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Cross‐sectional study evaluating the association of haemophilia‐related distress and clinically relevant outcomes

Haemophilia : the official journal of the World Federation of Hemophilia, 2023-03, Vol.29 (2), p.505-512

2023

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Emicizumab initiation and bleeding outcomes in people with hemophilia A with and without inhibitors: A single‐center report

Research and practice in thrombosis and haemostasis, 2021-07, Vol.5 (5), p.e12571-n/a, Article e12571

2021

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Emicizumab in Hemophilia A

The New England journal of medicine, 2020-02, Vol.382 (8), p.785

2020

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Occurrence rates of haemophilia among males in the United States based on surveillance conducted in specialized haemophilia treatment centres

Haemophilia : the official journal of the World Federation of Hemophilia, 2020-05, Vol.26 (3), p.487-493

2020

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In-Hospital Complications and Readmission in Patients with Hemophilia Undergoing Hip or Knee Arthroplasty

JB & JS open access, 2020-04, Vol.5 (2), p.e0085-e0085

2020

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Differences and similarities in patient-reported outcomes among men and women with haemophilia

Haemophilia : the official journal of the World Federation of Hemophilia, 2024-08

2024

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Outcome measures in Haemophilia: Beyond ABR (Annualized Bleeding Rate)

Haemophilia : the official journal of the World Federation of Hemophilia, 2021-02, Vol.27 (S3), p.87-95

2021

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Nonsevere hemophilia A: often overlooked, but not forgotten

Current opinion in hematology, 2020-09, Vol.27 (5), p.295-301

2020

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Effect of etranacogene dezaparvovec on quality of life for severe and moderately severe haemophilia B participants: Results from the phase III HOPE-B trial 2 years after gene therapy

Haemophilia : the official journal of the World Federation of Hemophilia, 2024-05, Vol.30 (3), p.709-719

2024

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Complete Spontaneous Remission of Diffuse Large B-Cell Lymphoma of the Maxillary Sinus After Concurrent Infections

Clinical lymphoma, myeloma and leukemia, 2012-12, Vol.12 (6), p.455-458

2012

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Evidence of a disability paradox in patient‐reported outcomes in haemophilia

Haemophilia : the official journal of the World Federation of Hemophilia, 2021-03, Vol.27 (2), p.245-252

2021

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Patterns of symptoms and functional impairments in children with cancer

Pediatric blood & cancer, 2014-07, Vol.61 (7), p.1282-1288

2014

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Matching‐adjusted indirect comparison of bleeding outcomes in severe haemophilia A: Comparing valoctocogene roxaparvovec gene therapy, emicizumab prophylaxis, and FVIII replacement prophylaxis

Haemophilia : the official journal of the World Federation of Hemophilia, 2023-07, Vol.29 (4), p.1087-1094

2023

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Postoperative bleeding complications in patients with hemophilia undergoing major orthopedic surgery: A prospective multicenter observational study

Journal of thrombosis and haemostasis, 2022-04, Vol.20 (4), p.857-865

2022

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Assessments of pain, functional impairment, anxiety, and depression in US adults with hemophilia across patient‐reported outcome instruments in the Pain, Functional Impairment, and Quality of Life (P‐FiQ) study

European journal of haematology, 2018-04, Vol.100 (S1), p.5-13

2018

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Women and girls with haemophilia receiving care at specialized haemophilia treatment centres in the United States

Haemophilia : the official journal of the World Federation of Hemophilia, 2021-11, Vol.27 (6), p.1037-1044

2021

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Factors associated with pain severity, pain interference, and perception of functional abilities independent of joint status in US adults with hemophilia: Multivariable analysis of the Pain, Functional Impairment, and Quality of Life (P‐FiQ) study

European journal of haematology, 2018-04, Vol.100 (S1), p.25-33

2018

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A Case of Fetal-Induced Graft-versus-Host Disease

The New England journal of medicine, 2023-08, Vol.389 (7), p.668-670

2023

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Validation of a new instrument to measure disease‐related distress among patients with haemophilia

Haemophilia : the official journal of the World Federation of Hemophilia, 2021-01, Vol.27 (1), p.60-68

2021

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Patient preferences and priorities for haemophilia gene therapy in the US: A discrete choice experiment

Haemophilia : the official journal of the World Federation of Hemophilia, 2021-09, Vol.27 (5), p.769-782

2021

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Physical therapy within US HTCs: A multicentre survey of utilization, practice patterns and pain management approaches

Haemophilia : the official journal of the World Federation of Hemophilia, 2022-03, Vol.28 (2), p.343-350

2022

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Venous Thrombosis in Blacks

Circulation (New York, N.Y.), 2012-02, Vol.125 (6), p.837-839

2012

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An evaluation of PROMIS health domains in adults with haemophilia: A cross‐sectional study

Haemophilia : the official journal of the World Federation of Hemophilia, 2021-05, Vol.27 (3), p.375-382

2021

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Emicizumab in Hemophilia A

The New England journal of medicine, 2020-02, Vol.382 (8), p.785-786

2020

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Prospective, multicenter study of postoperative deep-vein thrombosis in patients with haemophilia undergoing major orthopaedic surgery

Thrombosis and haemostasis, 2016-07, Vol.116 (1), p.42-49

2016

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Cross‐sectional study evaluating the association of haemophilia‐related distress and clinically relevant outcomes

Emicizumab initiation and bleeding outcomes in people with hemophilia A with and without inhibitors: A single‐center report

Emicizumab in Hemophilia A

Occurrence rates of haemophilia among males in the United States based on surveillance conducted in specialized haemophilia treatment centres

In-Hospital Complications and Readmission in Patients with Hemophilia Undergoing Hip or Knee Arthroplasty

Differences and similarities in patient-reported outcomes among men and women with haemophilia

Outcome measures in Haemophilia: Beyond ABR (Annualized Bleeding Rate)

Nonsevere hemophilia A: often overlooked, but not forgotten

Effect of etranacogene dezaparvovec on quality of life for severe and moderately severe haemophilia B participants: Results from the phase III HOPE-B trial 2 years after gene therapy

Complete Spontaneous Remission of Diffuse Large B-Cell Lymphoma of the Maxillary Sinus After Concurrent Infections

Evidence of a disability paradox in patient‐reported outcomes in haemophilia

Patterns of symptoms and functional impairments in children with cancer

Matching‐adjusted indirect comparison of bleeding outcomes in severe haemophilia A: Comparing valoctocogene roxaparvovec gene therapy, emicizumab prophylaxis, and FVIII replacement prophylaxis

Postoperative bleeding complications in patients with hemophilia undergoing major orthopedic surgery: A prospective multicenter observational study

Assessments of pain, functional impairment, anxiety, and depression in US adults with hemophilia across patient‐reported outcome instruments in the Pain, Functional Impairment, and Quality of Life (P‐FiQ) study

Women and girls with haemophilia receiving care at specialized haemophilia treatment centres in the United States

Factors associated with pain severity, pain interference, and perception of functional abilities independent of joint status in US adults with hemophilia: Multivariable analysis of the Pain, Functional Impairment, and Quality of Life (P‐FiQ) study

A Case of Fetal-Induced Graft-versus-Host Disease

Validation of a new instrument to measure disease‐related distress among patients with haemophilia

Patient preferences and priorities for haemophilia gene therapy in the US: A discrete choice experiment

Physical therapy within US HTCs: A multicentre survey of utilization, practice patterns and pain management approaches

Venous Thrombosis in Blacks

An evaluation of PROMIS health domains in adults with haemophilia: A cross‐sectional study

Emicizumab in Hemophilia A

Prospective, multicenter study of postoperative deep-vein thrombosis in patients with haemophilia undergoing major orthopaedic surgery

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