y chromosome multisomies in children, adolescents, and young adults: an integrative review

BMC pediatrics, 2024-04, Vol.24 (1), p.263-263, Article 263

2024

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Phenotype and Adverse Quality of Life in Boys with Klinefelter Syndrome

The Journal of pediatrics, 2015-09, Vol.167 (3), p.650-657

2015

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Using information technology and social networking for recruitment of research participants: experience from an exploratory study of pediatric Klinefelter syndrome

Journal of medical Internet research, 2013-03, Vol.15 (3), p.e48-e48

2013

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Experiences of individuals receiving a sex chromosome multisomy diagnosis

Journal of community genetics, 2022-12, Vol.13 (6), p.619-628

2022

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Congenital adrenal hyperplasia in a child with 47, XYY: Case report

Journal of pediatric nursing, 2022-07, Vol.65, p.127-128

2022

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Dating Violence Prevention in Middle School and High School Youth

Journal of child and adolescent psychiatric nursing, 2005-01, Vol.18 (1), p.2-9

Close, Sharron M.

2005

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A qualitative examination of barriers and facilitators of pediatric enhanced recovery protocol implementation among 18 pediatric surgery services

Implementation science communications, 2022-08, Vol.3 (1), p.1-91, Article 91

2022

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A mixed-method approach to generate and deliver rapid-cycle evaluation feedback: lessons learned from a multicenter implementation trial in pediatric surgery

Implementation science communications, 2023-07, Vol.4 (1), p.82-82, Article 82

2023

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Dandy-Walker Malformation: A Case Study of an Infant With an Increasing Head Circumference and Delayed Developmental Milestones

Journal of pediatric health care, 2017-05, Vol.31 (3), p.398-403

2017

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Family experiences and attitudes about receiving the diagnosis of sex chromosome aneuploidy in a child

American journal of medical genetics. Part C, Seminars in medical genetics, 2020-06, Vol.184 (2), p.404-413

2020

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Teachers' experiences: social emotional engagement - knowledge and skills

Educational research (Windsor), 2022-01, Vol.64 (1), p.41-59

2022

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Rare sex chromosome variation 48,XXYY: An integrative review

American journal of medical genetics. Part C, Seminars in medical genetics, 2020-06, Vol.184 (2), p.386-403

2020

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In the Dark: Challenges of Caring for Sons with Klinefelter Syndrome

Journal of pediatric nursing, 2016-01, Vol.31 (1), p.11-20

2016

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Prenatal Genetic Diagnosis of a Sex Chromosome Aneuploidy: Parent Experiences

Journal of genetic counseling, 2021-10, Vol.30 (5), p.1407-1417

2021

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A baseline assessment of enhanced recovery protocol implementation at pediatric surgery practices performing inflammatory bowel disease operations

Journal of pediatric surgery, 2020-10, Vol.55 (10), p.1996-2006

2020

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Implementation of Enhanced Recovery Protocols for GI Surgery in Children: Practical Tools from Key Stakeholders

The Journal of surgical research, 2022-12, Vol.284, p.204-212

2022

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001–Clinical Needs and Desires of Patients and Families Affected by Sex Chromosome Variations: Addressing Patent-Centered Care

Journal of pediatric nursing, 2017-05, Vol.34, p.101-101

2017

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Progressive Dosing of Observed Real-Life Clinical Exposure for Nurse Practitioner Training

The Journal of nursing education, 2017-09, Vol.56 (9), p.552

2017

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Implementation of Enhanced Recovery Protocols for Gastrointestinal Surgery in Children: Practical Tools From Key Stakeholders

The Journal of surgical research, 2023-04, Vol.284, p.204-212

2023

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Age- and Sex-Specific Needs for Children Undergoing Inflammatory Bowel Disease Surgery: A Qualitative Study

The Journal of surgical research, 2022-06, Vol.274, p.46-58

2022

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004–Science & Family: Bidirectional Translation of Knowledge and Need in Sex Chromosome Aneuploidy

Journal of pediatric nursing, 2017-05, Vol.34, p.102-102

2017

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Transition of Health Care in Children with Chronic Health Conditions

Advances in family practice nursing, 2019-05, Vol.1, p.201-210

2019

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"Knowledge is Power": Parent Views on the Benefits of Early Diagnosis and Awareness of Sex Chromosome Multisomy Among Pediatric Professionals

Role of patient and family engagement in quality improvement for pediatric surgery

P885: Connecting patient experience literature to clinical practice: What individuals and parents desire in delivering the diagnosis of sex chromosome aneuploidy

Evidence-based recommendations for delivering the diagnosis of X & Y chromosome multisomies in children, adolescents, and young adults: an integrative review

Phenotype and Adverse Quality of Life in Boys with Klinefelter Syndrome

Using information technology and social networking for recruitment of research participants: experience from an exploratory study of pediatric Klinefelter syndrome

Experiences of individuals receiving a sex chromosome multisomy diagnosis

Congenital adrenal hyperplasia in a child with 47, XYY: Case report

Dating Violence Prevention in Middle School and High School Youth

A qualitative examination of barriers and facilitators of pediatric enhanced recovery protocol implementation among 18 pediatric surgery services

A mixed-method approach to generate and deliver rapid-cycle evaluation feedback: lessons learned from a multicenter implementation trial in pediatric surgery

Dandy-Walker Malformation: A Case Study of an Infant With an Increasing Head Circumference and Delayed Developmental Milestones

Family experiences and attitudes about receiving the diagnosis of sex chromosome aneuploidy in a child

Teachers' experiences: social emotional engagement - knowledge and skills

Rare sex chromosome variation 48,XXYY: An integrative review

In the Dark: Challenges of Caring for Sons with Klinefelter Syndrome

Prenatal Genetic Diagnosis of a Sex Chromosome Aneuploidy: Parent Experiences

A baseline assessment of enhanced recovery protocol implementation at pediatric surgery practices performing inflammatory bowel disease operations

Implementation of Enhanced Recovery Protocols for GI Surgery in Children: Practical Tools from Key Stakeholders

001–Clinical Needs and Desires of Patients and Families Affected by Sex Chromosome Variations: Addressing Patent-Centered Care

Progressive Dosing of Observed Real-Life Clinical Exposure for Nurse Practitioner Training

Implementation of Enhanced Recovery Protocols for Gastrointestinal Surgery in Children: Practical Tools From Key Stakeholders

Age- and Sex-Specific Needs for Children Undergoing Inflammatory Bowel Disease Surgery: A Qualitative Study

004–Science & Family: Bidirectional Translation of Knowledge and Need in Sex Chromosome Aneuploidy

Transition of Health Care in Children with Chronic Health Conditions

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